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Essays on ethical research
The importance of ethics in research
Essays on ethical research
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1. Informed consent- The words “informed consent” are only mentioned twice in the ACJS code of ethics. Specifically, the code states that “informed consent should be obtained when the risks of research are greater than the risks of everyday life.” It is also included that in situations where individuals are illiterate, under correctional supervision, minors, have low social status, are under judicial supervision, have diminished capacity, are unfamiliar with social research or otherwise occupy a position of unequal power with the researcher, culturally appropriate steps should be taken to secure informed consent.
Confidentiality- According to the ACJS ethics code, “subjects of research are entitled to rights of personal confidentiality
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The American Anthropological Association (AAA)
Informed Consent- According to the American Anthropological Association (AAA), informed consent is a complicated process. Their Statement on Ethnography and Institutional Review Boards adopted by the AAA Executive Board in June of 2004 states that informed consent has three components: communication of information, comprehension of information, and voluntary participation. The researcher should inform potential participants of the procedures of research and purposes for it, the risks and benefits of the study, and how their information will be protected and stored.
Confidentiality- In regards to confidentiality, the AAA Code of Ethics states that “Anthropological researchers have primary ethical obligations to the people, species, and materials they study and to the people with whom they work,” and are cautioned to “do everything in their power to ensure that their research does not harm the safety, dignity, or privacy of the people with whom they work, conduct research, or perform other professional activities” (AAA). To this point one can see that it is expected for information that is obtained to be protected in order to ensure the safety of the subjects of the
Those who were affected by the testing in hospitals, prisons, and mental health institutions were the patients/inmates as well as their families, Henrietta Lacks, the doctors performing the research and procedures, the actual institutions in which research was being held, and the human/health sciences field as a whole. Many ethical principles can be applied to these dilemmas: Reliance on Scientific Knowledge (1.01), Boundaries of Competence (1.02), Integrity (1.04), Professional and Scientific Relationships (1.05), Exploitative Relationships (1.07, a), Responsibility (2.02), Rights and Prerogatives of Clients (2.05), Maintaining Confidentiality (2.06), Maintaining Records (2.07), Disclosures (2.08), Treatment/Intervention Efficacy (2.09), Involving Clients in Planning and Consent (4.02), Promoting an Ethical Culture (7.01), Ethical Violations by Others and Risk of Harm (7.02), Avoiding False or Deceptive Statements (8.01), Conforming with Laws and Regulations (9.01), Characteristics of Responsible Research (9.02), Informed Consent (9.03), and Using Confidential Information for Didactic or Instructive Purposes (9.04), and Debriefing (9.05). These particular dilemmas were not really handled until much later when laws were passed that regulated the way human subjects could be used for research. Patients
Furthermore, these doctors had no legal or ethical codes to conduct experimentations or research on African Americans. For example, during 1998, “172 employees, all but one of them black, sued Lawrence Berkeley Laboratory when they learned that they had secretly been tested for syphilis, pregnancy, and sickle-cell trait without their knowledge that the blood and urine they had supplied during required physical examinations would be tested…” (314). This indicates that there was no consent from these blacks and scientists where secretively testing immunities for sickle-cell on them without any permission whatsoever. The release of this experiment was against the Americans with Disabilities Act and these researchers had no right to release information without the patient’s consent. Furthermore, experiments that had no patient’s consent varied from blisters “to see how deep black skin went” to threatening surgeries, sterilization, inoculations, and not tested pharmaceuticals (54). Without consent, all experiments are considered as unethical. A patient’s consent is important because it is huge determination of privacy and respecting the patient’s wishes. Without any consent, it is indicating that patient’s do not have rights about their own privacy, which was against the law during colonial times and in present days. Some ethical guidelines include the right to withdraw from the study
...ion, to help their subject as with Chagnon and Kaobawä; this could be something as minimal as offering a ride to providing financial rewards for their help. However, this may raise the ethical question of involving oneself in a situation and its effect on the study. Moreover, as demonstrated by Sterk, engaging the subject in a two-way dialogue – as opposed to a formal, questionnaire-based conversation – usually proves beneficial for the study because it lets the subject feel like they have something substantial to offer, like an opinion that is valued. Another aspect that I found intriguing in Sterk’s case is removing oneself from the field; an anthropologist must be able to find a balance to not let emotional baggage of a case interfere with their own life but keeping a specific part of it to emotionally engage with the subject during the process of the research.
1. Capp, Marshall B. "Ethical and Legal Issues in Research Involving Human Subjects: Do You Want a Piece of Me? -- Kapp 59 (4): 335 -- Journal of Clinical Pathology." BMJ Journals. J Clin Pathol, 18 Jan. 2006. Web. 11 Feb. 2012.
During the process of research, professionals collect data or identifiable private information through intervention or interaction. While this is a vital part of the scientific and medical fields, every precaution must be taken by researchers to protect the participants' rights. Ethics, outlined by the Belmont report; requirements, described by the Department of Health and Human Services (DHHS); and regulations, laid out by the Food and Drug Administration (FDA) are verified by an Institutional Review Board (IRB). This procedure assures that all human rights are safeguarded during the entire research process.
In America, the legal age to sign off on any medical consent is 18 years of age. Seventeen year olds should be able to compose their own medical decisions, and sign off on their own medical consents. Power should land in their hands, accompanied by the professional advice of a doctor. It is your body, be compelled to fabricate a decision without having to have your parent’s signature.
The intense stimulant lysergic acid diethylamide (LSD) can briefly possess the mind of an individual who ingests it. As a result of its intensity and capability to open the "entryways of recognition," LSD could be violent to the psyche (Baker, 1999). It can seize the user's brain, tenderly uncovering life's dormant truths, or it can turn angry, decreasing the user to a state of complete panic. Obviously, LSD is not to be taken carelessly. This makes dosing an unknowing individual with it, particularly one who isn't familiar with LSD's properties, an especially frightful act. An individual unacquainted with LSD and completely unaware they had been dosed could be brought to the edge of mental breakdown.
The world of anthropology is tightly woven into research of humans and their cultures. One of the most important principles of the Code of Ethics of the American Anthropological Association (AAA) is found in Part III, Section A, Number 1: “Anthropological researchers have primary ethical obligations to the people, species, and materials they study and to the people with whom they work.” (American Anthropological Association, 2009) This main principle helps to guide social scientists through a maze of ethical dilemmas such as if and how the research itself may harm or otherwise impact those with whom they are studying. While the purpose of the research may be to gain knowledge of the plight of a certain individual or group of individuals, by the extension of the sharing of this knowledge the person or persons being studied may draw unwanted attention. By utilizing the Code of Ethics, the framework has been established so that the researcher is guided “to consult actively with...
Ethics refers to the values and customs of a community at a particular point in time. At present, the term ethics is guided by the moral principles that guide our everyday actions. These moral principles guide the researcher into deciding what is ‘right’ or ‘wrong’. The foundation of medical ethics is governed by two philosophical frameworks that are deontology, and utilitarianism. However ultimately the ethics committees need to balance the risks, and benefits for the participants and the community associated with the particular research proposal. This balance is quite important as the well being of participants is at risk.7
Looking beyond the Nuremberg Code and applying it to modern medical research ethics, there are many challenges that it poses. Many have argued that the Code tries to provide for all unforeseen events, which restricts the researcher by requiring him to anticipate every situation, demanding the impossible. The most important contribution of the Code is the first principle, which says that voluntary consent of the human subject is absolutely essential. The subject involved should have legal capacity to give consent, should have free power of choice, as well as sufficient knowledge and comprehension of the experiment. This restricts that populations upon which some experiment may be conducted, since many do not have “legal capacity”. For instance, studies of mental illness and children’s diseases have been curtailed because neither of these populations has the legal capacity to give consent. Another group of people, prisoners, are never really able to give voluntary consent since they might be enticed by financial rewards, special treatment, and the hope of early release in exchange for participating in the human experimentation projects. British biostatitcian Sir Austin Bradford Hill also questioned whether it was important to inform a research subject who was receiving a placebo since it does...
In conclusion, obtaining informed consent is a vital part of respect for the patient and safeguarding of self-determination. The consent to participate in research or treatment should be informed, comprehensible, and free of coercion. There is not a clear black and white answer because no matter what is done to assure informed consent there is always a moment of doubt on the end of the patient as to whether what is going to take place is fully understood and their true wishes honored.
For ethical issue, informed consent form will be taken from all participants. Their information will be kept confidential and anonymous. The consent form will also include description of the study, its purpose, and permission to withdraw from the study at any point of time, information about the researcher, and their signatures on that form. The survey will be on voluntary participation.
The article titled “Contemporary Ethical Analyses: A Shortfall in Scientific Knowledge” describes the ethics through the public’s eye. One of the major ethical issues brought up is informed consent.
Privacy and confidentiality expectations in research are outlined in The Belmont Report through the principles of 1) Respect for Individuals
The American Anthropological Association 's (AAA) aim is to offer guidelines and promote education and discussion. American anthropologists do this often by speaking and interacting with individuals living and experiencing the culture. Truly understanding, learning, and becoming accustomed to a new cultural environment takes a significantly long period of time, perhaps even years of exposure to the culture in order to truly understand traditions, morals, and customs. For instance in the Shostak`s study on the !Kung people, it was important for the researchers to say words correctly, at appropriate times, and in a culturally accepted manner, in addition, in order to interview individuals, specifically women, the anthropologist would ask one to “enter work” with her and they would talk for an hour or a day, or over a long period of time, perhaps two weeks. When studying another culture, American anthropologists include host country colleagues in their research planning and when requesting funding, establish true collaborative relationships, include host country colleagues in dissemination, including publication, and they also ensure that something is given back to the host. When studying other countries, the process is done carefully and thoughtfully, in order to end the study with new information on a culture and to establish new connections