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A telephone interview was conducted with Gretchen Papandantonakis, a resident of Baltimore Maryland, over the course of two hours. Interview questions were utilized as a point of reference, however the informal conversation involved reminiscing. The interviewee is the author’s maternal aunt, however their relationship resembles that of a mother and child. She is seventy-two years of age and is of Central European descent. She is a retired college professor, also married to a retired professor, originally from Greece. Together they have one son and two grandchildren. Mr. and Ms. Papadantonakis reside in an ethnically diverse, progressive, ecofriendly, politically conscious community. Their middle class home is nestled a lush, well kept …show more content…
Papadatonakis resides in a home that was modified to suite her physical needs, however it is still difficult to move around the two story home. There is a handicap elevator attached to the railing of the staircase that she takes twice a day, two and from her bedroom. She has a separate bedroom from her husband that is equipped with addition supports. Contrary to the common misconception that the disability is a burden, she noted, “Life is quite good for me. I have a loving husband, three supportive aids who are here for me six hours per day, and half an hour at night”. This assistance enables her to do what she enjoys most, reading in English and Greek, and taking online courses. According to Blanchar (2013, p. 7), many baby boomers who are categorized as middle class, cannot afford private pay nursing home care. Mrs. Papadantonakis recognizes that she is privileged to have the quality of life she has, which could not be achieved without home help. She explained the government assists her with approximately ten dollars a month in assistance. She and her husband pay the aid out of pocket and also treat them as family members, and have assisted them in the past with paying for their dental bills and attorney fees (G. Papadantonakis, personal communication, April 20, …show more content…
My freedom and independence are probably the two things that I cling to most fiercely. So, I have to make trade-offs. I agree to use a mobility aid to get around, because the alternative is not to get around at all. I prefer a mobility aid that I control on my own, because of the frustration of depending on someone else to get me around. My first experience in a wheelchair controlled by someone else was excruciating. I felt like a non-person. We were boarding a charter bus, and the driver, looking over my head, asked, “Is she able to walk?" I remember shouting back, "Yes, and she can talk, too. Before, when I was able to move independently, I was the one who decided when to stop, where to turn, how fast to move. Suddenly I was at the mercy of another, whose pace did not match at all with mine. But it made sense for me to learn how to deal with this psychological discomfort, if the more important goal was to get somewhere I wanted to be. There are times when a wheelchair is the only way I would be able to participate in something special--for example, a stroll through the roughly tiled streets of a Greek village. Our family travels to Greece every two years to visit my husband's relatives and travel a bit around the country (Papadantonakis,
It is hard to live with disability, because everyday things become a challenge. U.S. Census Bureau report from 2008 states that 3.3 million non-institutionalized Americans over age 15 years use wheelchairs. The reason why there are so many people with disabilities is that U.S. spent decades at war. This is why mobility industry is rethinking the products it provides to support a growing demographic. Vantage Mobility International (VMI) and Braun Ability are two leading industry players that spent decades converting wheelchair vans from companies such as Chrysler , Toyota , and Honda into wheelchair-accessible modes of transportation.
The older adult interviewed for the purpose of this assignment was Alice Margaret Cox, the interviewers grandmother. Alice was born on February 17th, 1932 in Brown County, Minnesota. Alice was the daughter of Rose Veldman and had three brothers and three sisters. In 1942, Hikel Veldman, after marrying Rose, legally adopted Alice and her six siblings. He brought four children of his own, making a family of 13. After the family was adopted, the majority of their childhood to early adult life was spent living in Hollandale, Minnesota. Alice spent the majority of her life farming and now helps out part time at a family owned thrift store. Alice currently resides in Lake City Minnesota, in her home of twenty plus years. Only four of the eleven
In her article “Unspeakable Conversations” author Harriet McBryde Johnson took time to inform and familiarize her readers with the details and limitations placed upon her by her disability. In her article she walked her readers through her morning routine. She told them about the assistance she needs in the morning from transferring from bed to wheelchair, to morning stretches, to bathing, to dressing, to braiding her hair. She does this not to evoke pity but to give her readers a glimpse into her world. She wants her readers to know that the quality of a disabled person’s life relies solely on another’s willingness to assist. Because those with disabilities need assistance they are often viewed as burdens. Therefore, they see themselves as
What comes into one’s mind when they are asked to consider physical disabilities? Pity and embarrassment, or hope and encouragement? Perhaps a mix between the two contrasting emotions? The average, able-bodied person must have a different perspective than a handicapped person, on the quality of life of a physically disabled person. Nancy Mairs, Andre Dubus, and Harriet McBryde Johnson are three authors who shared their experiences as physically handicapped adults. Although the three authors wrote different pieces, all three essays demonstrate the frustrations, struggles, contemplations, and triumphs from a disabled person’s point of view and are aimed at a reader with no physical disability.
As mentioned previously, the chances of becoming disabled over one’s lifetime are high, yet disabled people remain stigmatized, ostracized, and often stared upon. Assistant Professor of English at Western Illinois University, Mark Mossman shares his personal experience as a kidney transplant patient and single-leg amputee through a written narrative which he hopes will “constitute the groundwork through which disabled persons attempt to make themselves, to claim personhood or humanity” while simultaneously exploiting the “palpable tension that surrounds the visibly disabled body” (646). While he identifies the need for those with limitations to “make themselves” or “claim personhood or humanity,” Siebers describes their desires in greater detail. He suggests people with
In David Birnbaum’s “The Catbird Seat”, the author gives his readers his perspective of a handicapped person’s experiences (228). Birnbaum lost the use of this legs during a car accident and is now only able to move through the use of a wheelchair (Kirszner, Mandell 228). Although Birnbaum’s disability is physical, “Disabilities can manifest as a physical or cognitive issue, coming from a range of factors – genetics, accident, external circumstances, or advancing age”(Bowman 6); therefore, most people who have a disability are not born with it and in some situations a disability can be eliminated with medical treatment and surgeries
The memoir My Body Politic is an inspirational first person framework by Simi Linton. Her powerful stories give the reader a strong understanding on disability studies as well as the challenges Simi endured as she lived through a difficult time period for someone having a disability. When she became disabled in the 70’s, Simi’s life drastically changed. After spending months in the hospital and rehabilitation centers, Simi decided to take the opportunity to move to New York and attend college there. While living in Berkeley, she discovered that her neighborhood was more accommodating for people with wheelchairs, making it a welcoming space to live in. It was there where she discovered the political disability movement which inspired her to go back to university to get her bachelor’s degree in psychology.
The author writes, "People–crippled or not–wince at the world "cripple", as they do not at "handicapped" or "disabled." (Perhaps I want them to wince. I want them to see me as a tough customer, one whom the fates/gods/viruses have not been kind, but who can face the brutal truth of her existence squarely. As a cripple, I swagger." (194) This quote shows the author's strength and sense of humor. These are the two things which allow her to honestly face the truth of her situation as well as how other people react to it. She does not want pity from people who see her limping down the street with her cane, nor does she want them to shy away as though she is some ...
She has many horrific stories of World War II that affected her life forever and her parents were a big impact as well, which really surprised me. Her parents had one goal for her and it was for her to become a teacher. Luckily she liked it and became the teacher she wanted to be now. Not many struggles were given to my grandmother other than tragic events as she was raised by two wealthy parents who truly cared about her. Silvana Giono is my inspiration and as she taught me, I will never give up on anything. Being able to interview her, I have learned that I need to become a better person and work harder for what I really want. This has a big impact on me because I will try even harder for things I really want and will always try my best from now on. I am very glad I was assigned this project, as I feel that I have turned into a better
I began to wonder where and how therapeutic riding originated. In my research I found that therapeutic riding was not taken seriously until Liz Hartel, a Danish rider who had paralysis from poliomyelitis, advanced to competitive riding. Despite the fact that Liz suffered from poliomyelitis, she “went on to win a silver medal in the Grand Prix Dressage competition at the 1952 Helsinki Olympic Games” (Young). After she won this great achievement, an interest around the world in the therapeutic effects of riding emerged; as a result, therapeutic riding programs were established and studies were initiated (Young). I think it is ironic how a person with a disability is so influential in helping other people with disabilities.
I was always the person to shy away from a disabled person because I didn’t know how to handle it. I always thought if I avoided them I wouldn’t have to face the truth, which is I was very uncomfortable with disabled people. However, since our discussions in class, reading the book, and going to the event my views on the disabled have changed drastically since then. I learned that people with disabilities can do the same things, if not more, that a person without disabilities can do. I realized that I need to treat people with disabilities just like any other person, like an equal. People shouldn’t be ostracized for something that they cannot control. Everyone should treat disabled individuals with respect, dignity, and concern. This is why from now on I will not shy away from a disabled person I will welcome them with open arms because they are no different than
Certain cultures that live at or below the poverty line prefer this type of assistance for their elderly family members because it allows them to have someone meet them at their home. This convenience is a big factor and provides the elderly with a way to fulfill their communal culture by living out their time at home among family, while still receiving any necessary assistance for health checks or IADL’s. This improves their quality of life by meeting their needs in a different way. These alternative methods to older adult care are more popular among minorities and cultural groups (Bookman & Kimbrel, 2011).
To begin to understand an individual must start to understand the current status of care for the elderly people with dementia. In the twenty-first century there are differences that occur that are unlike past elderly care (Bookman & Kimbrel, 2011). One difference that is looked at is the six key groups that people look for in outsourcing are health care providers, nongovernmental community-based service providers, employers, government, families, and elders themselves (Bookman & Kimbrel, 2011). Roberto and Jarrott (2008) discuss one of the key groups that Bookman and Kimbrel (2011) talk about. In Roberto and Jarrott’s (2008) article they explain that older adults have to rely on family member for instrumental support and more intense care activities.
In addition, declining birthrates may cause people to have less familial care and support as they age. To be able to provide the necessary care for senior citizens, a government funded long term care insurance program is needed. Medicare is the federal program that provides health coverage for people who are 65 and older (Green, 2003). Although many assume that Medicare provides long-term care, these benefits are very limited and are not efficient enough to accommodate the much needed care services for older adults. For example, Medicare programs do not help pay for personal care services such as eating, dressing or using the bathroom, even though these “activities of daily life” are the most needed services for most seniors (Green, 2003).
I thought this was a great experience and opened my eyes to all the challenges individuals in wheelchairs have to face. Throughout the day, I noticed I had to go out of my way to find a path that was accessible for a wheelchair. Not only was it inconvenient, but at times it was physically challenging and required a lot of energy. The next day my arms were very sore. It was also difficult to navigate around the classroom, and I sometimes had to ask for assistance to move obstacles out of the way. A lot of the doors on campus were very heavy and made getting through the doorways a lot harder. Most of the time, I needed someone to hold open the door so I could get through to the other room. These experiences made me realize how important is it