patient values and preferences

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Source of values and preferences
To operationalize this question, we divided values and preferences into following levels based on their sources:
1. Utilities or patient values, which can be further divided into:
a. Utilities or patient values from different measurement techniques including standard gamble, time trade off, rating scales;
b. Multi-attribute utility, e.g. utility based on Health Utility Index (HUI);
c. Mapping results based on Health-Related Quality of Life Measurement.
2. Direct Choice
3. Health States Averseness Measurement.
4. Qualitative preferences.
Utilities or patient values measured based on instruments
Different techniques have been developed to measure patient values and utilities. The three most widely used techniques to measure directly the individual preferences for health outcomes are the rating scale and its variants (e.g., visual analogue scale (VAS), feeling thermometer, etc.), the standard gamble, and the time trade off (TTO). [10,11] According to the response method and whether the measurement deal with uncertainty or not, the measurements could be divided into different categories (see Table 1).
Table. Different measurement of patient preference [12]

Response Method Question framing
Certainty (value) Uncertainty (utility)
Scaling Rating scale
Visual analogue scale choice Time Trade-off
Paired comparison
Equivalence
Person trade-off Standard Gamble

Rating scale and its variants
Rationale
Rating scale is a measurement based on psychometric theory and it consists of a single line. Respondents are asked to place health state on the line to reflect their perceived values of different health states. Usually, researcher would ask patients to score each outcome on a scale with the anchors 0 (death o...

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...ore the variation and reasons of values and preferences in decision making process. The example of qualitative narrative preference was Borres et al reported nasal sprays were not used daily by patients because their use was inconvenient and embarrassing.[32] Cronin and colleague used a purposive sample of 22 partially dentate patients to gather information on patient preferences for the partially dentate management in Ireland and they concluded that “patients are likely to seek a service based on conservation and restoration of missing teeth by fixed prostheses”. They also revealed the factors related to the increasing expectation.[33]
Conclusion
Taking patient values and preferences is essential in healthcare decision making. A methodologically rigorous and consistent securitize on what information we should gather and how to interpret the information is needed.

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