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Epilepsy and developmental delay in young children
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One day that made all the other days seem to disappear. I woke up just like every other day, thinking all is well, only today is different, today is life changing. I’m a mother who has dedicated my entire life to my babies, and within a few hours, my whole life was turned upside down. My son has epilepsy, a seizure disorder that up until that day I knew nothing about. When you think of seizures, you think of thrashing around and foaming of the mouth, I sure did. For Blayk, my three year old son, yet, that was not the case. It started out that he was just quiet, which was not different from his normal disposition. A few minutes later, I noticed a spiked fever, followed by vomiting. To be honest, at this point, I didn’t think too much of his
symptoms. I was thinking a flu bug or maybe he had eaten something bad, until he was lying down and staring at me, but only he wasn’t staring at me. Instead, it looked as though he was staring right through me. I began to realized he was not just being quiet, he wasn’t able to speak. I could not tell you how I was feeling at this point; I just knew that it was time to panic. My husband and I rushed him to the nearest hospital. Every minute passing made it that much more clear that something was seriously wrong with my little boy. By the time we arrived at the hospital, it had been forty-five minutes and he had almost completely stopped breathing. I just remember the doctors asking a million questions, all while I’m begging them to save my babies life. I knew did not have the emotional capacity to grasp all that was happening. After a few long day and nights, they confirmed that my son has epilepsy. My perfectly healthy boy now has a condition that has no cure. Although that was the toughest days of my life, my son is thriving and I am so proud and inspired by that little boy’s strength and everlasting joyful spirit.
My leg bounced wildly. I had every nail on my hand bit down until they were almost bleeding. I had drank three Pepsi's and eaten two candy bars just for something to do, and we had only been waiting an hour. Sixty minutes of pure torture, not knowing what was wrong with my baby brother or if he was going to be okay.
After reviewing my life, I have decided my life defining moment was when my family and I moved to Texas from Oklahoma. I consider this move my life changing moment because it changed so many things in my life. This move set the stage for an entirely new life for me. Moving six hours away from the only home I knew certainly called for many changes.
It has been around 14 hours since I have gotten back from the Freshmen Retreat, and I happy to be able to write about the success of the trip in all parts, regarding my personal goal, what I learned about my fellow advisory peers, and realizing a bit more about myself.
Now let’s fast forward to a few months later. It was a Friday and I was going home with one of my friends after school to spend the night. It was her cousins 17th birthday so we all went out to a popular restaurant to celebrate. While at dinner with my friend and basically her entire family, it happened again, I had my second seizure. This time while at the emergency room the doctor referred me to ...
One day coming home from a long afternoon from hiking, being 31 weeks pregnant, I felt much drained so I headed to bed. I woke up to a feeling of wetness; I turned on the light to find that it was blood. I screamed for my husband and we immediately went to the hospital. I was scared and just not sure what to do since this was my first child. When we got the hospital we found I was in labor. The hospital did everything they could to postpone the labor so I could at least receive steroids for my child’s lungs to develop faster. These needed to be in my system for 24 hours before delivery. After delivery, he was rushed to the Neonatal Intensive Care Unit (NICU). I wasn’t even able to see him. I was worried, anxious, and stressed.
The struggle of not being able to breathe properly, gasping for air while the fever inside was killing me little by little and my fragile self in the age of four did not know what was happening to me I was brain dead, more like clueless little kid almost having a near death experience of having a seizure that in the end it changed my life and the way I looked at it because God gave me another chance to actually prove to him that I can be someone in my life and grateful to be alive today knowing that I have family that actually loves me for who I am.
January 12, 2006. It was my birthday and the most tragic event of my life. I had come home to hear the horrible news that my uncle, whom I adored dearly, had passed away. To say I was shocked would be an understatement. I was heartbroken, baffled, and overall miserable. When I approached my mom and asked for the cause of his death, she replied with a downcast expression and informed me that it was due to a heart attack. At the time, I didn 't understand why him, out of all people could have had a heart attack. Our entire family had claimed that he was a born athlete. He would never touch any sort of junk food, and worked out every other day. It didn 't make any sense. Only unhealthy people had heart problems right? Two days later, a toxicology
I missed a lot of school and was unable to attend school. It turned out to be a neurological tick. I was always coughing could hardly move without coughing, sore throat, just felt really horrible. It took multiple doctors to examine me and no one could figure it out. Finally an immunologist figured it out the issue. It took almost a whole year for me to get better. I was constantly at home but I also spent some time in the National Jewish hospital. This was hard for my mom she was distraught over this issue. Not only did she have her health issues but she was taking care of my health issues. On top of the health issues we had issues with the school accepting that I was unable to come to school. They would threaten us with the truancy officers but my condition couldn’t be helped at the time until the treatment was completed. The treatments sucked and having a year taken from me sucked more than anything. I just kept thinking like this is so stupid what teenager has this happen to them. All I did was thinking of what I would do when I was better. I kept stressing myself out as well not being able to get out of the house and do what I needed or to know I was a year behind in school because of this stupid coughing tick. I wasn’t sure what was going to happen, I just had to live day by day and hope that my life and health would bet
I was standing still, in that awful hospital that stunk of fresh rubber gloves and rubbing alcohol, yet, I was struggling to breath. I had an instant migraine and I physically, emotionally and spiritually ached over every inch of my body. Our small, broken family surrounded Dallin in a dim, and gloomy hospital room, June 12th, 2015 would go down in history as the day I lost my dad, one of my best friends, and a little bit of myself with him. The next days and weeks drug on. I lost most of my appetite, but I managed to ask a nurse for some orange juice.
My seventeen years of life have all been through the word of God and the hope that one day I would beat something that no one thought would ever happen not even my own doctor. Since the time, I was ten years old I have suffered with Epilepsy, it was like an overnight type thing that came from out the blue. It was around time of 1:30 – 2:00 in the morning when my mom noticed me shaking in the bed next to her I heard her say to me “Miyah, Miyah, wake up!!!!” of course the only moving at that time being I could do was shaking my legs and arms. After seizing for a good thirty minutes I finally woke up, but that wasn’t the end of my terrifying situation it was just the beginning.
Sometimes in life, there will be some challenges or obstacles that come your way, whether you want it to or not, which could ultimately rearrange your thinking and forces you to SSS life decisions. For me, one obstacle that impacted me was in my past which lead me where I am now. I had to change households which meant I started living with my father, new siblings, and a new school environment. Although starting out it was difficult rebuilding a relationship with him, he truly became a good father figure towards me and gave me life skills in my near future. Overall, I feel like me moving away from what I’ve been used to all my life and making that decision, I can say that it benefited my life tremendously.
When I was younger, I had friends, but I was the person who did not want to dance at birthday parties. I was someone who enjoyed talking to the lunch moms instead of playing on the playground. I was shy and my mom handled everything for me. Until now, I did not know how much work went into raising me. I never knew that there were deadlines to paying bills or that appointments had to be made in advance, but everything changed one morning when I woke up to the blaring sound of my mom’s alarm. I was confused because she was a light sleeper, and I became anxious. I ran into her room, and immediately I knew something was wrong. The death of my mother during the first month of my eighth grade year, as a single event, did not instantly mark my transition to adulthood, but it did change my life forever. My mother died before she was able to watch me graduate middle school, before she was able to teach me how to drive, and before she was able to share all of her wisdom. Her death was the most painful experience I have ever encountered, but I was lucky enough
The first thing I did was call the pediatrician and schedule a meeting as soon as possible, which fortunately was at 8am that morning, next thing I did was cancel work for the next few days. I prepared Kevin for the meeting, he was so tired and sick he barley talked and reacted to the world. We went straight away. When I come to think of it now, it wasn’t the best thing for me to drive, my mind was running scenarios of what can go wrong at the doctor's office. When we arrive the practice was empty we were the first patients of the day. We Entered Mr. Bar's office and he without even examining him had a diagnoses
We arrived at the emergency room only to find several people already there. Joey was begging me to do something to stop the pain in his back; we waited and waited and waited. Finally, in total anger and despair I set out to find someone to help. The doctor came over, examined him and asked me several questions; it was slowly becoming apparent to me that this doctor did not have any answers. Meanwhile I was growing more concerned about the unknown; what was wrong with my child? The doctor, obviously puzzled by the situation, decided to run a CBC (complete blood count). This took what felt like an eternity, suddenly the doctor became somewhat evasive, almost secretive. I was exasperated, determined to find out what was wrong with Joey’s lab report. I inched my way over behind the curtain, so I could overhear bits and pieces of the doctor’s conversation. They were discussing things like a low hemoglobin count and a high white blood cell count, then I heard it, the most devastating word I have ever heard a doctor say-Leukemia.
I never really thought about where my life was going. I always believed life took me where I wanted to go, I never thought that I was the one who took myself were I wanted to go. Once I entered high school I changed the way I thought. This is why I chose to go to college. I believe that college will give me the keys to unlock the doors of life. This way I can choose for myself where I go instead of someone choosing for me.