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How cancer affects family
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The implementation of the CRP at the WXXXX oncology clinic is an important step in addressing the unmet needs informal caregivers face. Based on data obtained from patient satisfaction surveys and input from clinical staff, the care of the caregiver is an important issue that needs to be addressed. The literature reviewed detailed various intervention recommendations and provided substantial evidence necessitating the importance of caring for the caregiver. The fact is that caregivers provide an amazing service to their loved ones as well as the healthcare organization when they are asked to fulfill the role of primary caregiver. Caregivers ought to be protected from physical and emotional distress through interventions offering support and education. Interventions aimed at supporting the caregiver as the direct recipient of care improve caregiver confidence and competence resulting in better patient care thereby reducing caregiver stress level and improving their sense of control (Given, Given, & Sherwood, 2012; Belgacem, et al., 2013; & Boele, et al., 2013). The literature reviewed in this paper highlighted the importance of caring for the caregiver. While the interventions and outcomes varied, multicomponent interventions such as the CRP program discussed have been shown to have the best outcomes (Ducharme, 2014). The implementation of psychoeducational interventions for caregivers of newly diagnosed cancer patients positively affected the caregivers’ quality of life (Chambers et al., 2014). The implementation of the CRP piloted in the oncology setting will allow for the program to be tested and modified as needed to provide the best care to patients and their caregivers while honoring the values and preferences they hol... ... middle of paper ... ...h the utilization of the American Red Cross volunteers and coordination of training of unit super-users in each area of the hospital that can be managed by the organization staff education and training department. The review of the literature detailed the importance and responsibilities the informal caregiver has in caring for the oncology patient. Given all the data, the competency and needs of the informal caregiver should be carefully assessed and further addressed. Often times the nursing and medical staff are unaware of the needs of the patient and caregivers, and patients are unfamiliar with what support services are available. The introduction of the CRP is a valuable step in recognizing these issues while offering a plan to help reduce the strain and burden caregivers face while at the same time focusing on providing the best available care for the patient.
Hodge, M. B., Romano, P. S., Harvey, D., Samuels, S. J., Olson, V. A., Sauve, M., & Kravitz, R. K. (2004). Licensed Caregiver Characteristics and Staffing in California Acute Care Hospital Units [Electronic version]. The Journal of Nursing Administration, 34(3), 125-133.
This entails that the professional nurse provide not only ordinary but extraordinary care and support to make it possible for these individuals to achieve their requirements for self-care. Furthermore, the professional nurse judiciously and collaboratively partakes in the individual’s health care provided by the medical doctor. Dorthea Orem understood that individuals possess the natural capability of self-care, and nurses have a duty to place emphasis on enhancing that capability. Nurses who deliver direct care can support these capabilities by offering learning opportunities and teaching methods that enhance self-care activities, therefore contributing a positive and encouraging influence on the individuals and caregivers quality of
You provided some great points within your answer to question #1. I agree that family centered care focuses on the adaptation of both physical and psychological needs of the patient and family members. I presently work in a Long term care facility where patient focused care is our primary goal. The patient centered care approach is essential to the care we provide as it allows us to create a holistic relationship between the patient, staff, and family members. It also fosters trust, enhances communication, and gives family members the opportunity to provide creative input into the care of their loved ones. The challenges presented within this approach allow health care providers to seek out alternative measures that will assist in facilitating
Two potential barriers to the Patient-Family Centered Care model are time and patient/family expectations. Nursing is a demanding job that is known for it's fast paced and often hectic environment. While caring for several patients at a time, it might be difficult to make time to discuss and involve patients and their family in all aspects of their care. This could lead to the patient/family feeling left out or even lead to fear about why information if being kept from them. To address this barrier I will set aside time to spend with each of my patients solely dedicated to discussion about the care they are receiving as well as provide an opportunity to voice questions and concerns.
...if the caregiver needs a break. Also, talking to the family about friends and family that they have reached out too, or organizations that they are currently using to make everyday tasks easier. In general, the evaluation is going to be based off observation, and the family and patients verbal report of their well being.
However, this type of care brings a lot of unconditioned difficulties due to the constant care they have to provide the elderly people with dementia. In a recent study it was discovered that caregivers experience stress differently given the circumstance this was shown by analysis of 234 people with dementia (Robertson, Zarit, Duncan, Rovine, & Femia, 2007). The findings were that caregivers in intense and distressed groups experienced higher behaviora...
I never stops to educate myself. I consider myself as a life-long learner. The profession of nursing offers an opportunity for me to learn daily because I always learn something every day. Once I learn something new, I like to apply it to my practice. Duffy’s quality of caring guides me to practice. I just had a 64-year-old patient who is going to have dialysis the first time. Understanding the anxiety that she had was more important than educating the process of dialysis. The patient stated that she wanted to live longer and finally decided to have the dialysis, but she was nervous about this. A care plan relate to coping mechanism was developed because showing a sense of sympathy and caring could help her to relieve the anxiety. When caring is evident, patients enhance self-esteem, quality of life, knowledge and coping mechanisms, as well as decreased lengths of stay and healthcare costs (Desmond, et al., 2014). On the other hand, in an uncaring situation, a patient feels humiliated, vulnerable, and
Primary caregivers are given an opportunity to take care of their loved ones; however, this job comes with a lot of stress and its consequences (Tsai, 2003). Primary caregivers take care of those with a chronic illness such as a family member or friend, are given a task that is so immense that it induces a lot of stress. In the previous decades, many research articles have developed studies which focused on stressors that were associated with the task of being the primary caregiver; yet, a theory surrounding this topic has not been developed until the early 2000s. Tsai (2003) developed the Theory of Caregiver Stress based on the Roy Adaptation Model to identify the caregiver’s response, perceptions, and adaptations to the stress and burden that primary caregiver’s experience.
The health care system of today will be invaluable without the help of well-trained registered professional nurses. According to Wilkinson, Treas, Barnett, Smith (2016) registered nurses in today’s health care have the training required to develop a care plan with other health care workers that is specific for each patient in their care, instead of the same general approach for every patient. This is known as patient centered care because each patient is different from the other and the registered nurse role includes developing a good plan for every patient they care for. In performing such duties, registered nurses tend to create a strong bond with their patients by caring for their patients by all means possible. By caring for their patients, they tend to gain their patients and their families trust. According to Wilkinson et al. (2016) There are many support systems for patients in our communities that have good intentions of assisting sick people and those in need. Most of them are not known by the patient or their families. The registered nurse is the one who is in the position to inform the patient or family about such resources that may be very helpful for them if they are interested. By doing so, the patient knows that the nurse really cares about him/her and that feels very comforting and may help the patient get well
Smith, R. W., Vibhuti, S., Goldman, R. D., & Taddio, A. (2007). Caregivers’ responses to pain in
Over the last several years since The Institute of Medicine (IOM) landmark report: Cancer Care for the Whole Patient: Meeting Psychosocial Health Needs there has been growing awareness of the value of psychosocial support. A number of other professional and standard setting organizations have recognized the importance of and mandated social and emotional care as a part of their quality recommendations and/or measures, including Patient-Center Outcomes Research Institute (PCORI): 2012 Rese...
-Sonnenberg, E. 2008.Caregiver Stress: The Impact of Chronic Disease on the Family. Available at: http://www.beliefnet.com/healthandhealing/getcontent.aspx?cid=74397.Access date 21 December 2013.
According to Haley and Daley (2013), cancer as the main cause of the terminal illness in the paediatric age. For the recent years, the survival rates of children with cancer have increased significantly with 7 out of 10 recovers (Selwood, Langford, & Wright, 2012). Haley & Daley (2013) also mentioned that parents act as the decision-makers and as the primary carer, moreover, physical and psychosocial developmental factors of the child affects the perception of death as temporary and the capability to communicate and make their own decisions. Moreover, parents make the decision for the child as for legal matters, but the child needs encouragement to actively participate and to develop the sense of authority. Children may have a different idea of pain and illness, for instance, they may think that they did something wrong that is why they are suffering. Children may refuse or not participate properly in any treatment without the supervision of the primary carer. Providing the child and family with health education during palliation as well as helping them to the transition to adulthood is an important task for the nurse. Derby, Tickoo, and Saldivar (2014) mentioned that the major difference of between old and younger adults is the need for extensive support of the family. Decision-making for older people might include the patient’s family, surrogates and Advanced Care Planning (ACP) at the time they are not able to make their own decision. Derby et al., (2014) stated that “ACP prepares for lack of capacity in decision-making and relieves the burden of decision-making on others” and surrogate decision-maker “is a person whom the patient designates to make decisions if/when he or she is unable to do so”. Older patients need a representative, mostly an elderly act as a primary carer to make the decision for them or someone who will make
Caregiving is an essential and very necessary aspect of the medical field. However, caregiving is also one of the most strenuous and stressful positions that exists. The patients require constant supervision, precise care and an extremely high level of patience, tolerance and skill. Eventually, this type of care begins to take a physical, emotional and financial toll on the caregiver. Because of the adverse effects of this profession, the Theory of Caregiver Stress was developed to aid those working in this difficult profession.
referred to as the recipient of care, this statement lacks true meaning; reducing person to a single machine-like object. They are first and foremost human beings whose care involves the whole individual. They exist within a matrix of family, caregivers, significant others, and communities. In my practice, human-centered care is central to the articulation of my personal nursing philosophy. It is one that treats the patient as an integrated individual of body, soul, and spirit, instead of simply treating their illness or health concerns in isolation. It requires me to stand in their shoes in order to convey an understanding of their situation. As such, they should not be reduced to simply generalizations, but should be cared for in their