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Pediatric palliative care essay
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Pediatric Palliative Care When an innocent child is diagnosed or is seriously ill with a life threating disease or serious medical condition such as cancer or a hereditary disorder, it is extremely important to provide special care during the difficult time. A special type of care such as palliative care can avail and be an important part of care for a child living with a life-threatening disease or illness (National Institute of Nursing Research National Institutes of Health 2015). However, it has come to the attention that there is a higher prevalent of adult palliative care than pediatric palliative care. According to an article by Morgan, most palliative care programs are mainly focused on the care of adults and that pediatric palliative care programs and education are highly needed (Morgan,2009). The purpose of this paper is to inform and explore about what pediatric palliative are (PPC) is, history, future predictions, …show more content…
If the awareness toward palliative care for children increases more medical professionals will come together to find more effective resources to provide a better quality of life to children suffering with chronic diseases. The awareness will also influence insurance companies and government agencies to support children and families to provide increased reimbursement for palliative care and to make billing and reimbursement easier for palliative care providers (Cozier & Hancock,2012, p.198). Furthermore, the increase of facilities will also increase better probabilities for children to have a longer and more pleasant process by managing and decreases their symptoms. Overall more recognition of PPC will not only increase sources to further increases facilities but also help families to receive more help from insurance agencies or government and the awareness will also expand the children
The change which is outlined in this paper relates to how early referral of terminally ill patients into a hospice program results in better patient outcomes, in particular, with regard to pain management. PICO format question will be used , along with a supportive body of evidence regarding the fact that early onset into a hospice program is helpful with providing end of life pain control. Hospice programs available, and options associated with them will be discussed as well as common concerns associated with early admission to hospice. The methods used for payment of hospice, and how one qualifies for entrance into a hospice program will be explored. A literature search will be performed and its results detailed within the body of this paper. Recent publications on the subject matter and associated issues such as moral and ethical questions as well as the change question will be discussed. Planning, implementing and evaluation of the change proposed will be explored within this paper.
Wiener, Lori, Elizabeth Ballard, Tara Brennan, Haven Battles, Pedro Martinez, and Maryland Pao. 2008. "How I wish to be remembered: the use of an advance care planning document in adolescent and young adult populations." Journal Of Palliative Medicine 11, no. 10: 1309-1313. MEDLINE with Full Text, EBSCOhost (accessed May 26, 2014).
Pediatric oncology has been so very rewarding in many ways, but also so very cruel in a few ways. The good days are great, but the sad days are heartbreaking. But beyond the death and the suffering, there is a whole other layer of
When people think of a pediatric nurse practitioner, they normally think of a person who performs examinations, takes blood samples, and measures vital signs of children who are sick. What they don’t see are the countless hours spent getting to know the patient, showing sympathy and understanding, and having to explain the diagnosis and treatment plans to the parents and sometimes to the child. According to my career cruising inventory, any job in the medical field would be right for me. However, after reading the descriptions, I concluded that a pediatric nurse practitioner was the best path. I will be attending nursing school to receive my nurse practitioner license, while specializing in pediatrics. The skills, educational requirements,
Gawande’s book is very pertinent to the present day and has by many accounts sparked a national discussion on end-of-life care and how we treat our elderly. With elderly people accounting for a greater proportion of the American populace and as people start living even longer than they do now, end-of-life care will become and remain a major issue faced by doctors, patients, their families, and the healthcare system. Additionally, with our greater focus on improving patient outcomes while getting the most value for our healthcare dollars, end-of-life care is a major area that healthcare systems and hospitals will focus on, as it accounts for a large portion of their budget. As a response to the need to take care of our aging population, hospice care and palliative medicine are some of the newer specialties in the medical field that have been increasing in popularity and more research needs to be focused in these areas to better understand how to improve patient outcomes.
Hospice focuses on end of life care. When patients are facing terminal illness and have an expected life sentence of days to six months or less of life. Care can take place in different milieu including at home, hospice care center, hospital, and skilled nursing facility. Hospice provides patients and family the tool and resources of how to come to the acceptance of death. The goal of care is to help people who are dying have peace, comfort, and dignity. A team of health care providers and volunteers are responsible for providing care. A primary care doctor and a hospice doctor or medical director will patients care. The patient is allowed to decide who their primary doctor will be while receiving hospice care. It may be a primary care physician or a hospice physician. Nurses provide care at home by vising patient at home or in a hospital setting facility. Nurses are responsible for coordination of the hospice care team. Home health aides provide support for daily and routine care ( dressing, bathing, eating and etc). Spiritual counselors, Chaplains, priests, lay ministers or other spiritual counselors can provide spiritual care and guidance for the entire family. Social workers provide counseling and support. They can also provide referrals to other support systems. Pharmacists provide medication oversight and suggestions regarding the most effective
The first journal article is about advance care planning (ACP) in palliative care. This is of interest due to several clinical experiences and the realization that many families either ignore the patient’s request for end of life (EOL) care or who have no idea of how to plan for EOL care. By reading the research and understanding the methods used, this will allow for insight into how to implement palliative care into clinical practice across different sites. The authors of this original research are Jeanine Blackford PhD, RN, senior lecturer at La Trobe University in Australia, and Annette Street PhD, associate dean of research and professor of cancer and palliative care studies. According to Blackford & Street (2011), this research is important as there are many countries that “report a low percentage of people who have completed an advance care plan” (p. 2022), and ACP is needed upon admission to facilities that offer palliative care. In addition, the purpose of the study is to try and obtain guidance to integrate an ACP model into routine clinical practice in the community. The research question chosen for the analysis of this article is: Is it feasible to implement ACP into routine practice and documentation at multi-site locations in...
Pediatric Oncology is at the heart of many organizations. There are many financial and emotional burdens associated with a loved one having cancer, and thanks to these foundations parents and children can sleep a little bit better at night knowing that someone has their back. Some of the more prominent groups that have an impact here in our community are: Alliance for Childhood Cancer, Bear Necessities Pediatric Cancer Foundation, CURE Childhood Cancer, and National Cancer Institute (Mccaul). These are organizations that make an impact in the lives of the children battling cancer and their families. Whether an organization has been started in memory of a loved one or to support a college or hospital, organizations like those listed above have
Pediatric Nurse 1. A pediatric RN assists pediatricians by assessing a patient's needs and providing initial patient care. They help families deal with a child's illness or injury. They often offer information on nutrition, diet, and good health habits. The work of a Pediatric Nurse can range from assisting a Physician with the exam of a child to drawing blood.
Having worked as a rehab aide in an outpatient clinic, my pediatric observation experience was completely different from what I am used to seeing. The therapist I observed was Allie Ribner who works at All Children’s Child Development and Rehab Center. Each session was completely different from one another for the session was geared towards the goals of the child and families. I found this to be a great learning experience for I saw a wide variety of different treatments and age range from 14 months to 15 years old.
Have you ever gone to the doctor? and they ask you questions and they are talking to you in a room with your mom, have you ever wondered what these doctors are called?. Pediatric nursing is a worldwide profession in which they help. When you are a baby until you are eighteen. Pediatric nurses are the ones you're performing during a yearly exam until you're eighteen. Pediatric nurse works with children for immunizations, treating common illnesses and work closely with family doctors as well. Pediatric nurses also provide screenings and provide preventative care as well.
Candidate Handbook. (2013). National Board for Certificate for hospice and palliative care nurses. Retrieved November 23, 2013, from http://www.nbchpn.org/
The care of patients at the end of their live should be as humane and respectful to help them cope with the accompanying prognosis of the end of their lives. The reality of this situation is that all too often, the care a patient receives at the end of their life is quite different and generally not performed well. The healthcare system of the United States does not perform well within the scope of providing the patient with by all means a distress and pain free palliative or hospice care plan. To often patients do not have a specific plan implemented on how they wish to have their end of life care carried out for them. End of life decisions are frequently left to the decision of family member's or physicians who may not know what the patient needs are beforehand or is not acting in the patient's best wishes. This places the unenviable task of choosing care for the patient instead of the patient having a carefully written out plan on how to carry out their final days. A strategy that can improve the rate of care that patients receive and improve the healthcare system in general would be to have the patient create a end of life care plan with their primary care physician one to two years prior to when the physician feels that the patient is near the end of their life. This would put the decision making power on the patient and it would improve the quality of care the patient receives when they are at the end of their life. By developing a specific care plan, the patient would be in control of their wishes on how they would like their care to be handled when the time of death nears. We can identify strengths and weakness with this strategy and implement changes to the strategy to improve the overall system of care with...
Cancer is a word which evokes many different images and emotions. Nothing in this world can prepare a person for the utter devastation of finding out someone has been diagnosed with cancer, especially when this person is a child. Over the past twenty five years the amount of research and the survival rate for children suffering with cancer have increased dramatically. Despite these successes, the funding for new research necessary to keep these children alive and healthy is miniscule and too dependent on short term grants. Of the billions of dollars spent each year on cancer treatments and research less than a third is contributed to researching pediatric cancer. Given the media focus on adult cancers, research for pediatric cancer is underfunded. In order to maintain the increasing survival rate of the children undergoing pediatric cancer and support those who have survived the disease, better funding is quintessential to develop and further promote research.
When one hears the word “cancer”, thoughts about how their previous life is about to change cloud the mind, but when one hears the word cancer for their child, it is a whole different outlook; the affects of childhood cancer are not only taken on by the patients, but also by their families; the affects can range from emotionally to physically, socially to financially, and even educationally. “Childhood cancer is considered rare, especially compared with adults. Still it’s the leading cause of death in children pre-adolescent, school-aged children” (Report: Childhood Cancer Rates Continue to Rise, but Treatment Helps Drive Down Deaths). Around 12,000 children in the United States are diagnosed with cancer every year and around one in five children that are diagnosed with cancer will die.