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Importance of patients rights and responsibilities
Patient rights ethics and laws chapter 6
Informed consent in healthcare
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I think patients should be given legal ownership over their tissues because it is their body and if they don’t want to share their tissues they shouldn’t have to. It is their choice nobody else’s. The story “Immortal Life of Henrietta Lacks” it’s about the ethical conduct of research, specifically informed consent. The origins of the informed consent date back to the early twentieth century, even though many situations arose prior to the twentieth century indicating the need for informed consent. Before legislation was put into place requiring informed consent for medical procedures and research on human subjects, courts heard a plethora of battery cases involving doctors. “Even when there are no other accepted medical treatment options, it’s still your right as a competent adult to refuse a treatment that you don’t want or refuse to be in a …show more content…
study that you didn’t choose. But once you sign the consent form, it’s taken to be a formal, legal agreement that you are okay with the plan or procedure that’s listed on the form unless you revoke your consent before treatment is given. The doctor or facility will usually give you a copy of the consent form, but they keep the original as a legal record that you agreed to the treatment” (The American Cancer Society medical and editorial content team). The use of tissue throughout the medical world plays an enormous and crucial role for scientists across the world.
Individuals think that when "you go to the doctor to have an appendectomy, tonsillectomy, or any other kind of ectomy" (Skloot 315) then that information that was removed or used is later on just trashed, but in reality that information that belongs to you is kept and later on is used in hospitals, laboratories, and used by scientists. The patients do have a right to know what the doctors are doing with their bodies, but patients do not have to know exactly what kind of experiments they are doing with them because, in reality, they just would not understand what exactly the scientists are doing. The patients not knowing what the tissue is used for will cause them to say nothing since they do not know how important tissue research is. By donating tissue to scientists across the country will help them treat and prevent new diseases that can be harmful to humans. If the patient agrees to donate their tissues they will save many lives and will be more useful than making the doctors return the tissue to the
patient. The evolution of laws concerning tissue research has changed dramatically over the years, but still do they give the right of the people, the patients, to decide whether or not they will give consent for the doctors to perform different types of experiments and do further research in return for the findings of diseases in order to prevent them? Before in the 1950's, the informed consent paper that the patient would sign has changed tremendously over the years. Now, doctors have more information on what they are to perform on the patient, on the consent. The law that they, the doctors, have the right to perform different experiments has been explained thoroughly now than before. The patient now sees what exactly they are going to do with their tissue. The Protection of Human Rights Act of 1978 calls for researchers to respect the rights of individuals to determine what is done to their bodies. Then, in Moore’s appeal in 1988, the judges ruled “a patient must have the ultimate power to control what becomes of his or her tissues” (Skloot 208). I think patients should be given legal ownership over their tissues because it is their body and if they don’t want to share their tissues they shouldn’t have to. It is their choice nobody else’s.
In February 2010, author and journalist Rebecca Skloot published a book, "The Immortal Life of Henrietta Lacks," which included the stories surrounding the HeLa cell line as well as research into Henrietta Lacks' life. In 1951 a poor young black women, Henrietta Lacks was diagnosed with cervical cancer and at the time was treated in the “colored ward” or segregated division of Johns Hopkins Hospital. The procedure required samples of her cervix to be removed. Henrietta Lacks, the person who was the source of these cells was unaware of their removal. Her family was never informed about what had been accomplished with the use of her cells. The Lacks family has not received anything from the cell line to this day, although their mother’s cells have been bought and sold by many. This bestseller tells the stories of HeLa and traces the history of the cell while highlighting the ethical and legal issues of the research.
An abstraction can be defined as something that only exists as an idea. People are considered abstractions when they are dehumanized, forgotten about, or segregated and discriminated against. The scientific community and the media treated Henrietta Lacks and her family as abstractions in several ways including; forgetting the person behind HeLa cells, giving sub-par health care compared to Caucasians, and not giving reparations to the Lacks family. On the other hand, Rebecca Skloot offers a different perspective that is shown throughout the book. Rebecca Skloot’s book The Immortal Life of Henrietta Lacks describes the trials and tribulations the Lacks family has gone through because of HeLa cells and shows how seeing a person as an abstraction is a dangerous thing.
In the novel, The Immortal Life of Henrietta Lacks, the author, Rebecca Skloot, tries to convince the audience that her argument regarding, Henrietta and her cells is worth thinking about. Skloot argues that the woman whose body contained these life-changing cells deserved to be recognized. While trying to prove her side of the argument, Skloot uses logos within the novel to emphasize to the audience just how important her cells are, by providing the science behind the cells and their accomplishments.
The Immortal Life of Henrietta Lacks by: Rebecca Skloot has a lot of themes, but one that is most relevant in my opinion is the racial politics of medicine. Throughout the chapters, there were examples of how Henrietta, being African American, prevented her from receiving the same treatment as the white woman sitting right next to her in the waiting room. The story begins with Henrietta going to Johns Hopkins Hospital and asking a physician to check a “knot on her womb.” Skloot describes that Henrietta had been having pain around that area for about a year, and talked about it with her family, but did not do anything until the pains got intolerable. The doctor near her house had checked if she had syphilis, but it came back negative, and he recommended her to go to John Hopkins, a known university hospital that was the only hospital in the area that would treat African American patients during the era of Jim Crow. It was a long commute, but they had no choice. Patient records detail some of her prior history and provide readers with background knowledge: Henrietta was one of ten siblings, having six or seven years of schooling, five children of her own, and a past of declining medical treatments. The odd thing was that she did not follow up on upcoming clinic visits. The tests discovered a purple lump on the cervix about the size of a nickel. Dr. Howard Jones took a sample around the tissue and sent it to the laboratory.
The Immortal Life of Henrietta Lacks tells the story of Henrietta Lacks. In the early 1951 Henrietta discovered a hard lump on the left of the entrance of her cervix, after having unexpected vaginal bleeding. She visited the Johns Hopkins hospital in East Baltimore, which was the only hospital in their area where black patients were treated. The gynecologist, Howard Jones, indeed discovers a tumor on her cervix, which he takes a biopsy off to sent it to the lab for diagnosis. In February 1951 Henrietta was called by Dr. Jones to tell about the biopsy results: “Epidermoid carcinoma of the cervix, Stage I”, in other words, she was diagnosed with cervical cancer. Before her first radium treatment, surgeon dr. Wharton removed a sample of her cervix tumor and a sample of her healthy cervix tissue and gave this tissue to dr. George Gey, who had been trying to grow cells in his lab for years. In the meantime that Henrietta was recovering from her first treatment with radium, her cells were growing in George Gey’s lab. This all happened without the permission and the informing of Henrietta Lacks. The cells started growing in a unbelievable fast way, they doubled every 24 hours, Henrietta’s cells didn’t seem to stop growing. Henrietta’s cancer cell grew twenty times as fast as her normal healthy cells, which eventually also died a couple of days after they started growing. The first immortal human cells were grown, which was a big breakthrough in science. The HeLa cells were spread throughout the scientific world. They were used for major breakthroughs in science, for example the developing of the polio vaccine. The HeLa-cells caused a revolution in the scientific world, while Henrietta Lacks, who died Octob...
Henrietta Lacks is not a common household name, yet in the scientific and medical world it has become one of the most important and talked names of the century. Up until the time that this book was written, very few people knew of Henrietta Lacks and how her cells contributed to modern science, but Rebecca Skloot aimed to change this. Eventually Skloot was able to reach Henrietta’s remaining family and through them she was able to tell the story of not only the importance of the HeLa cells but also Henrietta’s life.
Rebecca Skloot’s novel, The Immortal Life of Henrietta Lacks, depicts the violation of medical ethics from the patient and researcher perspectives specifically when race, poverty, and lack of medical education are factors. The novel takes place in the southern United States in 1951. Henrietta Lacks is born in a poor rural town, Clover, but eventually moves to urban Turner Station. She was diagnosed and treated for cervical cancer at Johns Hopkins hospital where cells was unknowingly taken from her and used for scientific research. Rebecca Skloot describes this when she writes, “But first—though no one had told Henrietta that TeLinde was collecting sample or asked she wanted to be a donor—Wharton picked up a sharp knife and shaved two dime-sized pieces of tissue from Henrietta's cervix: one from her tumor, and one from the healthy cervical tissue nearby. Then he placed the samples in a glass dish” (33). The simple act of taking cells, which the physicians did not even think twice about, caused decades
The Immortal Life of Henrietta Lacks: A Doctoring Lens Rebecca Skloot begins The Immortal Life of Henrietta Lacks with a quote from Elie Wiesel: Instead, we must see in every person a universe with its own secrets, With its own treasures, with its own sources of anguish, And with some measure of triumph. This quote centers Henrietta Lacks’ story around the same questions that have driven the Doctoring course: What does it mean to care for others? And how do we ensure that we care for our patients first as people, rather than as a disease? In many ways, Henrietta Lacks’ story is a textbook case in how not to be a good physician.
The book The Immortal Life of Henrietta Lacks by Rebecca Skloot, was a nonfiction story about the life of Henrietta Lacks, who died of cervical cancer in 1951. Henrietta did not know that her doctor took a sample of her cancer cells a few months before she died. “Henrietta cells that called HeLa were the first immortal human cells ever grown in a laboratory” (Skloot 22). In fact, the cells from her cervix are the most important advances in medical research. Rebecca was interested to write this story because she was anxious with the story of HeLa cells. When she was in biology class, her professor named Donald Defler gave a lecture about cells. Defler tells the story about Henrietta Lacks and HeLa cells. However, the professor ended his lecture when he said that Henrietta Lacks was a black woman. In this book, Rebecca wants to tell the truth about the story of Henrietta Lacks during her medical process and the rights for Henrietta’s family after she died.
Imagine having a part of your body taken from you without your permission, and then having those cells that are a part of your body grow and are being processed in labs around the world and then ultimately being used for the highest of research. That is what happens to Henrietta Lacks. In the book, The Immoral Life of Henrietta Lacks, we see Henrietta Lacks and her families story unravel, the numerous hardships that they faced, and the shocking revelation that their relative cells were being used for research without her consent and theirs.
Words are powerful. As a result, changing one word in a sentence can make the biggest of differences. The quote above is part of a statement by Honorable Robert L. Ehrlich, Jr. of the house of representatives commemorating Henrietta Lacks. Ms. Lacks was whom the HeLa cells that have been used since their discovery came from. The use of the word “provided” in Ehrlich’s statement is controversial, as Henrietta Lacks’ cells were taken from her and used regardless of her opinion. Her privacy was taken from her and used by the public without her consent. This turns attention to other women have had their privacy brushed aside, such as Frieda Kahlo. Lacks’ cells were made public, much like Kahlo’s diary was made public. The manner in which authors
The credibility and trustworthiness of a person can be achieved through their achievements and titles. Writers have the ability of achieving this by appealing to the rhetorical strategy ethos. Rebecca Skloot’s inclusion of her knowledge in science to provide her credibility and numerous information of all her characters in the novel helps develop the rhetorical strategy of ethos. Skoot’s implementation of appealing to ethos aids in emphasizing on the credibility of both herself and all the other characters in the novel. She demonstrates this rhetorical strategy by indicating titles and achievements her characters in the novel. In The Immortal Life of Henrietta Lacks, Rebecca Skloot develops the rhetorical strategy of ethos through the use of her characters in the novel consisting of Skloot herself, George Gey, and the virologist Chester Southam.
What many do not realize is the truth about organ donation. The body of the donor after the surgery is not mangled up and is presentable for the funeral. Organ donation is ethical and should not be looked down upon. Organ donating is there to save lives, not to hurt anyone. Many people think that they should be paid or given something in return for donating their organs, which is... ...
In the stories, Susan B Anthony Dares to Vote, and The Watsons Go to Birmingham the similar theme which is overcoming obstacles. They both find out how cruel the world can be and find the courage to try and protest unfair treatment. But they both push for equal rights, and eventually, it ends up working. While there are many similarities in the story there are differences too. There are different attitudes at the beginning of the story Susan B Anthony knows how cruel things can be, but in The Watsons go to Birmingham the kids don’t know how bad things can be until they visit their grandmother, they sit up front in a restaurant and someone tells them to go to the back.
The growth and development of a relationship between the two primary characters is the premise of the motion picture, “Harold and Maude.” Harold is a young man with an unusual psychological interest with death, and Maude is an old lady who is additionally intrigued by death however revels in living and has carried on with her life without bounds. They are united through a typical movement: going to funerals basically on the grounds that they revel in them. Their assorted characters get to be coincided as Maude starts to impact and change Harold's discernments and demeanor about life (Patil, 2014).