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Being a parent of a child with a disability
Being a parent of a child with a disability
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Chronic illness is any disorder in child that persists over a long period and affects the physical, emotional, intellectual, and social functioning. Different chronic illnesses bring different concerns and impact on the child and family in different ways. When an illness is diagnosed in early stage, the whole family system is affected due to many reasons. The family needs to adapt their life style according to the child’s needs and support: like restrictive diet, routine medication, and frequent hospitalization to maintain a balanced family functioning. Parents, play different roles during different phases of child’s illness. Children with disabilities and special health care needs have more health care expenses. “Long term planning and resource …show more content…
“A family’s physical, emotional, and financial resources may be severely taxed as they attempt to cope with the effects and limitations imposed by a child’s long- term condition” (Deiner, 2013, P.361). When one of the parents may not be able to work, and need to stay at home to take of the child every day, it may cause stress due to low income, and the expense of the medical treatment and cost. Mothers seems to have the most stress, they may become overly concerned about the child’s daily activities and managing the rest of the family and may become frustrated and …show more content…
This child used to go for a treatment every after one month and was given intensive supportive care such as blood transfusion. She was also facing a lot of infectious complication and most of the time, she would be in the cancer centre at the hospital with a pediatric supportive care facility. Her families faced a lot of financial problems and were depressed emotionally as the child gets more severe. After few months of treatment, she died at the age of fifteen in hospital. “Chronic leukemia progresses more slowly, but it is less amenable to cure” (Deiner, 2013, P.368). It it also written in the text that “Cancer is one of the number one disease killer between infancy and age fifteen” (Deiner, 2013, P.368). It was an sad experience for everyone in the school and for their family members. I believe that in this situation it necessary to give counseling for the parents to change their depression in to a positive
Stress plays a vital role in a person’s overall health. One of the non-medical problems of Katy’s Adams case study is related to denial of child care services because she was hospitalized and was unable to
Also, the whole family needs to come to term with the health condition, make change in priorities and schedule, and keep the family. For example, it can be much more stressful for a young or a newly married couple because they may have more experience to overcome life's difficulties. As a result, as with individual maturation, family development can be delayed or even revert to a previous level of functioning (Hockenberry, p 762.) Therefore, health care providers need to apply family development theory while planning care for a child and family with chronic health condition. Indeed, family centered care should be a part of that intervention. Parents and family members have huge and comprehensive caregiving responsibilities for their chronically ill child at home or at hospital. Moreover, the main goal taking care of chronic ill child is to “minimize the progression of the disease and maximize the child’s physical, cognitive, psychological potential” (Hockenberry, p 763). Therefore, it is essential to family being part of the child care to give highest quality of care. On the other hand, we are as a part of the health care provider need to give attention to all
... the context of chronic illness: a family health promoting process. Journal of Nursing and Healthcare of Chronis Illness 3, (3), 283-92.
Primary caregivers are given an opportunity to take care of their loved ones; however, this job comes with a lot of stress and its consequences (Tsai, 2003). Primary caregivers take care of those with a chronic illness such as a family member or friend, are given a task that is so immense that it induces a lot of stress. In the previous decades, many research articles have developed studies which focused on stressors that were associated with the task of being the primary caregiver; yet, a theory surrounding this topic has not been developed until the early 2000s. Tsai (2003) developed the Theory of Caregiver Stress based on the Roy Adaptation Model to identify the caregiver’s response, perceptions, and adaptations to the stress and burden that primary caregiver’s experience.
Quality of life can vary from person to person and different factors can impact the quality of health such as an illness. A medical condition may impact a person and/or their family’s life moderately or severely. Thus, in some situations may involve case management to help organize the support and services that is necessary for the patient and/or their family. In the case of Henry, he was diagnosed with hepatitis C and cirrhosis in which it impacted various aspects of his and his family’s life. Hepatitis C is an infection that can be transmitted through blood and cirrhosis is the final stage of hepatitis C in which the liver is not functional. As a result, there are limited options for Henry because of the severity of his illness; thus, a case manager may be needed to help identify the comprehensive needs and organize the resources for Henry and his family, so they can receive the appropriate care. Due to the seriousness of a medical condition, the patient and their family will have a complex collection of needs that must to be
Stress and situational depression are seen as just a part of life. As people grow and experience life they encounter events that trigger stress and signs of depression. These events can include changes in the professional world, death, and academics. Changes in mood such as these are temporary, and are pretty common. Aside from these normal occurrences actual depression, or clinical depression, is seen in 1 in 10 Americans. Clinical depression is a mental illness that that can prohibit normal daily functioning. In this assignment I will examine two forms of clinical depression, unipolar, and bipolar depression.
The uncertain nature of chronic illness takes many forms, but all are long-term and cannot be cured. The nature of chronic illness raises hesitation. It can disturb anyone, irrespective of demographics or traditions. It fluctuates lives and generates various inquiries for the patient. Chronic illness few clear features involve: long-lasting; can be managed but not cured; impacts quality of life; and contribute to stress. Chronic illnesses can be enigmatic. They often take considerable time to identify, they are imperceptible and often carry a stigma because there is little sympathetic or social support. Many patients receive inconsistent diagnoses at first and treatments deviate on an individual level. Nevertheless, some circumstances require
There are many ways to categorize illness and disease; one of the most common is chronic illness. Many chronic illnesses have been related to altered health maintenance hypertension and cardiovascular diseases are associated with diet and stress, deficient in exercise, tobacco use, and obesity (Craven 2009). Some researchers define the chronic illness as diseases which have long duration and generally slow development (WHO 2013); it usually takes 6 month or longer than 6 month, and often for the person's life. It has a sluggish onset and eras of reduction for vanishing the symptoms and exacerbation for reappear the symptoms. Some of chronic illness can be directly life-threatening. Others remain over time and need intensive management, such as diabetes, so chronic illness affects physical, emotional, logical, occupational, social, or spiritual functioning. Chronic diseases, such as heart disease, stroke, cancer, chronic respiratory diseases and diabetes, all of these diseases are the cause of mortality in the world, representing 63% of all deaths. So a chronic illness can be stressful and may change the way a person l...
L.M. is a strong, single mother who takes great pride in raising her son and rarely asks for help. She welcomed me into her home where a relationship was built that helped me to encourage the family and guide them into reflecting on their own personal health problems. A family care plan was built on relevant nursing interventions and outcomes to help direct the family in improving their physical and psychological wellbeing. These interventions were gladly accepted by L.M. and very easily implemented into her and her son’s life. I am very appreciative of the time this family allowed me to spend with them and am confident that they will continue to be a very loving and healthy
I interviewed a woman who has a child with special needs. The child is now in kindergarten. The mother reported having a normal pregnancy with no complications. This was the second child for the mother, who has another child who was five years old at the time. The mother disclosed that during the pregnancy, she was in the process of separating from the child’s father and that this caused a moderate level of stress. At the time of the pregnancy, the mother was also working full time as a waitress in a local restaurant. The mother reported that her job required her to be on her feet for long periods of time. She was able to work until around a week before her child was born. The mother reports that the child was born around two weeks early but that labor was easy and the child was born healthy.
In pediatric healthcare settings, child life specialists typically provide support and facilitate open communication to patients, siblings, and families regarding the topics of life-threatening illnesses and the potential of death. Unfortunately, in the adult healthcare world, child life services are not always readily available by consultation and therefore, families with children sometimes struggle to discuss a parent’s life-threading illness and potential death (Sutter & Reid, 2012). In adult healthcare, the adult interdisciplinary palliative medicine team may feel unprepared, or even uncomfortable, in facilitating open communication with children—even though this aids in coping, and reduces anxiety, depression, and behavior problems (Sutter
A child with leukemia will not have the same physical development as a healthy child. Around the ages from 6-8, children begin to slowly gain height and weight. The child with leukemia may grow slower and most likely lose weight, instead of gaining it. Another milestone children at that age go through is self-conscious emotions. The child may feel self-conscious because they look and live very differently from their peers. This may cause them to feel emotionally upset. Peers who are unaware of their diseases my tease and bully the child, which causes them emotional
"Coping Interventions for Parents of Children Newly Diagnosed with Cancer: An Evidence Review with Implications for Clinical Practice and Future Research.(Report)." - Pediatric Nursing. N.p., n.d. Web. 11 Mar. 2014.
The Theory of Caregiver Stress was a significant breakthrough for the reasoning of why caregivers are so deeply affected by this job. “The Theory of Caregiver Stress was derived from the Roy Adaptation Model to use as basis in understanding the relationships among caregivers and the stress faced when caring for a chronically ill relative” (Tsai, 2003). The Theory of Caregiver stress is a middle-range theory used to predict the outcome for stress and other various side effects (Dobratz, 2011). These adverse effects are predicted by: Demographic Characteristics, Burden in Caregiving, Stressful life events, Social Support and Social Roles. Also, because of the multitude of different scenarios and background for both the patient and the caregiver, these categories are necessary to compare and effectively use the results. The theory makes four main assumptions regarding adaption: “environmental change; the caregivers’ perceptions will determine how they will respond to the environmental stimuli; the caregivers’ adaptation is a function of their environmental stimuli and adaptation level, and lastly the caregivers’ effectors are results of chronic caregiving such examples include marital satisfaction and self-...
The problem not only affects the family’s life but it also affects the child’s ability to learn and be productive at school. Children requires a lot of attention and love on a daily basis, however, having a child that has a disability requires extra attention and love because they are trying to understand the world through a different set of lens. This could become a problem especially if there are multiple children in the household. In often cases, the amount of attention that the parents give to the child in need obstruct the family dynamic because of the pa...