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Being a parent of a child with a disability
Cerebral palsy research essay
Being a parent of a child with a disability
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14 years ago my mom gave birth to my brother who was diagnosed with Cerebral Palsy because he was not breathing when they delivered him. At the time I was two years old and I was not aware of what challenges my brother would face. I had no clue on why our house was filled with people everyday coming to see my brother after my mom got home from work. Learning later in life that a Physical Therapist, Developmental Therapist, Occupational Therapist, and a Speech Therapist visited him on a daily basis. Some of them who grew attached to our family and we still see on a regular basis. They only came to the house until he started kindergarten. My mom later told me that he was in a early development program which only lasted for the first five years …show more content…
of his life then he would have to rely on therapy from outpatient services and school. My mom spent the last nine years finding the right providers and therapy plan that will make him have somewhat of a productive life.
Watching their struggles is what sparked an interest in me becoming a Physical Therapist. My brother had several surgeries. He can’t walk and is depending on a wheelchair to get around. My mom relies on his daily therapy goals to help him to become more productive in life. In the beginning my mom had hopes that he would be able to walk so that at first that was her priority. After so many years had gone by and realizing that he was not going to be able to accomplish this and noticing that there were other problems, her goals for him eventually changed. In 2009 he ended up having hip surgery. After the surgery, he was no longer able to do some of the things he could do before the surgery. So my mom noticed that he was having head and neck control and he couldn’t sit up by himself. Her focused turned to this being his primary goals. My mom was really frustrated because he went through a lot of therapist and they were not able to accomplish this. My brother is 14 and he still can’t sit up without assistance and we have to constantly tell him to hold his head up. Some times I wonder if he knows that he is handicap because he wants to do everything the kids that are not handicap are
doing. One of my reasons for wanting to become a therapist is so other families won’t have to feel what my mom went thru. I have insight into what families go through and then also I will be able to offer my professional help in helping them achieve their realistic goals. My prospective is that therapy should give patients and their families hope to what things that can be achieved physically. I think people take life for granted. My mom says that she would give anything for my brother to be able to go outside and ride a bike or throw a ball. For the past five months I have been doing college tours. This past weekend I was able to visit Purdue University. It was a great experience. I also got the chance to speak to some ambassadors from the Health and Human Services Department. It was good to hear from other students in what helped them make the decision that Purdue was the right choice. This visit helped me realize that this University will be the best choice and will put me on the direct path to accomplishing my educational goals, which will lead me to achieving my professional goals. I hope that the Purdue University feels that I am a good candidate to represent the Purdue Boilermakers.
For future practice in social work, I learned that it is important to empower your clients to set goals and help push them to reach those goals. Robert wanted to plays sports and kept trying until he found a sport that was the best fit for him. Snow (2013a) talked about “the ‘problem’ of disability is not within the person, but within the social attitudes, and our attitudes shape the world we live in” (p.119). I agree with Snow, if our attitudes in society don’t change about “disabilities” the person will never feel completely welcomed or “fit” for
Unfortunately, a lot of parents may have a difficult time accepting their child, and coping with their needs and the responsibilities. From the book “The Elephant in the Playroom,” some families dealt with depression and physical and mental deterioration of their health. These struggles were shown in the story by Laura Cichoracki. Laura’s son’s name was Patrick. Patrick was a 6-years-old boy with autism. “I wasn’t eating right, I wasn’t showering regularly, I wasn’t sleeping well” (Brodey, p. 64). I also read the story told by Susan Marrash-Minnerly, which highlighted emotions that parents face. Susan also shed light on how wonderful children with special needs can be to a family, such as her ten-year-old third grader who had autism. Susan talked about how it was normal to feel angry at times, especially with the ups and downs a child’s disability may come with. “When I look back, I want to tell other parents that a child’s future is worth grieving over – but it’s not the end of the world” (Brodey, p. 75). After reading these stories, it became apparent to me that families who are raising kids with special needs, need support, kindness, and available resources. “I was fortunate to be surrounded by other moms who understood my pain…who could be supportive and emphatic.” (Brodey, p. 67). Overall, educators can use this kind of information that was shared in “The Elephant in the Playroom” about family systems and risk/resiliency by creating lines of open communication between families. This is to connect parents together that share similar struggles. By creating open communication is can allows for the teacher and parents to be on the same page when it comes to the issues affecting special needs students and
According to Ms. M, when she was a child her mother was very resolute and strong-willed. Despite Ms. M’s disability, her mother expected her to do things just like other children, and was intolerant of any excuses made by Ms. M in regard to her physical state. Ms. M described her mother’s behavior as insensitive at times. She reported her mother would often be disparaging and ridiculing towards her when she would act out her frustrations that arose from being pushed too hard. Ms. M expressed that although it was difficult for her as a child, she is now appreciative of her mother’s harsh and determined parenting because she believes that without her mother’s resolve and convictions, she would not be successful today.
My People with Disabilities Single Story Narrative In 6th grade, I remembered seeing the ambulance outside the windows of my elementary school. I was in the classroom when there was a rush of EMTs entering the building. Students all started to run towards the door, including me, but were told to get back to our seats. Throughout the day, I was wondering who might have gotten hurt while praying it wasn't my sister or brother.
...r tended to her activities of daily living – feeding her, grooming her. However, her mother had no insight on her condition and how to help her take care of herself. I, personally took her to school and talked to teachers who advised to have her join a school for the disabled, she was falling behind in classes and it was affecting her mentally and emotionally. She was visually impaired and no one in the family knew until she took a vision test catered to her. She is now 22 years old, and it amazes me to see how she has flourished. A young girl who used to be glued to the television, watching cartoons and the likes, she is now on her iPad watching videos on YouTube, face-timing with friends and family. When our grandmother passed away a few years ago, she took it upon herself to console everyone. Had her growth been hindered, she wouldn’t be the person she is now.
child who was not expected to live, take her first steps after weeks of therapy. The journey to reach my
I have known from a young age that I wanted to help people, and since then I have searched for the opportunity and knowledge to be able to do just that. On that note, seeing the joy on my uncle’s face, after losing both of his legs and having to learn to walk again with prosthesis’s was so uplifting for me, to witness him so happy even though I wasn’t involved with his healing process. Consequently, I could only imagine how good it would feel to know that I helped him regain his independence and return a smile to his face. That was when I realized that I wanted to give back to people that are in need of assistance. These individuals may not be able to do anything about the position they are in, Hence when I become an Occupational therapist; I will
It started off as most of the visits do, with case studies and office work, but what I didn’t know was that the social worker I was meant to be with was running late, and we were only burning time, in a way. Once my worker arrived she said the words I had been waiting to hear for the past month and a half “would you like to go on a visit?” At this very moment I think my face must have looked like a child who was just told they could have ice cream for dinner. As we drove up to the mountain, I was briefed on the foster home we were visiting as well as the family whose children were in care. We also talked about one other visit she had planned, that had fallen though; this one was to take place at a maternity house. As soon as we knocked on the door an older woman and the sounds of a jumping, giggling, little baby boy greeted us. We sat and discussed his growth, health, and overall wellbeing, while playing with the little man. While clumsy and falling often, he was just leaning to walk and his foster parents couldn’t be more proud. On the way back down the mountain I was told more about his time with this family, as well as his older siblings. It was an amazing thing to see, and I’m so grateful I was able to witness this particular
Some people don’t like talking about there issues or what is going on with them. When I was 21 months I had gone through a series of test to find out what was wrong with me. My parents went through many doctors and psychologist to figure out what was wrong with me. They finally diagnosed me with deep dyslexia. Growing up with deep dyslexia wasn’t easy I was in special Ed classes until I was 10 years old. When I got out of those classes I went into general education classes it was every hard at first, but I got better as the years went on. I was always embarrassed of my disability I always wanted to be normal and fit in with everyone. I never told any of the kids I had a disability. But during the 3rd grade I went into Resource Specialist Program with stands for (RSP). Every time that I went all the kids would ask me where I would go and I just tell them it’s none of your business. It was embarrassing ,but I learned to overcome it. There are people just like me with dyslexia for example Tim Tebow. Tim Tebow struggles with dyslexia, which he got from his family. He said it was very challenging and he likes seeing things when he learns. He used flashcards to help him memorize plays when he was in the NFL. It helped him become a better football player and sometimes he would play those plays with people who could help him better understand the plays. But despite his disability he managed to overcome his
My mom has bipolar disorder and depression. Most of my life I had to deal with her denial of not being mentally ill. There were hard times but now that she accepted her mental illness, her behavior is leveled out. However, my dad has diabetes and high blood sugar. Even though diabetes and high blood sugar are categorized under a disability, I worry these illnesses will cause my dad to obtain a disability. When I compare my parents, I know that my mom does not have modifiable factors contributing to her disability. However, my dad does. He can make small changes to his diet and activity level. If he made the small changes is overall health would improve and lessen his chance of acquiring a disability. Recently, my dad has started to eat healthier and increased his activity level. When it comes to disabilities and how they would affect, they make me want to be proactive and advocate that particular person. I want them to overcome the hardship of the disability while having the resources and the support system they need. That what makes me excited to be an Occupational Therapist working with individuals with
I remember the day she born. I was nervous for the simple fact that my life would never be the same. Soon no longer would I be known as just Ayanna, I would take on a new title. A title that I would share with so many woman, and after eight long hours of labor, I would now be known to the world as mommy.
My son is nine years old and suffers from Autism, Cerebral Palsy, and mental retardation.He was born prematurely and critically ill. Though odds were very much against him, he made it. A year later, after his first MRI, we first heard the words Cerebral Palsy. By the age of two I knew he was Autistic but we could not get a diagnosis until he was seven. He was put on medication to help his self-abusive behaviors and self-stimulation.
In middle school I was diagnosed with a disability with the way I expressed myself through writing. Ever since, I have gained multiple values and learned several lessons about self confidence. I was taught to push past my limits, in order to be successful in reaching my goals along with my dreams. Today I am a senior in high school who was once thought to struggle, but was able to succeed beyond expectations. To some, a disability may seem like a setback from achieving goals, but to me I used it as a challenge for myself. I accepted myself for who I was and looked at my disability as a unique trait of mine. I was able to provide a message to others that anything you set your mind to is possible with dedication and hard work. It might take
The summer after my sixth grade year, my mother decided to work as secretary for Special Ed Summer School. Although my little sister Madelyn and I refused to believe it, my mother thought we were too young to stay at home by our selves while she was at work. The next day she hauled us through our kicks and screams to work with her at six in the morning. My mother told me to go help her friend Ms. Tanya. When I got outside Ms. Tanya said hello and insisted that I just call hero she could tell my voice apart from all of the children. Tanya quickly scribbled a name and a bus number on my hand and said, “Ok, go get him off the bus. Tell the bus driver you are working with me. Hold his hand and do not let him out of your sight until you see me.” Petrified, I went to retrieve a kid form a bus with no inkling as to what to expect. The child’s name was Ethan and one look at him had me completely confused. He looked like a normal first grade. When we got to the classroom, Tanya told me that he is autistic.
Christy was born with Cerebral Palsy due to problems during birth. There were complications when he was born and it changed his family forever. Everyone assumed that his family would put him in a home, but his parents refused. His mother is the only one who ever seems to be in his corner. His father is constantly looking down on him and assuming that he cannot do anything; this is a problem that seems to be less of a problem, but still a huge problem.