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3. Literature review of palliative care
Literature review palliative care
The importance of palliative care
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Palliative care, and the medical sub-specialty of palliative medicine, is specialized medical care for people living with serious illness. It focuses on providing relief from the symptoms and stress of a serious illness. The goal is to improve quality of life for both the patient and the family. The design and implementation of successful inpatient acute palliative care programs primarily serve all patients with complex or serious illnesses (including cancer), yet they also can reduce non-beneficial utilization of acute care hospital services when costs from such admissions typically exceed revenues, in the case of long or high-cost stays. The increase in the numbers and costs of caring for chronically ill Medicare patients has become a …show more content…
Notably, most (89%) high-cost patients are not in the last year of life (Kelly & Meier, 2015). As such, there are strong incentives for hospital and health system-sponsored palliative care programs that serve specific patient populations. Improved patient outcomes such as better symptom control and clarity on goals of care manifest as avoided health crises, increased capacity to receive care safely in the home, and improved planning, with the secondary effects of reduced use of health services such as hospital admissions and emergency department visits. Palliative care is most frequently found to be less costly relative to comparator groups, and in most cases, the difference in cost is statistically significant (Smith, Brick, O’Hara 2014). In addition to providing clinical patient care, palliative care programs have also been proven to reduce costs. Spanning the calendar years 2012 through 2015, a retrospective Palliative Care Opportunity Analysis, rooted in the methodology of Cassel & Kerr (2015), was conducted to assess opportunities to improve the quality and efficiency of care delivered to Trinity Health’s Mount Carmel patients with chronic, progressive
...nce that is necessary to provide primary care providers the tools necessary to provide care. Early hospice admission is statistically proven to be more effective in preventing pain at end of life. It is cost effective to do so and has been discussed within the confines of this project. A literature search using CINAHL proved that in different venues the fact that earlier admission does result in pain management was proven.
Hospice focuses on end of life care. When patients are facing terminal illness and have an expected life sentence of days to six months or less of life. Care can take place in different milieu including at home, hospice care center, hospital, and skilled nursing facility. Hospice provides patients and family the tool and resources of how to come to the acceptance of death. The goal of care is to help people who are dying have peace, comfort, and dignity. A team of health care providers and volunteers are responsible for providing care. A primary care doctor and a hospice doctor or medical director will patients care. The patient is allowed to decide who their primary doctor will be while receiving hospice care. It may be a primary care physician or a hospice physician. Nurses provide care at home by vising patient at home or in a hospital setting facility. Nurses are responsible for coordination of the hospice care team. Home health aides provide support for daily and routine care ( dressing, bathing, eating and etc). Spiritual counselors, Chaplains, priests, lay ministers or other spiritual counselors can provide spiritual care and guidance for the entire family. Social workers provide counseling and support. They can also provide referrals to other support systems. Pharmacists provide medication oversight and suggestions regarding the most effective
The first journal article is about advance care planning (ACP) in palliative care. This is of interest due to several clinical experiences and the realization that many families either ignore the patient’s request for end of life (EOL) care or who have no idea of how to plan for EOL care. By reading the research and understanding the methods used, this will allow for insight into how to implement palliative care into clinical practice across different sites. The authors of this original research are Jeanine Blackford PhD, RN, senior lecturer at La Trobe University in Australia, and Annette Street PhD, associate dean of research and professor of cancer and palliative care studies. According to Blackford & Street (2011), this research is important as there are many countries that “report a low percentage of people who have completed an advance care plan” (p. 2022), and ACP is needed upon admission to facilities that offer palliative care.
Dealing with death on a regular basis can take a toll on a person. Being a hospice nurse will never be easy and is certainly not for the faint of heart. A hospice nurse watches patient’s health decline, often times very rapidly, and many times sit by the patient’s side as they pass away. It can be exhausting both emotionally and physically. You need to have a big heart and a strong will to help those in need for the occupation. Sara Schmidt certainly never saw herself in the profession, but discovered that she has a true love for helping people.
Palliative care is an essential to the creation of a health and wellbeing continuum for Australians living with a chronic illness. It is an approach of care that seeks to improve the life of patients and family experiencing the effects of chronic illness. Palliative care centres on the relief of the symptoms and effects of disease and incorporate the physical, psychological and social dimensions of a person at the end of life. A recent focus for the delivery of palliative care by nurses to Indigenous communities is the consideration that culture can create barriers to the provision of appropriate and beneficial care for the dying or deceased person. This essay explores the palliative nurse caring for Indigenous communities and the need to consider
(3)Publication Date: 2008-03-18Medicare Benefit Policy Manual Chapter 9 - Coverage of Hospice (4) JOURNAL OF PALLIATIVE MEDICINE
Palliative care - treatment that helps to comfort patients, while slowing the progress of a disease.
Overall the need for a better based end of life care strategy is warranted globally. More of a focus should be given on care and high quality service for patients. As of now too much decision lies with the healthcare professionals and this can lead to faulty decision making because the health care providers are doing what they believe is in our best interest. In reality the patient or ourselves only have the true idea how we would like our final days to be carried out. By developing and carrying out an end of care plan we can take the decision making out of the family and doctors and place it on the patient. By all counts the need for change is apparent within the healthcare industry in regards to end of life care. By considering this unique change a great deal of improvement can be derived from this decision making process.
Palliative care involves the holistic care to maintain and improve the quality of life of the patient and family during hospitalisation until the terminal stage. Palliation of care refers to the multidisciplinary approach of providing comfort and support for the terminally ill patient and family, thus has an important role in maintaining and improving the quality of life of the whole family. Chronic illness such as cancer gives a physiologic and emotional burden for the patient and family. Education and counselling of the possible options as well as treatments for pain and other symptoms that could help alleviate anxiety, suffering and discomfort. Palliative care provides assistance for the family as a channel for communication between the
The subject of death and dying can cause many controversies for health care providers. Not only can it cause legal issues for them, but it also brings about many ethical issues as well. Nearly every health care professional has experienced a situation dealing with death or dying. This tends to be a tough topic for many people, so health care professionals should take caution when handling these matters. Healthcare professionals not only deal with patient issues but also those of the family. Some of the controversies of death and dying many include; stages of death and dying, quality of life issues, use of medications and advanced directives.
However, a key issue in meeting this requirement is defining the research risk and benefits, and measuring them against an appropriate standard.2 Studies have shown that patient’s goals of care near the end of life changes. They become more focused on spending quality time with family members and symptomatic relief. This change in goals of care is most likely to result in a change of preference on what constitutes a risk or potential benefit in end of life research. This issue is unique to palliative care research and calls for future studies to investigate what patients at the end of life might perceive as a risk or benefit. Challenging as well is that, even when patient’s perception of risk and benefits are known, they are measured against the risk of everyday life.
If the awareness toward palliative care for children increases more medical professionals will come together to find more effective resources to provide a better quality of life to children suffering with chronic diseases. The awareness will also influence insurance companies and government agencies to support children and families to provide increased reimbursement for palliative care and to make billing and reimbursement easier for palliative care providers (Cozier & Hancock,2012, p.198). Furthermore, the increase of facilities will also increase better probabilities for children to have a longer and more pleasant process by managing and decreases their symptoms. Overall more recognition of PPC will not only increase sources to further increases facilities but also help families to receive more help from insurance agencies or government and the awareness will also expand the children
Executive Summary OUR MISSION: Palliative care is a rapidly growing need that can be addressed and fulfilled at a cost we can afford. We have developed a structured programme and tools to enhance the service such as our patients only receive the finest care. We believe all patients needs deserve the best care possible. Our aim is to provide patient centred, high quality and efficient care to our patients.
"There is a new and challenging opportunity to refocus on the patient as a human being, to include him in dialogues, to learn from him the strengths and weaknesses of our hospital management of the patient. We have asked him to be our teacher so that we may learn more about the final stages of life with all its anxieties, fears, and hopes. It is hoped that it will encourage others not to shy away from the “hopelessly” sick but to get closer to them, as they can help them much during their final hours" (Kübler-ross, p. 11, On Death and Dying). Grieving is a time in life for many individuals who have either experienced or will soon when a person they know is in the process of dying, or the individual themselves face their own approaching death.
Research on Pediatric Palliative Care The pediatric nurse that participates in palliative care for a child has an important role in their coping and healing process based on their excessive interaction with the child and their family, and their job description to manage the child’s pain. It is hard for a child to accept or realize the situation of having a terminal or ongoing illness when admitted into palliative care. A nurse needs to realize and discover the psychological and holistic needs of the child inorder to prevent safer digression in their health and improve their stay in palliative care. The main goal that a registered nurse that is working in a palliative care unit/setting, is to provide the best best care and also proved physical,