Lupus and Chronic Pain Syndrome are two things many people don't understand
and two things I have. They are both autoimmune diseases, and they both cause
pain. If you look up the definition of lupus it says an inflammatory disease
caused when the immune system attacks its own healthy tissue, so basically I'm
having an internal fight within myself. If you were to look up the definition
of chronic pain syndrome, it's just like it sounds, persistent pain that last
weeks to years. Dealing with the two has been a real challenge for me and the
people around me. The pain caused from these diseases would be bearable if I
felt it every now and then, but to constantly feel a burning achy sensation in
all your joints and lose sleep because of it is very tough to deal with.
One of
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the hardest things to deal with is when someone says, "You don't look sick." It takes every part of me not to scream at them, but in the end I understand what they mean.
I look happy, I look healthy. That does not mean I
am not in pain. Having chronic pain and lupus keeps me from doing many things
that others may be able to do but I have to limit myself. I need all the energy
I can get on a daily basis. Many people, including me, find it helpful to use
the spoon theory. The spoon theory is an analogy used by people with a chronic
illness to describe their everyday living experience when their illness results
in a reduced amount of energy available for productive tasks. What it means to
me is at the beginning of the day I have a certain of amount of spoons and with
every tasks I take a certain amount away. It's a very helpful tool to use when
dealing with the struggle of pain. It helps you limit yourself so that you have
a better day and a better tomorrow.
When I found out in June that I had chronic pain syndrome and spondylitis,
an inflammatory arthritis affecting the spine. I didn't know how to feel. At
the moment, all I was concerned about was not passing out from the amount of
blood they took. My family took it harder than me, I looked at my mom and
dad with confusion. Why were they sad? I had always had this; it just had a name. On the way home from dinner, I chose to drive alone to have time to think. After a while, I realized that this wouldn't go away. I will always have chronic pain. I had to pull over from the amount of tears I had. Why me? Did I do something wrong? What I know now is that nothing I could've done in my life could've prevented this.The days following were spent much like the car ride. Two weeks after my doctors appointment, I had come to terms with having chronic pain when my world was again shaken. I was told I have lupus, like my mom except mine is worse. When my parents told me, all I could do was smile. Lupus can take away many things from me, but it will never take away my ability to always look on the bright side and always smile at a friendly face. In a way, getting lupus and chronic pain syndrome changed me for the better because it gave me a new perspective on how I look at my life. I appreciate the little things people do. I've had to change the way I eat and I've had to start exercising more so in the end I've become a healthier person. Even though I'm in pain, I can manage it with the help of my family and friends.
It was very painful, but the pain got worse when he had to find the bullet. When he finally found it and tried to pull it out it hurt twice as much. The pain just wouldn’t stop. The pain was unbearable. It was the worst pain that i have ever felt.
Phantom pain refers to the phenomenal experience of pain in a body part that has been amputated or deafferented (Flor, Nikolajsen & Jensen, 2006). The characteristics of phantom pain have been described to occur in quick and sudden attacks of pain shooting up and down the amputated limb as well as cases of constant, excruciating pain whilst intensely perceiving the amputated limb to be cramped or postured abnormally (Katz, 1992). Approximately eighty percent of amputees report suffering from or at least experiencing some level of phantom pain post amputation; therefore it is a prominent issue (Flor, Nikolajsen & Jensen, 2006). Phantom pain is neuropathic pain that has no individual trigger but instead a plethora of psychobiological aspects of neuroplasticity that contribute to the cause of phantom pain (Grusser, Diers & Flor, 2003). The following will: outline the role of the peripheral and central factors associated with phantom pain and discuss the cortical reorganisation of the somatosensory cortex in relation to phantom pain.
difficulty. It is the strength of mind that makes one able to meet danger and difficulties
hurt or not having enough to eat. Afraid that like the big bad wolf, the wind might blow
In the United States 54 million people have a disability and only 15 percent were born with a disability (Jaeger & Bowman, 2005). If a person lives long enough, it is statistically likely that they will develop some kind of disability in their advancing years (Jaeger & Bowman, 2005). At some point in your life you could have experience a fractured bone, a minor cut, or had some type of surgery. Imagine after some minor injury that you may not even remember and then experiencing a constant pain so agonizing that no amount of pain medication can make you comfortable (Lang & Moskovitz, 2003). Some additional symptoms that you may also experience are severe burning pain, changes in bone and skin, excessive sweating, tissue swelling and extreme sensitivity to touch (Juris, 2005). These symptoms are associated with a disease that is called Reflex Sympathetic Dystrophy (RSD) but more recently termed as complex regional pain syndrome, type 1 (CRPS 1) (Juris, 2005). For simplification purposes this disease will be referred to as RSD throughout this paper.
There are few methods listed in the module that helps me to manage my time effectively.
The most common and well described pain transmission is “gate control theory of pain”. This theory was first proposed by Melzack and Wall in 1965 whereby they used the analogy of gate to explain the inhibition of pain which exists within the dorsal horn of the spinal cord. For instance, when tissue damage occurs, substances such as prostaglandin, serotonin, histamine and bradykinin are released from the injured cell. Individual usually consume or apply pain medications such as NSAIDs whereby these medications will cause electrical nerve impulse at the end of the sensory nerve fiber via nociceptor. Nociceptor is a pain receptor that is commonly found in the skin, cornea of eye and organ of motion such as muscles and ligaments. These nerve impulses
ability but has also improved my stress. To relieve my stress I can go run and listen to music and
Hasenbring, M.I., Rusu, A.C., & Turk, D.C. (2012). From Acute to Chronic Back Pain: risk factors, mechanisms, and clinical implications: Oxford: OUP Oxford.
middle of paper ... ... Being free of pain is something that we feel within us to be intrinsically joyful, and no reason can be used to explain further why we wish to be joyful, or in good health. These things we just sense, and even a murderer, who rejects morality on the social level, will do whatever he can to avoid the displeasures of his inner being. His sentiments, if only for himself, remain within him. “One thing can always be a reason, why another is desired.
my life besides just my outer appearance. To me, exercising is sometimes a way of escaping.
inhale, bringing me back to the present moment. This has been one of the best lifestyle changes I
Significant pain, with no physical cause, that disrupts the client’s life leaving them depressed and anxious which contributes to a cycle worsening the pain.
and have to do during the day, it has a big impact on my life at home