According to the Caregiver Action Network, an estimated 65 million Americans currently serve as caregivers for loved ones who are aging or disabled. This number is likely even higher, but many individuals decline to call themselves caregivers. For many, taking care of family in their time of need is the right and necessary thing to do. Whether they use the title or not, proving care for a loved one is no small task. In order to ensure the best quality of life for both caregiver and care recipient, it is necessary to understand what caregiving entails and the impact it has on day-to-day life. By definition, a caregiver is one who provides direct care to another. The actual services provided range from help with housework to assistance with …show more content…
Eldercare.gov can provide further guidance relating to long term care and future planning. Providing care for an older adult often unfolds into planning for the end of their life. This is a particularly difficult aspect of caregiving to address, but it is very meaningful for the care recipient. Many people have ideas about how they want to spend their final days, and they should be included in these decisions as much as possible. An advance healthcare directive, or living will, can be extremely helpful in planning out the end of a loved one’s life. If there is no living will in place, the caregiver and family members must make several decisions on the care recipient’s behalf. First, determine if care can continue taking place in the home, or if a medical facility is necessary. If a medical facility or assisted living arrangement is necessary, palliative care is one option to consider. Palliative care is administered by a team of medical professionals and is often covered by regular medical insurance. The goal of palliative care is to provide comfort through a holistic approach to medications, counseling, and possibly rehabilitation for those who are not terminally ill. For those who are terminally ill and believed to be within six months of death, hospice care can be provided either in the home or a facility. Hospice provides similar services to palliative care, but it relies more on the caregiver and a hospice nurse to provide comfort in the home. The family as a whole typically benefits from the counseling and spiritual support provided through hospice
Mollie is the patient in our case study. Mollie lives with her daughter and son in law, both in their 70’s. A home health aide assists Mollie five days a week for three hours each day. At age 94, Mollie is an older adult, considered to be part of a vulnerable population, at risk for hearing, visual and mobility deficits. This at risk population can experience changes in cognitive or physical status making the activities of daily living difficult to perform (Meiner, 2011). As people like Mollie age, gradually becoming less able to function independently, their grown children, potential caregivers, may be preoccupied with the demands of their own lives and not prepared to care for an older
A living will is a type of advanced health care directive, which states an individual’s wishes for health care treatment when he/she is terminally ill. Living wills are often applied to end-of-life decision making when patients are no longer deemed competent to direct care for themselves. The form of living wills can vary widely. But, most address whether or not to use life-prolong medical treatment such as CPR, respirators, and artificial nutrition and hydration. These documents can also contain information about the importance of quality of life for patients and can name a healthcare proxy to make medical decisions in their place. Having a living will allows individuals to state their
Hospice focuses on end of life care. When patients are facing terminal illness and have an expected life sentence of days to six months or less of life. Care can take place in different milieu including at home, hospice care center, hospital, and skilled nursing facility. Hospice provides patients and family the tool and resources of how to come to the acceptance of death. The goal of care is to help people who are dying have peace, comfort, and dignity. A team of health care providers and volunteers are responsible for providing care. A primary care doctor and a hospice doctor or medical director will patients care. The patient is allowed to decide who their primary doctor will be while receiving hospice care. It may be a primary care physician or a hospice physician. Nurses provide care at home by vising patient at home or in a hospital setting facility. Nurses are responsible for coordination of the hospice care team. Home health aides provide support for daily and routine care ( dressing, bathing, eating and etc). Spiritual counselors, Chaplains, priests, lay ministers or other spiritual counselors can provide spiritual care and guidance for the entire family. Social workers provide counseling and support. They can also provide referrals to other support systems. Pharmacists provide medication oversight and suggestions regarding the most effective
Roberto, K. A., & Jarrott, S. E. (2008, January). Family Caregivers of Older Adults: A Life Span Perspective. Family Relations , 100-111.
When you think of home care for a loved one, you want comfort and convenience with quality of life. A misconception of palliative care is that it is equivalent to hospice care, which concentrates on end of life. However, palliative care is now being offered to patients whether it begins early at diagnosis or throughout ongoing treatment. It is no longer limited to medical settings as more health care agencies are now offering it in home care. Think of palliative care as “comfort” care during any stage of illness.
Primary caregivers are given an opportunity to take care of their loved ones; however, this job comes with a lot of stress and its consequences (Tsai, 2003). Primary caregivers take care of those with a chronic illness such as a family member or friend, are given a task that is so immense that it induces a lot of stress. In the previous decades, many research articles have developed studies which focused on stressors that were associated with the task of being the primary caregiver; yet, a theory surrounding this topic has not been developed until the early 2000s. Tsai (2003) developed the Theory of Caregiver Stress based on the Roy Adaptation Model to identify the caregiver’s response, perceptions, and adaptations to the stress and burden that primary caregiver’s experience.
For many years our society and the media has placed an image of death in our heads, of a painful experience, one that is feared by everyone. Although death can be emotionally draining, also can be an uplifting experience. Providing comfort and love and the assurance that life will continue, is truly the biggest gift. Hospices are designated to provide sensitive support for people in the final phase of terminal illness. ). The typical hospice patient has a life expectancy of six months or less. Hospice care works to help the patient and family members to carry on an alter, pain-free life to manage other symptoms so that their last days may be spent with dignity and quality at home or in a home-like setting (http:/www.cmcric.org/homecare.html, 2000)
The care of patients at the end of their live should be as humane and respectful to help them cope with the accompanying prognosis of the end of their lives. The reality of this situation is that all too often, the care a patient receives at the end of their life is quite different and generally not performed well. The healthcare system of the United States does not perform well within the scope of providing the patient with by all means a distress and pain free palliative or hospice care plan. To often patients do not have a specific plan implemented on how they wish to have their end of life care carried out for them. End of life decisions are frequently left to the decision of family member's or physicians who may not know what the patient needs are beforehand or is not acting in the patient's best wishes. This places the unenviable task of choosing care for the patient instead of the patient having a carefully written out plan on how to carry out their final days. A strategy that can improve the rate of care that patients receive and improve the healthcare system in general would be to have the patient create a end of life care plan with their primary care physician one to two years prior to when the physician feels that the patient is near the end of their life. This would put the decision making power on the patient and it would improve the quality of care the patient receives when they are at the end of their life. By developing a specific care plan, the patient would be in control of their wishes on how they would like their care to be handled when the time of death nears. We can identify strengths and weakness with this strategy and implement changes to the strategy to improve the overall system of care with...
THOMAS, K. and LOBO, B., 2011. Advance care planning in end of life care. Oxford: Oxford University Press.
People should make prepared and well planned for the end of life, due to provide a detail plan that can reduce one pressure and have a quality of life in the future. Advance directives is an important plan for clients to have the communication process between the client, family and others different health care services. According to the Compassion and Support video on YouTube, 5 Easy Steps for Advance Care Planning, which help people be more understand themselves and how to solve their problems. The plan gives clients the opportunity to express their own personal care decisions feelings and their wishes since they have a conversation with their family and different social service departments. Through the discussion and listen, their family
Palliative care involves the holistic care to maintain and improve the quality of life of the patient and family during hospitalisation until the terminal stage. Palliation of care refers to the multidisciplinary approach of providing comfort and support for the terminally ill patient and family, thus has an important role in maintaining and improving the quality of life of the whole family. Chronic illness such as cancer gives a physiologic and emotional burden for the patient and family. Education and counselling of the possible options as well as treatments for pain and other symptoms that could help alleviate anxiety, suffering and discomfort. Palliative care provides assistance for the family as a channel for communication between the
Caregiving is an essential and very necessary aspect of the medical field. However, caregiving is also one of the most strenuous and stressful positions that exists. The patients require constant supervision, precise care and an extremely high level of patience, tolerance and skill. Eventually, this type of care begins to take a physical, emotional and financial toll on the caregiver. Because of the adverse effects of this profession, the Theory of Caregiver Stress was developed to aid those working in this difficult profession.
A caregiver may be informal, such as family member or close friend or formal, such as a paid nurse. The publication Caregiver Stress (2015) states that in 2012, “36% of Americans provided care to another.” According to that statistic approximately 1/3 of the population can expect to provide informal care to another person and that rate is steadily increasing.
At times, the collectivist configuration can be more complex, most notably, when there are multiple family members, sometimes the role of primary caregiver may be relinquished to another family member, such as another adult child or from a spouse who is providing caregiving to an adult child, according to Jette, Tennstedt and Branch (1992). Occasionally, a different stimulus for discord arises when only one caregiver acts as the primary for an extended length of time, and others family members may become resentful (Keating, Kerr, Warren, Grace & Wertenberger, 1994), unfortunately, there can be a perceived biased pertaining to the distribution of caregiver responsibilities, which can compound caregiver stress according to Igersoll-Dayton, Neal,
Grandparents are sometimes required to care for grandchildren for a variety of reasons. It could be because of the death of parents, divorce, teen pregnancy, drugs, jail time, abandonment, mental health issues, military, or because of the involvement of social services due to abuse or neglect. More often than not, grandparents take on these new responsibilities as caregiver to their grandchildren to keep the children within the ...