COPING WITH EARLY ONSET OF DEMENTIA: A QUALITATIVE STUDY
1 Introduction
Many countries globally are faced with unprecedented demographic changes from high mortality and fertility to low mortality and fertility, giving rise to an ageing population. Population ageing is profound and enduring, and has major consequences and implications for all facets of human life. With a larger proportion of older people, one of the major concerns is health and health care. The health of older persons generally declines with age and some illness are more likely to be associated with older people. One of such illness is dementia. As the life expectancies of the general population have dramatically increased since the turn of the century, more and more people are at risk of developing a dementia (National Institute of Aging, 2000).
Dementia is affecting an increasing number of people every year. According to
Ferri et al. (2006), 4.6 million people throughout the world are diagnosed with dementia every year, and the number of people in Europe suffering from dementia will increase to 13 million in 2040; and Wimo et al. (2003) estimates that approximately 63 million worldwide will suffer from this illness by 2030. This has crucial implications since it is an illness that is often associated with long-term care (LTC) in its later stages. However, while long-term care is an important consideration, the quality of life and how people with dementia cope with the illness are also of much concern but unfortunately less dealt into. Dementia can undermine a person’s self-worth and esteem, and affects most aspects of daily living (Preston, Marshall, & Bucks, 2007) affecting one’s quality of life (QOF).
Traditionally, research into dementia has hitherto do...
... middle of paper ...
...35-341.
SABAT, S. R. 2002. Epistemological Issues in the Study of Insight in People with Alzheimer’s Disease. Dementia, 1, 279-293.
STEEMAN, E., DE CASTERLÉ, B. D., GODDERIS, J. & GRYPDONCK, M. 2006. Living with early-stage dementia: a review of qualitative studies. Journal of Advanced Nursing, 54, 722-738.
SUGARMAN, J., CAIN, C., WALLACE, R. & WELSH-BOHMER, K. A. 2001. How Proxies Make Decisions about Research for Patients with Alzheimer's Disease. Journal of the American Geriatrics Society, 49, 1110-1119.
WALD, D. S. 2004. Bureaucracy of ethics applications.
WHO. 1993. The ICD-10 Classification of Mental and Behavioural Disorders: Diagnostic criteria for research. In: WHO (ed.). Geneva: World Health Organisation.
WIMO, A., WINBLAD, B., AGUERO-TORRES, H. & VON STRAUSS, E. 2003. The magnitude of dementia occurrence in the world. Alzheimer Dis Assoc Disord, 17, 63-7.
In most facilities an initiative lifestyle has been organized to give people with dementia a voice in how and where they are cared for (White). This is how things should be everywhere in the world when it comes to people with dementia. People affected by this disease don’t need people to tell them what to do or make decisions for them, they need the freedom to do it themselves so they don’t give up. Although incapacity is common, many persons with dementia are capable of making their own medical and research decisions (Kim, Karlawish, and Caine). At the early stages of dementia, a will needs to be made so medical wishes can be granted. When people are given the freedom of choice, they are much happier, they live longer, and they have a better attitude about the disease they are suffering from. Individuals that get dementia did not get it by choice, but they live through it day by day with strength and the ability to live
Lisa Genova, the author of Still Alice, a heartbreaking book about a 50-year-old woman's sudden diagnosis of Alzheimer's disease, graduated valedictorian from Bates College with a degree in Biopsychology and holds a Ph.D. in Neuroscience from Harvard University. She is a member of the Dementia Advocacy, Support Network International and Dementia USA and is an online columnist for the National Alzheimer's Association. Genova's work with Alzheimer's patients has given her an understanding of the disorder and its affect not only on the patient, but on their friends and family as well (Simon and Schuster, n.d.).
Dementia is a disease which causes mental debility and affects one’s way of intelligent, attentiveness, recollection and problem-solving (NHS, 2013). As a result of dysfunction of brain cells in some parts of the brain it affects the thinking process then dementia occurs and it usually comes with age (Ibid). It is estimated that 560 000 people suffer from dementia in England and as a result the NHS and Social Care spend about 3.3billion (National Audit Offices)
The ICD-10 Classification of Mental and Behavioural Disorders: Clinical Descriptions and Diagnostic Guidelines. Geneva: World Health Organization, 1992. Print.
According to WHO – World Health Organisation “there are 47.5 million people affected by Dementia worldwide and there are 7.7 million new cases every year”
Dementia is a pertinent public health issue in Australia. Whilst there are various types of Dementia, they all significantly impact an individual’s quality of life. The consequences of Dementia extend to carers and family and this, together with increasing prevalence, inconclusive and probable preventive measures and absence of a cure, indicates the need for further research, to enable Australia to combat the significant public health issue that is Dementia.
Informal supports, such as aid for housekeeping and running errands, are crucial to maintaining the lifestyle of individuals with Alzheimer’s in the community; however, the disease’s erosion of physical, cognitive, and communicative abilities often creates tremendous strain for family caregivers. Individuals and family caregivers dealing with Alzheimer’s often experience increasing social isolation as the disease’s progression undermines both mobility and the capacity for meaningful and appropriate engagement with the community (Banerjee et al., 2003). A number of studies have documented the physical and mental health costs borne by unsupported caregivers, and the link between caregiver stress and the institutionalization of their ill family members (Andren & Elmstahl, 2005; Banerjee et al., 2003). Taken together, the stress and isolation of dealing with Alzheimer’s disease undermine the health and quality of life of everyone involved, eventually precipitating institutionalization.
Dementia is common among a large population of elderly people. The disease affects not only the individual diagnosed, but also the caregivers that work towards making their life comfortable in the end. Understanding and learning about the disease is crucial in helping those that experience or live with someone who has dementia. The services and support that are currently in affect for elderly people with dementia and the caregivers is poor, and ineffective because of the lack of research and information on the topic.
Nerney, C. (2014, April). Dementia. Lecture conducted from Massachusetts’s College of Liberal Arts, North Adams, MA.
The Diagnostic and Statistical Manual of Mental Disorders (DSM) has been used for decades as a guidebook for the diagnosis of mental disorders in clinical settings. As disorders and diagnoses evolve, new versions of the manual are published. This tends to happen every 10 years or so with the first manual (DSM-I) having been published in 1952. For the purpose of this discussion, we will look at the DSM-IV, which was published originally in 1994, and the latest version, DSM-5, that was published in May of 2013. Each version of the DSM contains “three major components: the diagnostic classification, the diagnostic criteria sets, and the descriptive text” (American Psychiatric Association, 2012). Within the diagnostic classification you will find a list of disorders and codes which professionals in the health care field use when a diagnosis is made. The diagnostic criteria will list symptoms of disorders and inform practitioners how long a patient should display those symptoms in order to meet the criteria for diagnosis of a disorder. Lastly, the descriptive text will describe disorders in detail, including topics such as “Prevalence” and “Differential Diagnosis” (APA, 2012). The recent update of the DSM from version IV-TR to 5 has been controversial for many reasons. Some of these reasons include the overall structure of the DSM to the removal of certain disorders from the manual.
Introduction This assignment critically discusses dementia, a widespread disability among older adults today. It provides an introduction to dementia and analyses its prevalence in society. The various forms of dementia are elaborated with descriptions of dysfunctions and symptoms. Nursing Assessment and Interventions are provided in the further sections which discuss actions nurses should take while evaluating patients and treating them.
Diagnostic and statistical manual of mental disorders: DSM-IV-TR. (4th ed.). (2000). Washington, DC: American Psychiatric Association.
“Difficult, depressing, and tragic” are a few of the descriptions generally associated with illness. Those who suffer from dementia, especially, undergo a realm of these characterizations. With this adversity in mind, most people generate a basic understanding based on education rather than personal experience. It is this preconception that can prevent us from gaining a true insight of one’s reality.
Dementia is a major neurocognitive disorder that interferes with the independence of the elderly by inhibiting memory and thinking skills. Fifty to eighty percent of dementia cases constitute of Alzheimer’s diagnoses; consequently Alzheimer’s disease is the most common type of dementia and currently affects 5.2 million Americans. Most of these cases are patients above the age of 65 and by 2050; 13.8 million Americans in total will suffer Alzheimer’s due to aging of the general population, specifically the baby boomers. Total cost to society ranges from $157- $215 billion (Associated Press). Some would assume the cost of Alzheimer’s to be incurred by pharmaceuticals or medical costs, however RAND Corp suggests dementia cost to society is from care rather than treatment. Therefore, assistance provided by informal providers and directs caregivers incur a majority of the financial and social cost. Currently, the workforce does not have the capacity or training to care for these unique patients; the delivery system needs to address Alzheimer’s as the population ages and more and more fam...
Dementia is an organic brain syndrome which results in global cognitive impairments. Dementia can occur as a result of a variety of neurological diseases. Some of the more well known dementing diseases include Alzheimer's disease (AD), multi-infarct dementia (MID), and Huntington's disease (HD). Throughout this essay the emphasis will be placed on AD (also known as dementia of the Alzheimer's type, and primary degenerative dementia), because statistically it is the most significant dementing disease occurring in over 50% of demented patients (see epidemiology).