The Walker Family: Living with Cerebral Palsy

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Before meeting Eric Walker, and his family, I didn’t really have very much experience or knowledge of what it meant to have a child or sibling with Cerebral Palsy. Meeting with Eric, and his family, along with his speech therapist not only gave me an insight into what it really means to live with a disability and to care for a child with a physical disability, but also the opportunity for me to apply what I have learned in this class and other classes to a real life situation. Upon getting the assignment and the information I was really apprehensive and actually nervous about the guidelines for the assignment. At the same time I was very excited to do hands on work, this is a great way to learn and I do love working with families. I was very concerned with the group and time elements of the assignment. I knew that this would be challenging for anyone but knew that it would be especially challenging for me and my situation. I found that it was easiest for me to let my group know up front, as well as Eric’s mom Melanie, the time constraints we had and also to ask Melanie first what was most convenient for her. Within the profession of working with young children and their families, the first rule is to consider what times and places are the most convenient for them. Turnbull list this as one of the principles when creating partnerships with families, to be available and accessible, and sometimes this means rearranging other commitments, in order to show the family that you really are not only committed to them but respect their time as well(Turnbull, 2011, p.147). After talking with mom and getting the times that worked best for her, the group then came up with times that would work for all. All of us had many other commitments,... ... middle of paper ... ...so learned that sometimes just living life was more important. She now feels it is very important that not only is Eric held back by his disability but the Cole is not held back or made to feel like he is held back, because of his brother’s disability. After talking to mom about daily routines and general information about the family, we asked more specifically about Eric’s diagnosis, disability and prognosis. She shared with us the story of her pregnancy, and finding out that Eric has Cerebral Palsy. Honestly, this part of the interview was the hardest and mom was a bit emotional, she did warn us that she would probably cry or at least get teary eyed, but was more than happy to talk to us about it. Works Cited Turnbull, A. P. (2011). Families, professionals, and exceptionality: Positive outcomes through partnerships and trust. Upper Saddle River, NJ: Pearson.

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