The racist, unethical treatment of Henrietta Lacks and the Tuskegee Syphilis Study patients emphasizes the importance of an individual’s ethical rights and the faults in human subject research. The Immortal Life of Henrietta Lacks by Rachel Skloot and “Racism in Research: The Case of the Tuskegee Syphilis Study” by Allan Brandt provide context and evidence for these arguments. The power dynamic between white doctors and black patients in the Jim Crow South gives insight into the unethical treatment of Henrietta Lacks and the Tuskegee Syphilis Study’s patients. According to Skloot, “Many scientists believed that since patients were treated for free in the public wards, it was fair to use them as research subjects as a form of payment”(30). As …show more content…
Henrietta Lacks never gave informed consent, “...no one had told Henrietta that TeLinde was collecting samples or asked if she wanted to be a donor”(33). Her cells were then taken, reproduced, and distributed without her knowledge. This chain of events led to the violation of Henrietta’s privacy and that of the rest of the Lacks family. Her family went without proper compensation for decades and have had their medical data released to the entire world, while others became rich off of HeLa cells. Similarly, in the Tuskegee Syphilis Study, researchers withheld crucial information and treatments from their patients. Brandt writes, “‘As I see it,’ responded Wenger, ‘we have no further interest in these patients until they die’”(24). Dr. O. C. Wegner was one of the researchers on the Tuskegee Syphilis Study. The study violates the beneficence pillar of bioethics, as researchers intended to view the progression of syphilis rather than treat it. Brandt also claims, “They had no intention of providing any treatment for the infected …show more content…
This begs the question if the same would have taken place in both cases if the patients were white. Skloot and Brandt’s writing suggests that it would be, as there is a very evident lack of respect and consideration for black patients at this time. The Tuskegee Syphilis Study lasted for decades, only ending in 1972 after receiving backlash from the press. This means that even after the passing of the Civil Rights Act, these researchers continued to study their patients. The poor treatment of black patients in research after the Civil Rights Act demonstrates a pattern in American medicine of taking advantage of black people in need. In this way, human subject research has failed to evolve in the right direction. Since the Tuskegee Syphilis Study was never finished, the researchers never came to the conclusions they were looking for, and the study did not contribute any substantial findings to the scientific community. They may not have come to any conclusions, but the study did have a detrimental impact on many of the participants and their
The book, Bad Blood: The Tuskegee Syphilis Experiment, by James H. Jones, was one of the most influential books in today’s society. The Tuskegee Syphilis Experiment study began in 1932 and was terminated in 1972. This book reflects the history of African Americans in the mistrust of the health care system. According to Colin A. Palmer, “James H. Jones disturbing, but enlightening Bad Blood details an appalling instance of scientific deception. This dispassionate book discusses the Tuskegee experiment, when a group of physicians used poor black men as the subjects in a study of the effects of untreated syphilis on the human body”(1982, p. 229). In addition, the author mentioned several indications of discrimination, prejudice,
The treatment of African Americans in The Immortal Life of Henrietta Lacks demonstrates the lack of ethics in the United States health care system during the 1950s and 1960s. Under the impression that medical doctors at Johns Hopkins Hospital were solely injecting radium treatment for cervical cancer, Henrietta Lacks laid on the surgical bed. During this procedure Dr. Lawrence Wharton Jr. shaved two pieces of tissue from her vagina, one from a healthy cervical tissue and one from the cancerous tumor, without Henrietta’s prior knowledge. After recovering from her surgery Henrietta exited the door marked, “Blacks Only,” the door that signified the separation between White and African-American patients. Had Henrietta been White, would the same outcomes have occurred? How badly did a country that proclaimed to be “One Nation under God” divide this very land into two separate nations? The Immortal Life of Henrietta Lacks truly exhibits the racial disparity in the health care system.
In 1951, the sickness of a poor African American woman named Henrietta Lacks -also know as HeLa- would go on to change the face of scientific research; without her consent. Henrietta Lacks went into John Hopkins Hospital in hopes of medical treatment, but instead her cells were unlawfully stolen from her and used for scientific advances in the world of medicine for the creations of the polio vaccine, cell cloning, vitro fertilization, and gene mapping. Long after Henrietta's death, Henrietta's family was forced to live a life of poverty without medical insurance simply because they could not afford it although their mothers cells had yielded billions of dollars due to its advances in the medical world. The scientific community and the media
The Belmont Report identifies three core principles that are to be respected when using human subjects for research. The three ethical principles are: respect for persons, beneficence and justice. In the case of Henrietta Lacks each of these fundamental components are violated. The consent that Henrietta provided was not sufficient for the procedures that were conducted.
Rebecca Skloot’s novel, The Immortal Life of Henrietta Lacks, depicts the violation of medical ethics from the patient and researcher perspectives specifically when race, poverty, and lack of medical education are factors. The novel takes place in the southern United States in 1951. Henrietta Lacks is born in a poor rural town, Clover, but eventually moves to urban Turner Station. She was diagnosed and treated for cervical cancer at Johns Hopkins hospital where cells was unknowingly taken from her and used for scientific research. Rebecca Skloot describes this when she writes, “But first—though no one had told Henrietta that TeLinde was collecting sample or asked she wanted to be a donor—Wharton picked up a sharp knife and shaved two dime-sized pieces of tissue from Henrietta's cervix: one from her tumor, and one from the healthy cervical tissue nearby. Then he placed the samples in a glass dish” (33). The simple act of taking cells, which the physicians did not even think twice about, caused decades
The Sleeping Sickness and Tuskegee Syphilis experiment are examples of the government targeting men who were socially disconnected with the majority of society. Whether it was the prisoners, who were separated to serve out their sentence, or the African-American males, who were separated economically and educationally, they were both targeted based on their social standings. Therefore, the conductors ideally would receive no criticism if harm were to happen to subjects because they did not contribute, monetarily or economically, to the modern
In 1932, in the area surrounding Tuskegee, Macon County, Alabama, the United States Public Health Service (PHS) and the Rosenwald Foundation began a survey and small treatment program for African-Americans with syphilis. Within a few months, the deepening depression, the lack of funds from the foundation, and the large number of untreated cases provided the government’s researchers with what seemed to be an unprecedented opportunity to study a seemingly almost “natural” experimentation of latent syphilis in African-American men. What had begun as a “treatment” program thus was converted by the PHS researchers, under the imprimatur of the Surgeon General and with knowledge and consent of the President of Tuskegee Institute, the medical director of the Institute’s John A. Andrew Hospital, and the Macon County public health officials, into a perspective study-The Tuskegee Study of Untreated Syphilis in the Negro Male (Jones1-15). Moreover, the Tuskegee Syphilis Study, which began in 1932 and was terminated in 1972 by the protest of an enraged public, constituted the longest nontherapeutic experiment on human beings in medical history. Since the premise on which the experiment was based did not involve finding a cure or providing treatment, the question then remains why did the study begin and why was it continued for four decades?
Ethical violations committed on underprivileged populations first surfaced close to 50 years ago with the discovery of the Tuskegee project. The location, a small rural town in Arkansas, and the population, consisting of black males with syphilis, would become a startling example of research gone wrong. The participants of the study were denied the available treatment in order further the goal of the research, a clear violation of the Belmont Report principle of beneficence. This same problem faces researchers today who looking for an intervention in the vertical transmission of HIV in Africa, as there is an effective protocol in industrialized nations, yet they chose to use a placebo-contro...
The Deadly Deception video scrutinizes the unjust practices of a syphilis study that began in the 1930’s on the campus of Tuskegee Institute by the U.S. Public Health Service. The experiment was conducted using hundreds of African American men that were mainly poor and illiterate. The study was called the Tuskegee Study of Untreated Syphilis in the Negro Male. Participates were deceived and lured in by promises of free medical care and survivors insurance.
Imagine having a part of your body taken from you without your permission, and then having those cells that are a part of your body grow and are being processed in labs around the world and then ultimately being used for the highest of research. That is what happens to Henrietta Lacks. In the book, The Immoral Life of Henrietta Lacks, we see Henrietta Lacks and her families story unravel, the numerous hardships that they faced, and the shocking revelation that their relative cells were being used for research without her consent and theirs.
Structural violence has been a major topic in this course “Cooperation and Conflict”, and it has also been one topic that I can relate to and speak on. In the Henrietta Lacks story, structural violence is a big theme. Doctors completely violated her human and civil rights as a patient by not informing her of certain procedures that were done on her body. They took small slices of a cell of hers to research and run tests on it. Though these cells aided in great developments in research and medicine, Henrietta at the very least should have been informed of what exactly they would do it. Also, by that I do not mean in medical terms that she would not understand, but the doctor taking the time to explain to her in a way that she would at least
Words are powerful. As a result, changing one word in a sentence can make the biggest of differences. The quote above is part of a statement by Honorable Robert L. Ehrlich, Jr. of the house of representatives commemorating Henrietta Lacks. Ms. Lacks was whom the HeLa cells that have been used since their discovery came from. The use of the word “provided” in Ehrlich’s statement is controversial, as Henrietta Lacks’ cells were taken from her and used regardless of her opinion. Her privacy was taken from her and used by the public without her consent. This turns attention to other women have had their privacy brushed aside, such as Frieda Kahlo. Lacks’ cells were made public, much like Kahlo’s diary was made public. The manner in which authors
What is privacy? Well, it’s the state or condition of being free from being observed or disturbed by other people. In terms of information, it is the right to have some control over how one’s own personal information is collected and used. This is a right that has been inherently protected by the U.S Constitution, agreed upon by the Supreme Court, and yet, issues around this very topic arise every day. In The Immortal Life of Henrietta Lacks, the author Rebecca Skloot, addresses this issue in her story of the women behind the infamous HeLa cells. Her story shows that although privacy is a right that is inherently protected by the law, situations of injustice can still occur. Examples of this in the book include when Henrietta’s cells were given to Dr. Gey without any consent from Day, the situation in which Mr. Golde’s spleen was sold without his permission, as well as when the Lacks family were recontacted and mislead about the reasons they were tested years after Henrietta’s death.
When penicillin was discovered in 1940 and was the only cure for syphilis at that time. The participants form Tuskegee Syphilis Experiment were excluded from many campaigns that were taking place in Macon County, Alabama to eliminate venereal diseases (Person Education, 2007). This experiment lasted forty years and by the end 28 of the men had died directly of syphilis, 100 were dead of related complications, 40 of their wives had been infected, and 19 of their children had been born with congenital syphilis (info please, 2007). The directors of this experiment used ethical, interpersona... ... middle of paper ... ...
The Tuskegee Study, as exampled in the film “Miss Evers’ Boys,” was a horrendous example of the result of racism, a vulnerable population, and the manipulation of people not given the proper dignity they deserved, to benefit the majority class (Woodard). According to the film, in this study a whole community of African Americans went decades with identified cases of syphilis, being given placebo interventions and unjustifiably told that a later recognized intervention of penicillin shots were too risky for their use. Why would they do this? To gain knowledge; and they viewed the study as a “pure” scientific experiment, a human trial that would likely never be acceptable to have been conducted on Whites of the time, and under the full knowledge and aid of the U.S. government (Woodard, “Miss Evers’ Boys”).