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Managing transitions chapter 5
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As a parent, learning that your child has developmental disabilities can be a life altering moment in time and can cause a devastating chain reaction of events. These events have the potential to change family priorities and structure, hurt relationships, deplete financial savings and stability, and emotionally drain everyone intimately involved with you and your child. How do you find human services programs, agencies, or advocates, whose primary job is to help you provide everything your child needs? It certainly can be an overwhelming barrier, but it's the first step in giving you, your child, and your family a plan of action, goals, success, good mental health and bringing everyone back together. What are Developmental Disabilities? The word disability means something different to anyone you ask. Officially, having a developmental disability means the disability appears before someone turns 22 years old and causes a chronic life long or extended duration impairment. These disabilities, which may not be seen, can be physical, intellectual, neurological, psychiatric (or others), and the disability has a strong need for services or special care. (Developmental Disabilities Act, section 102[8]) What are Services? Developmental disability services come from someone outside your family unit who works in Human Services. This support is referred to as “services” and comes from medical, educational, and federal and state government programs. Barriers to Services Running into barriers while attempting to locate and navigate services for developmental disabilities are not because you don't want to help your child, or don't care - chances are, you are facing a wide rage of emotions. Some barriers that take an emotiona... ... middle of paper ... ....gov/opwdd_about/home) You can find programs like this in all major cities and county offices. Empowering Families The conclusion should be at least 100 words. References AHRC of New York City ARISE, Inc. De Boer, A., Pijl, S.J. Minnaert, A. (2010). Attitudes of parents towards inclusive education: A review of the literature. European Journal of Special Needs Education, Vol. 25, No. 2, 165-181. The ARC of the United States - The NYS Office for People With Developmental Disabilities (OPWDD) Watson, S.L. (2008). Something you have to do – Why do parents of children with developmental disabilities seek a differential diagnosis? Developmental Disabilities Bulletin, Vol. 36, No. 1, 168-198. Ziolko, M. (1991). Counseling parents of children with disabilities: A review of the literature and implications for practice. The Journal of Rehabilitation, Vol. 57.
Unfortunately, a lot of parents may have a difficult time accepting their child, and coping with their needs and the responsibilities. From the book “The Elephant in the Playroom,” some families dealt with depression and physical and mental deterioration of their health. These struggles were shown in the story by Laura Cichoracki. Laura’s son’s name was Patrick. Patrick was a 6-years-old boy with autism. “I wasn’t eating right, I wasn’t showering regularly, I wasn’t sleeping well” (Brodey, p. 64). I also read the story told by Susan Marrash-Minnerly, which highlighted emotions that parents face. Susan also shed light on how wonderful children with special needs can be to a family, such as her ten-year-old third grader who had autism. Susan talked about how it was normal to feel angry at times, especially with the ups and downs a child’s disability may come with. “When I look back, I want to tell other parents that a child’s future is worth grieving over – but it’s not the end of the world” (Brodey, p. 75). After reading these stories, it became apparent to me that families who are raising kids with special needs, need support, kindness, and available resources. “I was fortunate to be surrounded by other moms who understood my pain…who could be supportive and emphatic.” (Brodey, p. 67). Overall, educators can use this kind of information that was shared in “The Elephant in the Playroom” about family systems and risk/resiliency by creating lines of open communication between families. This is to connect parents together that share similar struggles. By creating open communication is can allows for the teacher and parents to be on the same page when it comes to the issues affecting special needs students and
Chapter thirteen has two subject matter that it discusses in some detail, mental illness and developmental disabilities. This review will be exploring the history, philosophy and theories of developmental disabilities. Social workers come in contact with many clients that have developmental disabilities, and the chapter gives a glimpse the history, problems, and theories related to developmental problems. Chapter thirteen explores the issues of dealing with developmental disabilities in the past and what is being done today to help social workers face the issues.
Radley, M. (2009). Understanding the social exclusion and stalled welfare of citizens with learning disabilities. Disability and Society, 23(4): 489-501.
Some people become handicapped as a result of an accident. Others are born with their disabilities.
Some characteristics of DS are: deep folds at the corners of the eyes, hypotonia, short stature, flexible joints, small oral cavity and heart defects (Taylor, Richards, & Brady, 2005). Most individuals with DS have a moderate intellectual disability, although there is a range of disability, from severe to high functioning (IQ above 70). Since DS is a birth defect and not a disease, there are no treatment options. Improvement can be made through physicians, special education, physical therapy, speech therapy, occupational therapy, and psychol...
The information given me by various professionals who have repeatedly evaluated my daughter is the biggest issue that I face in my life. In order for me to resolve my issue I need to explore whether my issue lies with the professionals and the process of evaluation, or with me not wanting to accept that my child is disabled.My six and a half year old daughter, Malia, began to show signs of delayed development at age eighteen months. Her speech started to regress and there were also behavioral signs that were significant enough for me to ask our doctor for advice. When was not concerned to the point that I was I contacted Multnomah County Developmental Disability department and requested that they evaluate Malia. They agreed that that were delays, and made a referral to Portland Public Schools Early Intervention Program for special services suchas speech therapy, occupational therapy, and other early learning resources for children with disabilities. I also switched Malia to a pediatrician who immediately referred her for a full-scale evaluation at Oregon Health Sciences University (OHSU) where they have an evaluation clinic for children with disabilities.
Ability and disability entails the ability to do things others can do or the inability to do something due to physical challenges, mental or emotional challenges that one possesses within their immediate surroundings. Basing on positionality, ability and disability is a key attribute that can make a person to be viewed different within their immediate societies. These attributes can make one to be embraced or sideline within their immediate surroundings.
In addition to this the local governments work on service provision for individuals with learning disabilities, they also work with a person centred approach ensuring that each individual's needs are met. Furthermore, charities and organisations provide information to family and services regarding learning disabilities and gives support on how to support these individuals. By offering this type of information it can promote changes in the attitudes towards learning disabilities. Professionals also provide the support needed to these individuals and their families. They also challenge discriminatory attitudes and practice.
Every Disabled Person Does Not Qualify For Benefits: An applicant must have an impairment that meets Social Security Administration standards. Impairment means a psychological or mental disorder, or a physical disorder that affects a system in the body. The SSA uses a listing of impairments to decide whether an applicant is disabled.
Raising a child with a disability may have some difficulties and challenges but it will have a lot of rewards; just as having a normal child. A parent want their child to live a normal fulfilling life as any other normal child. This life style will take extra patience, time and adaptive equipment and a special person to do it. When accepting that your child has a disability it is good to get all the literature on that type of disability. This will help you understand your child’s disability. A parent involvement is needed to find support groups, so they can get some insight on things someone from the support group has done to get certain things accomplished.
The Portage Project was created 32 years ago in Portage, Wisconsin, in response to the need to provide services in rural communities to young children with disabilities. It was first funded by the Bureau of Education for the Handicapped (B.E.H). Portage is known for early intervention and development of intervention systems in the community. Its success relies heavily on parental involvement. This requires the enhancement of the development of young children with disabilities. All parents need to first understand that development of the child occurs sequentially in nature. Secondly, they must believe that the child's development can be influenced and impacted by their efforts. A final assumption that needs to be met if family involvement is to be implemented is p...
According to the World Health Organisation (2011), there are more than 1 billion people with disabilities in the world, with this number rising. Many of these people will be excluded from the regular situations we, ‘the ordinary’, experience in everyday life. One of these experiences is our right to education. Article 42 of the Irish Constitution states that the state shall provide for free primary education until the age of 18, but is this the right to the right education? Why should being born with a disability, something which is completely out of your control, automatically limit your chances of success and cut you off from the rest of society due to being deemed ‘weaker’ by people who have probably never met you? With approximately 15% of the world’s population having disabilities, how come society is unable to fully accept people with disabilities? In order to break this notion, we must begin with inclusion.
The problem not only affects the family’s life but it also affects the child’s ability to learn and be productive at school. Children requires a lot of attention and love on a daily basis, however, having a child that has a disability requires extra attention and love because they are trying to understand the world through a different set of lens. This could become a problem especially if there are multiple children in the household. In often cases, the amount of attention that the parents give to the child in need obstruct the family dynamic because of the pa...
Disability: Any person who has a mental or physical deterioration that initially limits one or more major everyday life activities. Millions of people all over the world, are faced with discrimination, the con of being unprotected by the law, and are not able to participate in the human rights everyone is meant to have. For hundreds of years, humans with disabilities are constantly referred to as different, retarded, or weird. They have been stripped of their basic human rights; born free and are equal in dignity and rights, have the right to life, shall not be a victim of torture or cruelty, right to own property, free in opinion and expression, freedom of taking part in government, right in general education, and right of employment opportunities. Once the 20th century
A child with a mental or physical disability may not be able to think, work, play, and function like other children of the same age. Someone working in the special needs career will be able to assist these children to function in their everyday lives and to meet goals to encourage them to thrive. In order for someone to work with special needs children, they need to understand the factors involved in a child’s improvement, have a heart for helping others, and be properly educated and trained.