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Stigma of mental disability
Societal attitudes towards people with disabilities
Stigma of mental disability
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Since children with intellectual disabilities require more support and care, being a parent of such children is likely to be more demanding than being a parent of normal children (Hollins, Woodward, and Hollins, 2010). Globally, many children with intellectual disabilities and their parents are underprivileged in terms of socio-economic status (World Health Organization, 2008). The numbers of children with intellectual disabilities being cared for at home are increasing and this is mainly because of the emphasis there is now to care for people with disabilities in the community (World Health Organization, 2010). The main carer for such children in a home context are parents (Jacques, 2003). The parents’ life quality can be affected by caring for a child or adult with a disability (Mansell and Wilson 2010). For all parents caring for one‘s children brings joy and achievement but also has challenges and stress. Parents who bring up intellectually disabled children have been regarded as a unique group of caregivers due to their encounter with unique circumstances and challenges in the process of looking after these children. In other words, those parent-caregivers deal with the children’s significant developmental delays resulting in insufficiencies in physical, sensory, communication and cognitive skills and some will also have significant complex …show more content…
Factors Affecting Parental Practices in Raising Children with Intellectual Disabilities According to Beirne and Mary (1994) mild and moderate level of children with intellectual disabilities is usually associated with the socio-cultural or familial factors whereas the profound type of intellectual disabilities is usually caused by the genetic or hereditary factors. Therefore, it is possible to say that mild and moderate level of intellectual disabilities is the result of environmental factors that affect the quality of parental practices and support for children with intellectual disabilities. 2.8.1 Family
What comes into one’s mind when they are asked to consider physical disabilities? Pity and embarrassment, or hope and encouragement? Perhaps a mix between the two contrasting emotions? The average, able-bodied person must have a different perspective than a handicapped person, on the quality of life of a physically disabled person. Nancy Mairs, Andre Dubus, and Harriet McBryde Johnson are three authors who shared their experiences as physically handicapped adults. Although the three authors wrote different pieces, all three essays demonstrate the frustrations, struggles, contemplations, and triumphs from a disabled person’s point of view and are aimed at a reader with no physical disability.
Unfortunately, a lot of parents may have a difficult time accepting their child, and coping with their needs and the responsibilities. From the book “The Elephant in the Playroom,” some families dealt with depression and physical and mental deterioration of their health. These struggles were shown in the story by Laura Cichoracki. Laura’s son’s name was Patrick. Patrick was a 6-years-old boy with autism. “I wasn’t eating right, I wasn’t showering regularly, I wasn’t sleeping well” (Brodey, p. 64). I also read the story told by Susan Marrash-Minnerly, which highlighted emotions that parents face. Susan also shed light on how wonderful children with special needs can be to a family, such as her ten-year-old third grader who had autism. Susan talked about how it was normal to feel angry at times, especially with the ups and downs a child’s disability may come with. “When I look back, I want to tell other parents that a child’s future is worth grieving over – but it’s not the end of the world” (Brodey, p. 75). After reading these stories, it became apparent to me that families who are raising kids with special needs, need support, kindness, and available resources. “I was fortunate to be surrounded by other moms who understood my pain…who could be supportive and emphatic.” (Brodey, p. 67). Overall, educators can use this kind of information that was shared in “The Elephant in the Playroom” about family systems and risk/resiliency by creating lines of open communication between families. This is to connect parents together that share similar struggles. By creating open communication is can allows for the teacher and parents to be on the same page when it comes to the issues affecting special needs students and
In countries with life expectancies over 70 years of age, people spend on average about eight years, or 11.5 percent of their life span, living with disabilities. The passage "A Giant Step” by Henry Louis Gates Jr is a memoir about how he came to injure his foot, and all the complications that went along with the permanent injury. Similarly “The Absolutely True Diary of a Part-Time Indian” is a story about a teen named Junior who has hydrocephalic, we learn the many complications that come along with this disability. There are similarities and differences in how both people live their lives. Both people with their disabilities find it within themselves not to give up and still overcome challenges. On the other hand both mothers aren't the same, their motives for their children are completely different. Junior was also able to live a little more normal life, have freedom meanwhile Gates was held back a little more from
He is perhaps the posterchild for stress. Stuck at a dead-end job, longing for freedom, but unable to do so because he is the main caregiver for his brother, he does a remarkable job of showing patience when dealing with a developmentally disabled person. However, as a stressed out individual, his relationships tend to suffer, as he is riddled with frustration and thinks very negatively about himself. As the primary caregiver for his younger sibling, this is to be expected. Caregivers of physically or mentally disabled family members are at risk for chronic stress. Spouses who care for a disabled partner are particularly vulnerable to a range of stress-related health threats, including influenza, depression, and heart disease. Caring for a spouse who has even minor disabilities can lead to severe stress (Harvey
According to Ms. M, when she was a child her mother was very resolute and strong-willed. Despite Ms. M’s disability, her mother expected her to do things just like other children, and was intolerant of any excuses made by Ms. M in regard to her physical state. Ms. M described her mother’s behavior as insensitive at times. She reported her mother would often be disparaging and ridiculing towards her when she would act out her frustrations that arose from being pushed too hard. Ms. M expressed that although it was difficult for her as a child, she is now appreciative of her mother’s harsh and determined parenting because she believes that without her mother’s resolve and convictions, she would not be successful today.
When many of us hear the word “disabled,” we often times have a preconceived notion characterized as a limited individual or even one who lacks skillfulness. Although most of us don’t choose these thoughts in a critical manner, we frequently overlook the potential opportunities that these disabled individuals have to adapt and overcome difficulty. In all fairness, I can admit that at times when I have thought of a “disabled” individual, I am guilty of having a predetermined mindset. Since being recently introduced to “Clara: A Phenomenology of Disability,” and Aimee Mullins “The Opportunity of Adversity,” I have become much more mindful in the way I perceive those living life with a disability and how it may affect their future.
As a parent, learning that your child has developmental disabilities can be a life-altering moment in time and can cause a devastating chain reaction of events. These events have the potential to change family priorities and structure, hurt relationships, deplete financial savings and stability, and emotionally drain everyone intimately involved with you and your child. How do you find human services programs, agencies, or advocates, whose primary job is to help you provide everything your child needs? It certainly can be an overwhelming barrier, but it's the first step in giving you, your child, and your family a plan of action, goals, success, good mental health, and bringing everyone back together. What are Developmental Disabilities?
Weeks, S. K (1995). What are the educational needs of prospective Family Caregivers of newly disabled adults? Rehabilitation Nursing, 20(5), 256 – 60, 272.
Raising a child with a disability will have an impact, positive or negative, on the structure of a family system. Research concerning how various disabilities affect the family functions focuses primarily on the parents. Siblings are seldom included in the research, yet they can provide a stable, powerful developmental context for socioemotional development.
Living with a child with special needs can have profound effects on the entire family including the extended family members, siblings, parents, and the child with the special needs. It can affect all aspects of family functioning, since they have to be on the watch for the child. On the positive side, living with a child with special needs can expand horizons, develop family cohesion, increase the family members’ awareness of their inner strength, and promote connections to community groups. On the negative side, this child will need time, physical and emotional demands and financial cost in order to make the child’s life comfortable. However, the impacts will depend on the child’s condition, and its severity, as well as the emotional, physical, and the financial resources available to take care of the child.
The number of children with special educational needs and disability (SEND) in England is over 1.2 million with over 230,000 having statements or education, health and care plans, a number which has continued to rise over the years (Department for education, 2016). Described by the department for education (2014, p.7) as “Children and young people with SEN all have learning difficulties or disabilities that make it harder for them to learn…”. Within this assignment I intend to outline the provision made for a SEN child in my attachment, which will be referred to as Child A.
I interviewed a woman who has a child with special needs. The child is now in kindergarten. The mother reported having a normal pregnancy with no complications. This was the second child for the mother, who has another child who was five years old at the time. The mother disclosed that during the pregnancy, she was in the process of separating from the child’s father and that this caused a moderate level of stress. At the time of the pregnancy, the mother was also working full time as a waitress in a local restaurant. The mother reported that her job required her to be on her feet for long periods of time. She was able to work until around a week before her child was born. The mother reports that the child was born around two weeks early but that labor was easy and the child was born healthy.
Raising a child with a disability may have some difficulties and challenges but it will have a lot of rewards; just as having a normal child. A parent want their child to live a normal fulfilling life as any other normal child. This life style will take extra patience, time and adaptive equipment and a special person to do it. When accepting that your child has a disability it is good to get all the literature on that type of disability. This will help you understand your child’s disability. A parent involvement is needed to find support groups, so they can get some insight on things someone from the support group has done to get certain things accomplished.
Education is a profession which requires a teacher to be able to communicate with a multitude of students on a variety of levels. There is not a class, or student for that matter, that is identical. Therefore, teachers must be able to identify and help educate students from all different types of backgrounds and at different levels. Teaching a singular subject presents difficulties, but teaching students with disabilities should not be one. There are three main teaching areas that need to be focused on when teaching a student with a learning disability. Teachers need to focus on the strategies that will assist students with reading comprehension skills, writing skills, and maintaining appropriate behaviors in a classroom setting.
In society today, there are many children and parents who face the diagnosis of having a developmental disability that would qualify them for special education and needs. This time can come with many questions for the parents when they realize the specialized care and education their child will need. Most often, questions arise about their schooling and how they will be included with other children, as well as what services are available to their child. How their disability impacts their life is a very valid concern because their education will be impacted. When a disability is discovered, it effects trickle down from the child to the parents, to the teachers and finally the medical and educational specialists.