The case of Henrietta Lacks has been a significant turning point in medical ethics, specifically regarding the practice of informed consent. Henrietta Lacks, a black woman, who sought medical attention at Johns Hopkins Hospital, had cancer cells sampled and tested without her knowledge or consent. This action raises many questions about principles in the medical field and human rights violations. Her story serves as a reminder of the exploitation of vulnerable people in medical research, especially during her time, and the need to ensure that individuals are allowed to make informed decisions about their bodies moving forward. Informed consent is a fundamental principle of medical ethics, established to respect individuals’ rights and control of their bodies. Informed consent, which originates …show more content…
Without her knowledge or consent, Lack’s cervical cancer cells were harvested and used for scientific research, which led to groundbreaking discoveries but also raised questions of morals and ethics. Her “HeLa” cells were distributed all over the country for other scientists to study, and her family didn’t find out until years later when asked to do an interview about Henrietta’s cells. The exploitation of Lacks’ cells without her consent is an evident violation of her human rights and highlights the long history of underprivileged groups being exploited for medical research. In response to cases like Henrietta Lacks’, there have been significant changes in the practice of informed consent within the medical profession. Institutions and officials who regulate the forms for hospitals have created and implemented stricter guidelines to ensure that individuals are sufficiently informed and empowered to make decisions about their healthcare. Informed consent forms and procedures have become standard practice, serving as a safeguard against exploitation and human rights
In this paper, I will analyze Rebecca Skloot’s book, The Immortal Life of Henrietta Lacks, concentrating on Henrietta Lacks’ life, as well as ethical controversies and sociological impact surrounding the HeLa cells. First, I will discuss the author’s main arguments and the type of evidence used throughout the paper. Then, I will summarize the life of Henrietta Lacks focusing on her diagnosis and treatment up to her death. After, I will describe the ethical debates that the author presented and how they relate to Henrietta Lacks and the HeLa cells. Finally, I will examine the impact HeLa cells have had on the society, specifically regarding the medical community, as well as the effect HeLa cells had on Henrietta’s family.
An abstraction can be defined as something that only exists as an idea. People are considered abstractions when they are dehumanized, forgotten about, or segregated and discriminated against. The scientific community and the media treated Henrietta Lacks and her family as abstractions in several ways including; forgetting the person behind HeLa cells, giving sub-par health care compared to Caucasians, and not giving reparations to the Lacks family. On the other hand, Rebecca Skloot offers a different perspective that is shown throughout the book. Rebecca Skloot’s book The Immortal Life of Henrietta Lacks describes the trials and tribulations the Lacks family has gone through because of HeLa cells and shows how seeing a person as an abstraction is a dangerous thing.
In the novel The Immoral Life of Henrietta Lacks by Rebecca Skloot, the author tells the miraculous story of one woman’s amazing contribution to science. Henrietta Lacks unknowingly provides scientists with a biopsy capable of reproducing cells at a tremendusly fast pace. The story of Henrietta Lacks demonstrates how an individual’s rights can be effortlessly breached when it involves medical science and research. Although her cells have contributed to science in many miraculous ways, there is little known about the woman whose body they derived from. Skloot is a very gifted author whose essential writing technique divides the story into three parts so that she, Henrietta
The Immortal Life of Henrietta Lacks by: Rebecca Skloot has a lot of themes, but one that is most relevant in my opinion is the racial politics of medicine. Throughout the chapters, there were examples of how Henrietta, being African American, prevented her from receiving the same treatment as the white woman sitting right next to her in the waiting room. The story begins with Henrietta going to Johns Hopkins Hospital and asking a physician to check a “knot on her womb.” Skloot describes that Henrietta had been having pain around that area for about a year, and talked about it with her family, but did not do anything until the pains got intolerable. The doctor near her house had checked if she had syphilis, but it came back negative, and he recommended her to go to John Hopkins, a known university hospital that was the only hospital in the area that would treat African American patients during the era of Jim Crow. It was a long commute, but they had no choice. Patient records detail some of her prior history and provide readers with background knowledge: Henrietta was one of ten siblings, having six or seven years of schooling, five children of her own, and a past of declining medical treatments. The odd thing was that she did not follow up on upcoming clinic visits. The tests discovered a purple lump on the cervix about the size of a nickel. Dr. Howard Jones took a sample around the tissue and sent it to the laboratory.
....S. Public Health Service advanced medical technology, it came at a high cost. A high cost that resulted in many African-Americans dead and a breach of trust for medical professionals. In the notable experiments of Henrietta Lacks, The Tuskegee Syphilis Men, and The Pellagra Incident, medical professions in no way protected the lives of these individuals. In fact, they used the medical advances discovered as a result of the human experimentations as a shield to mask the unethical decisions. Medical professionals targeted the African-American population and used their ignorance as a means to advance medical technologies. This in no way upholds the ethics that medical professionals should display. The Immortal Life of Henrietta Lacks vividly exhibits the how the United States Public Health Service used, abused, and ultimately destroyed the African-American community.
The Immortal Life of Henrietta Lacks tells the story of Henrietta Lacks. In the early 1951 Henrietta discovered a hard lump on the left of the entrance of her cervix, after having unexpected vaginal bleeding. She visited the Johns Hopkins hospital in East Baltimore, which was the only hospital in their area where black patients were treated. The gynecologist, Howard Jones, indeed discovers a tumor on her cervix, which he takes a biopsy off to sent it to the lab for diagnosis. In February 1951 Henrietta was called by Dr. Jones to tell about the biopsy results: “Epidermoid carcinoma of the cervix, Stage I”, in other words, she was diagnosed with cervical cancer. Before her first radium treatment, surgeon dr. Wharton removed a sample of her cervix tumor and a sample of her healthy cervix tissue and gave this tissue to dr. George Gey, who had been trying to grow cells in his lab for years. In the meantime that Henrietta was recovering from her first treatment with radium, her cells were growing in George Gey’s lab. This all happened without the permission and the informing of Henrietta Lacks. The cells started growing in a unbelievable fast way, they doubled every 24 hours, Henrietta’s cells didn’t seem to stop growing. Henrietta’s cancer cell grew twenty times as fast as her normal healthy cells, which eventually also died a couple of days after they started growing. The first immortal human cells were grown, which was a big breakthrough in science. The HeLa cells were spread throughout the scientific world. They were used for major breakthroughs in science, for example the developing of the polio vaccine. The HeLa-cells caused a revolution in the scientific world, while Henrietta Lacks, who died Octob...
The Belmont Report identifies three core principles that are to be respected when using human subjects for research. The three ethical principles are: respect for persons, beneficence and justice. In the case of Henrietta Lacks each of these fundamental components are violated. The consent that Henrietta provided was not sufficient for the procedures that were conducted.
To have something stolen from you is devastating and can change your life. But what if what was taken from you will save billions of human lives? In the book The Immortal Life of Henrietta Lacks by Rebecca Skloot, we see a woman named Henrietta had a biopsy of a cancerous tumor, and the cells from the tumor were able to live and grow outside of her body; and even better, the cells go on to find the cure for diseases such as polio. The catch is this: she signed a document giving her hospital permission to perform any medical procedure they find necessary to help her treatment, but she never gave specific permission for the cells in that biopsy to be tested and cultured. Now the big debate is over whether or not it was legal for her doctors
Henrietta Lacks is not a common household name, yet in the scientific and medical world it has become one of the most important and talked names of the century. Up until the time that this book was written, very few people knew of Henrietta Lacks and how her cells contributed to modern science, but Rebecca Skloot aimed to change this. Eventually Skloot was able to reach Henrietta’s remaining family and through them she was able to tell the story of not only the importance of the HeLa cells but also Henrietta’s life.
Most people live in capitalist societies where money matters a lot. Essentially, ownership is also of significance since it decides to whom the money goes. In present days, human tissues matter in the scientific field. Rebecca Skloot, author of The Immortal Life of Henrietta Lacks, shows how Henrietta Lacks’s cells have been used well, and at the same time, how they have been a hot potato in science because of the problem of the ownership. This engages readers to try to answer the question, “Should legal ownership have to be given to people?” For that answer, yes. People should be given the rights to ownership over their tissues for patients to decide if they are willing to donate their tissues or not. Reasons will be explained as follows.
Rebecca Skloot’s novel, The Immortal Life of Henrietta Lacks, depicts the violation of medical ethics from the patient and researcher perspectives specifically when race, poverty, and lack of medical education are factors. The novel takes place in the southern United States in 1951. Henrietta Lacks is born in a poor rural town, Clover, but eventually moves to urban Turner Station. She was diagnosed and treated for cervical cancer at Johns Hopkins hospital where cells was unknowingly taken from her and used for scientific research. Rebecca Skloot describes this when she writes, “But first—though no one had told Henrietta that TeLinde was collecting sample or asked she wanted to be a donor—Wharton picked up a sharp knife and shaved two dime-sized pieces of tissue from Henrietta's cervix: one from her tumor, and one from the healthy cervical tissue nearby. Then he placed the samples in a glass dish” (33). The simple act of taking cells, which the physicians did not even think twice about, caused decades
The story about Henrietta Lacks is the evidence that the ethics of medical processes need to be improved. For a long time, many patients have been victims of malpractice. Sometimes, the doctors still can do anything without the agreement from patients. Any medical institution needs to hold the integrity on any consent form that is signed by a patient. To summarize, the story of Henrietta Lacks could be the way to improve the standardization and equality of medical institutions in the future.
Imagine having a part of your body taken from you without your permission, and then having those cells that are a part of your body grow and are being processed in labs around the world and then ultimately being used for the highest of research. That is what happens to Henrietta Lacks. In the book, The Immoral Life of Henrietta Lacks, we see Henrietta Lacks and her families story unravel, the numerous hardships that they faced, and the shocking revelation that their relative cells were being used for research without her consent and theirs.
Nowadays, when patients are given consent forms, every step is explicitly stated so that there is no confusion or harm. All in all, Henrietta Lacks has contributed and made significant changes to the scientific, ethical, and political aspects of society.
What is privacy? Well, it’s the state or condition of being free from being observed or disturbed by other people. In terms of information, it is the right to have some control over how one’s own personal information is collected and used. This is a right that has been inherently protected by the U.S Constitution, agreed upon by the Supreme Court, and yet, issues around this very topic arise every day. In The Immortal Life of Henrietta Lacks, the author Rebecca Skloot, addresses this issue in her story of the women behind the infamous HeLa cells. Her story shows that although privacy is a right that is inherently protected by the law, situations of injustice can still occur. Examples of this in the book include when Henrietta’s cells were given to Dr. Gey without any consent from Day, the situation in which Mr. Golde’s spleen was sold without his permission, as well as when the Lacks family were recontacted and mislead about the reasons they were tested years after Henrietta’s death.