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Disadvantages of confidentiality in research
The tension between confidentiality and the need to disclose information
The tension between confidentiality and the need to disclose information
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Adults are obligated to respect children’s rights to participate in research, but in doing so it is imperative that adults are not unintentionally coercing children into participation. Adults and researchers must be aware of the power imbalances that are active during the research process and to do everything they can to equalize these imbalances. Researchers need to give children the tools they need to know that participation is voluntary and that they may withdraw their participation at anytime. Researchers also need to emphasize that there are no wrong answers and children are allowed to express their opinion and answers freely.
The majority of research conducted with children involves having children communicate their thoughts, knowledge,
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Children are perceived as not being able to access the appropriate resources needed, therefore it is considered an adults’ responsibility to intervene and provide a suitable intervention (Mishna et al., 2004). Researchers conducting studies with children are challenged to carefully balance the need to protect young people while not infringing on their rights to confidentiality. While confidentiality should be respected, there are situations in which keeping all information private might cause greater harm to the child than disclosure. Circumstances under which researcher are required to disclose information include conditions where a legal obligation exists (e.g., disclosure of child abuse) or where there is an immediate risk of harm (e.g., serious threat of suicide) that can only be prevented by releasing information (Kemper, Fangerau, & Fegert, 2010; Kobocow, McGuire, & Blau, 1983). Researchers have an ethical duty to release information to the proper authority if they feel a child is at risk (Beresford, …show more content…
Yet, the best interest of the child it is not always easily discernable, leaving a wide range of uncertainty that researchers must navigate. These issue may be further exacerbated by disagreements between what a researcher and parent believes is best for the child. Parents and other significant adults may feel that they have the rights to know about their child’s emotional or physical distress, even when these events do not warrant a legal obligation of disclosure. Certain families may not see children as having a need for privacy and expect to be informed of any and all information disclosed to the researcher (Mauthner 1997).Yet, a researcher may believe that revealing this information violates the child’s confidentiality rights. Researchers also need to consider how parents’ willingness to allow their child to participate is affected by the limitations of confidentiality, as access and retention of child participants is vital to the research process (King, & Churchill, 2000). To ensure that both parent and child understand when a disclosure will be made, Minsha et al., (2004) suggested that researchers should clearly present their intentions with respect to sharing any information, as well as the process that will be followed with the child and the parent. Currently, it is
Wilson, K. and Adrian J. L. (2007) The Child Protection Handbook: The Practitioner's Guide to Safeguarding Children. Edinburgh: Bailliere Tindall
...rt of the medical profession, the therapists are expected to maintain the confidentiality of their clients. A psychologist must be able to acquire a client’s trust in order to keep quality confidentiality amongst the two parties. Only on seriously occasions should the patient’s records be shared, under certain other conditions the psychotherapy records of a minor can be reviewed by others without prior written consent. The Health Insurance Portability and Accountability Act (HIPAA), psychologists can usually give way the patient records to parents or legal guardians. Some of the ethical rules that apply to the practice of child and adolescent psychiatry are clear and generally agreed upon For example, rules against sexual contact or harsh or abusive treatment are encoded as boundary violations. A psychotherapist must be able to respect the boundaries of the client.
The ASCA reminds school counselors that they are to guide and assist students who are victims by supplying appropriate services (ASCA, 2016). When abuse is suspected, a guidance counselor must personally report the abuse to child protective services (CPS). Cuff vs. Grossmont Union High School District reminds us how vital it is to follow all reporting procedures. In the state of Virginia, teachers, and those working in public and private schools, are mandated reporters and must report within 24 hours of the suspected neglect or abuse; even if the abuse occurred in the past (DSS.VA.GOV). Failure to report will result in criminal actions. Although school counselors are held to confidentiality terms, cases such as these warrant a duty to warn and an ethical obligation to protect. The American Association of Christian Counselors (AACC) state that as Christian counselors, one should always disclose confidential information when a life is endangered, this includes events such as suicidal ideations, bullying, and abuse (AACC, 2014). Although the ASCA and the AACC provides guidance to crisis responses, there are still legal and ethical issues that may not be
Children, young people and adults need to know confidentiality will be honoured unless their, or other's safety and well-being is threatened, a crime has or is likely to be committed, and a professional's knowledge of and access to the child, young person or adult's information will not be abused, in the same way that it is important for professional's to understand how important shared information is, where and how it's stored, transported and disclosed to other appropriate professionals.
The caretakers’ response to a child 's disclosure of sexual abuse is important. Asking about caretakers’ emotional state and support systems can be helpful in optimizing services for the family. Significant concerns for child safety are raised when a caretaker is openly disbelieving of a child 's disclosure and when a caretaker allows further contact between a child and the suspected perpetrator of abuse. (p. 21)
Child psychology, in contrast to childhood studies, investigates the child scientifically as an object of study, the child having less of an influence over the way the research is being
The purpose of this posting is to explain what privacy and confidentiality mean and then review the case study about the options of reporting abuse in a child and what principles of ethics are involved with it.
Where a practitioner has concerns that a child may be at risk of Significant Harm, it may be possible to justify sharing information without consent ,Practitioners should use their judgement when making decisions on what information to share and when and should follow their organisation procedures or consult with their manager if in doubt. The most important consideration is whether sharing information is likely to safeguard and protect a child (Information sharing March 2015).
To sum things up, the ethical demeanor of research involves respect for the safety and rights of subjects during the sequence of the trial. This includes protecting privacy and confidentiality, monitoring the condition of research subjects to assure their safety, terminating study participation in the case of hostile events, and notifying enrolled subjects about new risks, benefits, or other information that may bear upon subjects’ decisions to continue enrollment in the research. As new evidence shows itself, trial investigators and data safety monitoring boards (DSMBs) can alter the study plan, initiate notice of enrolled subjects, make changes to the informed consent policies, or stop the trials earlier than intended. Investigators should soon classify a technique for ensuring effective communication between the IRB and DSMB throughout these studies.
The school setting makes this task quite daunting since “a culture of open communication regarding student information is quite common among educators in school settings” (ARTICLE P337). Even so, it is important to disclose only the most vital information so as to not jeopardize one’s job duties nor compromise one’s ethics. When taking in a situation in its entirety, a school counselor must dissect all of the information given and only release what is absolutely necessary in order to take action – if any action is needed. The relationship of trust between the school counselor and the minor student must be kept intact and remain unaffected at all cost. Releasing too much information would create mistrust and separation between the two, leaving the student with no one else to turn to.
Emotional abuse is prevalent within our society. Some child experts “argue that almost all parents are guilty of emotional maltreatment of child at some time or another” (Crosson-Tower, p. 211, 2010). However, it remains “the most difficult type of abuse or neglect to define or isolate” (Rees, p. 59, 2010). While physical abuse leaves detectable signs like scars and bruises, emotional abuse is hidden deep within a person. It lacks the public profile of sexual or physical abuse (Rees, p. 59, 2010).
Privacy and confidentiality expectations in research are outlined in The Belmont Report through the principles of 1) Respect for Individuals
More importantly, “60 percent of children who are sexually abused do not disclose and most are acquaintances but as many as 47 percent are family or extended family” (The Scope of, 2016). The prevalence of child sexual abuse is difficult to determine because it is often not reported; experts agree that the incidence is far greater than what is reported to authorities (Child Sexual Abuse, 2012). Startling statistics represent the depth of the issue. Globally, prevalence rates show that a range of 7-36% of women and 3-29% of men experience sexual abuse in childhood (The Scope of, 2016). “The U.S Department of Health and Human Services’ Children’s Bureau report child maltreatment 2010 found that 9.2% of victimized children were sexually assaulted” (Child Sexual Abuse,
There are some questions a patient 's doctor must be a secret, you can not tell a third party about the problem. Another example, if a teenager says to a doctor, "I am depressed, I have been trying to kill myself" ( "Youth confidential: a young person 's right to privacy"). Doctors are not sure of information, because the doctor is this guy right help. Teen confidentiality concerns may be an important barrier to access to health services. Adolescents have the right to contraception confidentiality when it comes to contraception.
responding to parental demands for confidential information. Professional School Counseling, 6(2). Retrieved March 6, 2004, from MasterFILE Premier.