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Ethical dilemma in genetic testing
Ethical dilemma in genetic testing
Ethical dilemma in genetic testing
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In the article “Critical social theory approach to disclosure of genomic incidental finding” published in Nursing Ethics described nurse researcher role in disclosure of incidental findings in genomic researches. This situation created ethical dilemma. Technology in medical fields has developed to extents of genetics researches which also created complication of extracted gene-related information. This relatively new field in medicine has an opportunity to improving health, prevent disease and just as screening of population. However, with this advantage comes disadvantage as well. Many genetic testing revealed not only desire information about health but also some incidental findings which created dilemma in nursing practice regarding ethical
application of disclosure to participants. The authors of this article used critical social theory, that is a theoretical outline which can be used for disclosure of incidental findings, as a guide together with core ethical principles of autonomy and ratio of benefit to harm to evaluate ethical principles associated with revealing incidental finding and determine what implication it had for nursing practice. The ethical principles of autonomy, beneficence and maleficence must be considering when disclosing incidental finding in genetics researches. This issue should be a part of nursing discussion. As nurse who was involved in genetic research had a duty to be patient advocates in order to provide the best care. The advance in development technology in genomic testing keep progressing, bringing new cases of incidental findings. Ethical dilemma of releasing this information growing as well. In this case, the responsibility of researcher is to protect the rights of participants, but also work in a way to benefit society as well. As a result, it also increasing researcher nurses’ responsibility in disclosure of information to the family.
Nursing is definitely a great discourse community. But you’re probably wondering, what is a discourse community? Well John Swales, who is a professor of linguistics and co-director of the Michigan corpus of Academic Spoken English at the University of Michigan, wrote a book called “Genre Analysis” that explained what discourse community is and the characteristics for identifying what takes part as a discourse community. Swales defines discourse community as centrifugal; In other words, it tends to separate people into occupational or specialty-interest groups (Swales, John. “Genre Analysis” Writing about Writing. Wardle, et al. 220). So basically he’s saying that it is a group of people who communicate about similar interests that they have in common with each other. With that said, Nursing does count as a discourse community because it’s a field of people who share similar interests, value, and goals in their lives. Discourse communities takes place all around the world and plays an important role in communication. There is no way others can understand others without the use
The public should be aware of what could happen if this kind of information became public knowledge, and of the opportunities that the knowledge brings. There is no doubt that the information from genetic analysis is going to help a lot of people with all sorts of problems live longer and healthier lives. The only problem is that we have to keep the information in the hands of those who need it, and out of the hands of those who would use the information to profit or discriminate.
In conclusion, it is important for nurses to have proper training and information in the area of genetics and genomics so that it can be used in daily clinical practice (Thompson & Brooks, 2011). Using this information with clients and conducting a detailed genetic nursing assessment is a valuable component of being an effective health care provider and can help clients recognize, prevent, and/or treat diseases that are unique to their particular
This type of social decision making is governed by a rich complexity of factors, which makes it more dynamic in many ways (Juslin & Montgomery 2014, p. 247). A social decision typically involves a situation in which the decision outcome of an individual not only affects the individual, but also others like another person, a group of others, or society. Hence this form of decision requires considering also the objectives of others in addition to your own. Normally, in a social dilemma, the individual outcomes are not only affected by the person’s own choice but also how other members of the group or the society choose. Interdependence constitutes the social part. One factor that can
Culture care is grounded within one’s worldview, which is shape by social structure factors such as religion, economics, cultural values, environmental context, ethnohistory, and language (Alligood, 2014; Sitzman & Eichelberger, 2015). Moreover, culture care share similarities and differences related to health and well-being, how individual deal with disability and death, as well as, when to seek relief from illnesses or distress. As culture plays a vital role in health care seeking habits and decision making, it is imperative for nurses to fully understand cultural knowledge. With increase cultural knowledge, nurses are better able to implement care plans that are beneficial to the patient with respect to their beliefs, values, and cultural
Jean Watson is a well-respected American nursing theorist who created the Theory on Human Caring. Watson’s concept on caring for a human being is simple, yet has much depth and meaning, and holds strong for nurses to work with compassion, wisdom, love, and caring. The Theory on Human Caring is necessary for every nurse, as it is our job to care for others in a genuine and sensitive way. The theory is extensive; its core foundation is based on nine concepts all interrelated and primarily focused on a nurse giving a patient care with compassion, wisdom, love, and caring (Watson, J., 1999). The nine essential aspects consist of: values, faith-hope, sensitivity, trust, feelings, decision-making, teaching-learning, environment, and human needs. Watson also created the Caritas Process consists of ten different ways of giving care:
In the history of nursing we have come a long way and this is because of the nurses before us. They wanted to learn, lead, teach and make a difference in the care of patients. There are 4 main nurse theorists in the second part of our text book. I am going show how they are alike and different from one another. What makes each one of them unique and the differences they played in the development of each nursing philosophy.
In 2005 Fawcett stated “the metaparadigm of professional nursing incorporates four concepts: human beings, environment, health, and nursing” (as sited in Kearney, 2012, p. 4). This paper discusses my philosophy of nursing by stating my own personal definitions, values, and assumptions regarding each of the above mentioned concepts. My paper concludes with an exemplar from my own nursing practice and how I integrated my nursing philosophy into that particular clinical situation.
As I have progressed through this semester learning about numerous nursing philosophers, I have poured over the readings trying to identify my place in the world of nursing theory. How am I supposed to create a theory with meaning and purpose? As I reflected on this question, an obvious and simple answer kept coming to mind. Why did I decide to become a nurse in the first place? What about nursing pulled me in to this profession? When I began to think of my nursing journey in this light, my personal nursing philosophy became obvious to me.
The Human Genome Project is the largest scientific endeavor undertaken since the Manhattan Project, and, as with the Manhattan Project, the completion of the Human Genome Project has brought to surface many moral and ethical issues concerning the use of the knowledge gained from the project. Although genetic tests for certain diseases have been available for 15 years (Ridley, 1999), the completion of the Human Genome Project will certainly lead to an exponential increase in the number of genetic tests available. Therefore, before genetic testing becomes a routine part of a visit to a doctor's office, the two main questions at the heart of the controversy surrounding genetic testing must be addressed: When should genetic testing be used? And who should have access to the results of genetic tests? As I intend to show, genetic tests should only be used for treatable diseases, and individuals should have the freedom to decide who has access to their test results.
Applying theory into today’s nursing practice takes place when the nurse can understand and appreciate the theory's value (Health Compliance Passport, 2014). The nurse is educated and precise in their ability to apply the skills and knowledge into practice. The nurse’s ability to organize principles, evaluate the patient, develop a plan of care and implement the theory into the healing process (Health Compliance Passport, 2014). All theories are different, but very similar in their own way once broken down. The nurse must critically think and apply her knowledge base of nursing practice and nursing theory.
To make good nursing decisions, nurses require an internal roadmap with knowledge of nursing theories. Nursing theories, models, and frameworks play a significant role in nursing, and they are created to focus on meeting the client’s needs for nursing care. According to McEwen and Wills (2014), conceptual models and theories could create mechanisms, guide nurses to communicate better, and provide a “systematic means of collecting data to describe, explain, and predict” about nursing and its practice (p. 25). Most of the theories have some common concepts; others may differ from one theory to other. This paper will evaluate two nursing theorists’ main theories include Sister Callista Roy’s
In today’s world, people are learning a great deal in the rapidly growing and developing fields of science and technology. Almost each day, an individual can see or hear about new discoveries and advances in these fields of study. One science that is rapidly progressing is genetic testing; a valuable science that promotes prevention efforts for genetically susceptible people and provides new strategies for disease management. Unnaturally, and morally wrong, genetic testing is a controversial science that manipulates human ethics. Although genetic testing has enormous advantages, the uncertainties of genetic testing will depreciate our quality of life, and thereby result in psychological burden, discrimination, and abortion.
Nursing is considered one of the most trusted professions in the world. It is an essential part in the caregiving of sick, injured, and even healthy individuals. Developing a philosophy with any profession is the beginning basis of any practice. The nursing philosophy is usually incorporated from the science of nursing. That is because the field of health care is constantly changing, which causes the need of better competence in the health field of providing caring (Flagg, 2015). With nursing it starts by the science behind it. Then along with knowledge and experiences, that is when the nursing philosophy is developed. Researching differences between new ideas and cultural differences can then expand the viewpoint into a bigger picture.
Following these cases, the American Society of Human Genetics (ASHG) published a two-step policy of disclosure, with the patient informed of the genetic implications of the disease before and after testing, but also allowing the clinical to use discretion to notify