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Impacts of the social model of disability on a family
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People don’t know what is like for a family to deal with a relative who has Spina Bifida. Sandler (1997) gave insight on how the family of the affectee should handle this condition and the mutual support that should be offered. The discovery through the years show that family is not only critical but also a key factor in the wellness of the child. In addition to the importance of incorporating the three R’s – Roles, Relationship, and Responsibility into the household system. Later sharing the struggles and stress of being a parent with a disabled child with Spina Bifida. Having to cope with other external resources to try and alleviate the heightened stress such as but not limited to community, family and spiritual sections. Showing how culture
In her article “Unspeakable Conversations” author Harriet McBryde Johnson took time to inform and familiarize her readers with the details and limitations placed upon her by her disability. In her article she walked her readers through her morning routine. She told them about the assistance she needs in the morning from transferring from bed to wheelchair, to morning stretches, to bathing, to dressing, to braiding her hair. She does this not to evoke pity but to give her readers a glimpse into her world. She wants her readers to know that the quality of a disabled person’s life relies solely on another’s willingness to assist. Because those with disabilities need assistance they are often viewed as burdens. Therefore, they see themselves as
What comes into one’s mind when they are asked to consider physical disabilities? Pity and embarrassment, or hope and encouragement? Perhaps a mix between the two contrasting emotions? The average, able-bodied person must have a different perspective than a handicapped person, on the quality of life of a physically disabled person. Nancy Mairs, Andre Dubus, and Harriet McBryde Johnson are three authors who shared their experiences as physically handicapped adults. Although the three authors wrote different pieces, all three essays demonstrate the frustrations, struggles, contemplations, and triumphs from a disabled person’s point of view and are aimed at a reader with no physical disability.
With Lisa I.Iezzoni’s reading, it showcases how disability is a without a doubt attached to discrimination of disability by separation of identity, people. It adheres to the moral reflection that people need to garner which emphasizes “cultural perspectives on health and illness, social justice, and the moral dimensions of patient encounters.” (Jones, Wear, Friedman, 2014) In turn, health and illness as depicted in a narrative can uncover the truth and contentions of a phenomenon through repeated phrase, metaphor and perspective as with the case of “Stand
Unfortunately, a lot of parents may have a difficult time accepting their child, and coping with their needs and the responsibilities. From the book “The Elephant in the Playroom,” some families dealt with depression and physical and mental deterioration of their health. These struggles were shown in the story by Laura Cichoracki. Laura’s son’s name was Patrick. Patrick was a 6-years-old boy with autism. “I wasn’t eating right, I wasn’t showering regularly, I wasn’t sleeping well” (Brodey, p. 64). I also read the story told by Susan Marrash-Minnerly, which highlighted emotions that parents face. Susan also shed light on how wonderful children with special needs can be to a family, such as her ten-year-old third grader who had autism. Susan talked about how it was normal to feel angry at times, especially with the ups and downs a child’s disability may come with. “When I look back, I want to tell other parents that a child’s future is worth grieving over – but it’s not the end of the world” (Brodey, p. 75). After reading these stories, it became apparent to me that families who are raising kids with special needs, need support, kindness, and available resources. “I was fortunate to be surrounded by other moms who understood my pain…who could be supportive and emphatic.” (Brodey, p. 67). Overall, educators can use this kind of information that was shared in “The Elephant in the Playroom” about family systems and risk/resiliency by creating lines of open communication between families. This is to connect parents together that share similar struggles. By creating open communication is can allows for the teacher and parents to be on the same page when it comes to the issues affecting special needs students and
Disability is a ‘complex issue’ (Alperstein, M., Atkins, S., Bately, K., Coetzee, D., Duncan, M., Ferguson, G., Geiger, M. Hewett, G., et al.., 2009: 239) which affects a large percentage of the world’s population. Due to it being complex, one can say that disability depends on one’s perspective (Alperstein et al., 2009: 239). In this essay, I will draw on Dylan Alcott’s disability and use his story to further explain the four models of disability being The Traditional Model, The Medical Model, The Social Model and The Integrated Model of Disability. Through this, I will reflect on my thoughts and feelings in response to Dylan’s story as well as to draw on this task and my new found knowledge of disability in aiding me to become
Chapter thirteen has two subject matter that it discusses in some detail, mental illness and developmental disabilities. This review will be exploring the history, philosophy and theories of developmental disabilities. Social workers come in contact with many clients that have developmental disabilities, and the chapter gives a glimpse the history, problems, and theories related to developmental problems. Chapter thirteen explores the issues of dealing with developmental disabilities in the past and what is being done today to help social workers face the issues.
Addison’s disease is a disorder of the endocrine system. It is a hormonal disorder that can strike anyone, any gender at any age. Addison’s disease has also been called Adrenal Insufficiency (hypocortisolism) because the root of the disease is in the adrenal gland not producing enough of the hormone cortisol, or sometimes not enough of the hormone aldosterone to satisfy the body’s needs.
The spinal cord is a major channel in the body where motor and sensory information travels from the brain to the body. It has white matter that surrounds a central gray matter. The gray matter is where most of the neuronal cells are located. Injury to the spinal cord will affect the conduction of information across any part of the spinal cord where the damage is located (Maynard et al., 1997). This will often result in permanent disability of a certain muscle or region of the body (Meletis et al., 2008) and a loss of tissue where the damage is located (Peng et al., 2009). As of now, there is no treatment for spinal cord injury expect for steroids. All steroids can do is provide protect of the spinal cord from secondary injury for specific patients (Peng et al., 2009).
Due to this disease the body is slowly broken down by affecting the central nervous system of a person’s body. The children depicted in the essay are probably an example how fellow human beings should be around a disabled person. They just view the disabled person as another human being and respect them the same way. The children are proud to associate themselves with Mairs and do not shy away from introducing her to the general public. This is what a disabled person requires: that all those around him or her should respect them for what they are and give them unconditional regard
Through the ideas presented in this podcast, it is clear that positive messages surrounding disability are being presented in the media. This podcast had the intent to convince its listeners that disability is a social construct and effectively does so through its use of accessible personal anecdotes and scientific facts. By viewing people in the light of their abilities instead of their limitations, this podcast presents a positive step towards viewing people with disabilities in a positive light as a society.
It is very common for people to underestimate the importance of the developmental milestones that a human being completes throughout a lifespan. The way a newborn is looked after in it’s mothers womb, followed by its birthing and by the taking care processes during its first few years of life, determines the way a child will be able to achieve and complete the so called developmental milestones, also known as the stages of development. Anything varying from an accidental teratogen intake or several prolonged extra minutes, or even just seconds, without oxygen during birth, can cause life long developmental damages, including both cognitive and/or physical. How do parents of children afflicted with these disabilities work through the growth and development of their child, knowing that their life, both the parents and the kids’, will forever be impacted by such a seemingly small and insignificant event? How do the second-born children learn to interact, and in a way accept and look past the differences of their siblings? This paper will focus on discussing the effects that children with mental retardation and learning disabilities have on their family’s adaption to their unique approach at the developmental stages. Those above are both questions that will be considered throughout this paper via the aid of personal anecdotes from my family and individual experiences with my brother, and several other papers that reported the results from different related studies.
Scoliosis is a disease that attacks the muscles and ligaments of the spinal column, causing a sideways twisting and rotation of the spine, ribs, and pelvis. Its is a C-shaped or S-shaped curvature of the spine. An S-shaped curve is created when a secondary curve counterbalances primary abnormal curve. It severely impairs the bodies neurological, hormonal, and nutritional systems.
Severe disability as mentioned in chapter 1 can refers to a person that is not able to act in one or more area that affects the person daily living. As stated in chapter 1 there are “traditional categories” of a person that has severe disability and are described as follows; “moderate, severe, or profound intellectual disability, some who have autism spectrum disorder, and those who have multiple physical or sensory disabilities as well as intellectual disabilities” (pg.3). In other words, we need to keep in mind that when hearing the word severe disability in a person, it cannot be assumed that every person is the same. As mentioned before, there are many categories under severe disability such as intellectual disabilities which they are
It could be said that in modern industrial society, Disability is still widely regarded as tragic individual failing, in which its “victims” require care, sympathy and medical diagnosis. Whilst medical science has served to improve and enhance the quality of life for many it could be argued that it has also led to further segregation and separation of many individuals. This could be caused by its insistence on labelling one as “sick”, “abnormal” or “mental”. Consequently, what this act of labelling and diagnosing has done, is enforce the societal view that a disability is an abnormality that requires treatment and that any of its “victims” should do what is required to be able to function in society as an able bodied individual.
The Portage Project was created 32 years ago in Portage, Wisconsin, in response to the need to provide services in rural communities to young children with disabilities. It was first funded by the Bureau of Education for the Handicapped (B.E.H). Portage is known for early intervention and development of intervention systems in the community. Its success relies heavily on parental involvement. This requires the enhancement of the development of young children with disabilities. All parents need to first understand that development of the child occurs sequentially in nature. Secondly, they must believe that the child's development can be influenced and impacted by their efforts. A final assumption that needs to be met if family involvement is to be implemented is p...