The Department of Health (2010) defines long-term conditions as ‘a condition that cannot at present be cured but can be controlled by medication and other therapies’. This essay will examine the long-term conditions faced by Angela using the relationship-centred framework and evidence based practice in order to discuss the role of the nurse and healthcare professionals. The themes health bladder management quality of life issues will also be covered in relation to Angela’s long-term condition of primary progressive multiple sclerosis (PPMS). Policies and frameworks Curry et al. (2010) states improved management of people with long term conditions has been a key aim in the NHS, thus policies and frameworks have been set in place to ensure …show more content…
Nolen et al (2006) created this framework for both staff and individuals involved in care. The aim of the framework is to educate and support self awareness in all the participants involved in healthcare, for example nurses should work effectively and closely with service users, families, cares etc. (Nolan et al, 2006). The sense continuity will be covered further throughout the essay in relation to Angela’s long-term condition. Nolen et al (2006) defines continuity as the ability “to make links between the past, present and future”, this links with Angela’s MS as it is progressive and will need continuous health input throughout her …show more content…
This may cause emotional and financial stress on her as she a mother of two and a wife. Also her husband might be working full time and become the main provider for the family, this will likely put a considerable amount of stress on him as well. In addition, Boström and Nilsagård (2016) highlights children’s ability to cope with a long-term condition such as MS depends on how well the parents cope with it. It is important that healthcare professionals enable for family members to cope while proving with support. Angela and her family can attend group services, which will provide a support system. Miller et al (2005) state people with MS must be offered a broad range of services beyond those by healthcare professional in order to meet their quality of life. In addition Costello et al. (2003) states individuals with MS and caregivers experience high levels of anxiety and depression, and reduced quality of life. This will affect Angela psychologically as it could lead to depression. Angela and her family will be given psychological support such counselling. This would help by giving her an anxiety management
Mairs’ piece is a careful examination of her experience with MS and her perspective towards her future. In contrast, Soyster writes humorously of a particular incident he had with MS and artfully weaves his ideas about the disease in with his story. In both instances, the authors share the purpose of narrating their encounter with MS to the world to raise awareness.
Another focus for change is that over the years the demand for home and community care over hospital care has continued to grow, as stated by the Queens nursing institute “Recent health policy points to the importance of improving and extending services to meet the health and care needs of an increasingly older population and provide services which may have previously been provided in hospital within community settings”.
The NHS Outcomes Framework has five standard domains which is set out to improve the quality and outcome of care and services that is being delivered to the patients and service users (National Quality Board, 2011). As such, this project plan is focused on domain 2 as it has been mentioned before, is based on improving the quality of people with long term conditions. Nurses will give cardiac discharge advice to patients on self care, thus identifying how to improve and manage their condition so that they can continue with their normal lifestyle. Furthermore patients will be advised on how to overcome stress and depression which will help them in maintaining the activities of living (DoH, 2013).
Globally it is estimated that there will be a “252% increase in people aged over 65 with one or more chronic condition by 2050” (Procter et al, 2013). The Department of Health’s 2013 Vision and Strategy for District Nurse detailed the increasingly important role that District Nurses have in the delivery and coordination of community healthcare. It described the District Nurse role as “Managing and accountability for an active caseload and providing population interventions to improve community health and wellbeing; Working with a range of health and social care partners in order to provide services for adults and their carers, at home”. A large part of the District Nurse caseload is managing patients with long term conditions and multi-morbidities.
I will be evaluating the case of Angela and Adam. Angela is a white 17 year old female and Adam is her son who is 11 months old (Broderick, P., & Blewitt, P., 2015). According to Broderick, P., & Blewitt, P., (2015) Angela and her baby live with her mother, Sarah, in a small rental house in a semirural community in the Midwest. Adam’s father, Wayne, is estranged from the family due to Sarah refusing to allow him in the house however, Angela continues to see him without her mother’s permission which is very upsetting for Sarah. Angela dropped out of high school and struggles raising her son (Broderick, P., & Blewitt, P., 2015). With all that is going on in Angela and Sarah’s life right now their relationship has become strained and hostile which
In this 21st century, there are more and more policies and guidelines that focused on long term conditions as these conditions are incurable but only can be controlled and progressed with long term management. In Northern Ireland, a policy framework “Living with Long Term Conditions” had been introduced and addressed about long term conditions (LTC) that needs high quality of care. This policy provides a better outcome with supporting good practice through 6 key development areas. The 6 key principles are essential in helping people with LTC to receive a better care, treatment and support. First area is partnership between the service user and the collaboration team whereby communication skill is highlighted to encourage service users to play an active role in managing their own conditions with individual care plan. Next, self-management is also another key principle to be developed so that those people with LTC managed their condition effectively which may progress over time. Through training and education on acquired skills is a good start to promote self-management strategy as they able to deal with flare-ups, condition and lifestyle. Thus, information is vital in helping them understand their own condition and knowing what is the best for them in order to increase their quality of life. A medicines management service help in bringing the best outcome for LTC patients while carer also need to maintain their own health to continue their caring role and act as a safeguarding through the provision of the support. Last principle is improving care and services at the right time and right way to prevent readmission and prolong hospital stay (DHSSPS, 2012).
The people with MS have to take a lot of Medication, and i mean a lot. So i’m just going to list a few. MS people will have to take a pill called Copaxone and this people will give the person a Myelin Protein. They people will take another pill called Gilenya and this will give them a dose of Flinglimomond. Another pill that they will have to take is called Tecfidor which keeps the inflammation down. The next thingn that they might have to take is Tysabri and that is when they put an IV in your arms about once about every for weeks SO thoes are some pills that they will have to take. The reason they have so many is there is no cure for this disease.
A care relationship is special and requires skill, trust and understanding. This essay will elaborate how the quality of that relationship affects the quality of the care given and the experiences felt in receiving care. These different relationships will depend on the type of care given, who the care is given by and what sort of previous existing relationship there was to begin with. For a good care relationship to work it needs to follow the 5 K101 principles of care practice which are 'support people in maximising their potential','support people in having a voice and being heard','respect people's beliefs and preferences','support people's rights to appropriate services' and 'respect people's privacy and right to confidentiality'.(K101,Unit 4,p.183). If all of these needs are met a far exceptional quality of relationship between the carer and care receiver will be achieved.
According to National Multiple Sclerosis Society, Multiple Sclerosis (MS) is an unpredictable, often disabling disease of the central nervous system (CNS) that disrupts the flow of information within the brain, and between the brain and body. The central nervous system (CNS) comprises of the brain and the spinal cord. CNS is coated and protected by myelin sheath that is made of fatty tissues (Slomski, 2005). The inflammation and damage of the myelin sheath causing it to form a scar (sclerosis). This results in a number of physical and mental symptoms, including weakness, loss of coordination, and loss of speech and vision. The way the disease affect people is always different; some people experience only a single attack and recover quickly, while others condition degenerate over time (Wexler, 2013). Hence, the diagnosis of MS is mostly done by eliminating the symptoms of other diseases. Multiple sclerosis (MS) affects both men and women, but generally, it is more common in women more than men. The disease is most usually diagnosed between ages 20 and 40, however, it can occur at any age. Someone with a family history of the disease is more likely to suffer from it. Although MS is not
Recognition, response and treatment of deteriorating patients are essential elements of improving patient outcomes and reducing unanticipated inpatient hospital deaths (Fuhrmann et al 2009; Mitchell et al 2010) appropriate management of the deteriorating patient is often insufficient when not managed in a timely fashion (Fuhrmann et al 2009; Naeem et al 2005; Goldhill 2001). Detection of these clinical changes, coupled with early accurate intervention may avoid adverse outcomes, including cardiac arrest and deaths (Subbe et al. 2003).
In this essay, the disease Multiple Sclerosis (MS) will be reviewed. This piece of work will lay emphasis on the pathophysiological, psychosocial, economic and cognitive effects it has on the individual, family and society. It will also make mention of how a professional nurse would support the individual, the family/carer, the nursing process and the professional role of the nurse according to the Nursing and Midwifery Council (NMC) code of conduct which sets a standard for all nurses and midwives (NMC, 2008) . It has been chosen because this chronic disorder is quite prevalent in the UK.
The NHS seeks to improve the health and wellbeing of patients, communities and its staff through professionalism, innovation and excellence in care. Also, the NHS helps people and their communities to take responsibility for living healthier
The open university (2008) K101 An introduction to health and social care, block 1, unit 2, Illness, health and care, pg. 84, Milton Keynes, The open university.
The uncertain nature of chronic illness takes many forms, but all are long-term and cannot be cured. The nature of chronic illness raises hesitation. It can disturb anyone, irrespective of demographics or traditions. It fluctuates lives and generates various inquiries for the patient. Chronic illness few clear features involve: long-lasting; can be managed but not cured; impacts quality of life; and contribute to stress. Chronic illnesses can be enigmatic. They often take considerable time to identify, they are imperceptible and often carry a stigma because there is little sympathetic or social support. Many patients receive inconsistent diagnoses at first and treatments deviate on an individual level. Nevertheless, some circumstances require
Improving care of patients living with long-term conditions like Diabetes and Arthritis should be an international priority. There is some confirmation that recommends multiplication of people suffering from one or more long term condition are struggling to manage their condition (Coleman & Newton, 2005). The Person living with long term condition and health problems will impact on their families and the society also it depends on their care needs, circumstances, their personal goals and capable to look after themselves and their lifestyle (Asbridge & Davies 2017). Current approaches stress enhancing understanding of contribution in care and supporting self-management, which involve “cooperatively helping people also, their carers to build