Reflection On Assisted Suicide

Family & Friends, I wanted to give an update on our week. I have not been able to reach out to many people individually because we have been very busy.

This past week Kiersten started to have seizures. She had no fever and they started completely out of the blue. She was having about two a day lasting anywhere from 15 seconds to 4 minutes. We checked into Choa on Wednesday and were admitted to the Er and than to the neurology floor after she had another seizure in the Er. On Thursday Kiersten had a MRI done that she was sedated for and the a 45 minute EEG. The MRI came up beautiful and ruled out any major things such as a tumor. The EEG came up good while the test was being performed. (The test is used to trigger a seizure so they could diagnose

exactly what kind of seizures she is having) As soon as they pulled the cords off and left the room I got Kiersten out of bed to head to the library in the hospital and she fell to the floor and had another seizure lasting about 30 seconds.

That is when the doctor made the call for us to stay another night so they could do a longer EEG to monitor her brain activity. The EEG was put back on again at 5 pm on Thursday and was taken off at 2 pm on Friday. Her EEG came back normal for the most part with the exception of a few little things. On friday the Doctor did diagnose Kiersten with epilepsy. I made the choice with the doctor to keep her off on anti seizure medication at this time until we can figure out exactly what kind of seizures she is having. We see no reason right now to medicate her if we can manage them in a safe way at home. Although we did not get all the answers we were hoping for in the hospital I feel much better about how to manage this and feel 1000 times more knowladagble about seizures and how to be prepared. So as of today we are on seizure #8. I

can say being cooped up with a almost three year old in a hospital room is AWFUL but Choa made the experience as nice as possible and we had AMAZING nurses.

Kiersten handled everything like a champ and made sure to let everyone she met in the hospital know that she also was a doctor herself just like Doc Mcstuffins.

The adjustment of having many more rules and hearing the word "No you can't do that I'm Sorry" or "You have to hold my hand" has been the hardest for her because last week she was aloud to roam the house as she pleased and was a very free spirit.

I am doing well my self and thank you everyone that has checked on me as well. It defitnally changes the way I go about everything. I feel like I can not take my eyes off of her for a second and am contanly thinking about the what Ifs. It's a very scary experience and life changing but doable.

I would love for everyone to keep Kiersten in you thoughts and prayers that every day is a good day and that we have many many seizure free days.

I also respectfully want to ask that no one share anything of this on there personal page. This is Kiersten's medical issue she will forever have to deal with and I would like the privacy to remain between close friends and

family.

I also would like to ask that right now no one send us any websites, information, or opions of treatments at the moment. It is very overwhelming to look at the internet because not everything pertains to Kiersten's case. I will reach out to you if I am seeking help or advice. I trust that Kiersten's team of Doctors have her best interest in mind.

I appreciate everyone's everyone's love support and concern very much. It was Kiersten and I's first week back at school and we both have some catching up to do. With that being said it is not personal if I can not get back to you right away we are just trying to get in our new groove the best we can. Again I love all of you!