Porphyria

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“Fierce pain, paralysis and sickness took over my body, for week’s doctors seemed to think I was either making it up, mad or anorexic. Eventually they discovered it was porphyria, and it was inherited from my father… We learned that antibiotics prescribed for a minor infection, had probably triggered it in my case, but after that, I generally suffered attacks in my pre-menstrual period. These attacks varied in severity, but the pain and vomiting were omnipresent… My weight gradually dropped, as I was unable to regain it in the short periods of time between attacks, which led me to an attack which left me almost completely paralyzed.” (Elizabeth, 2011)
Porphyria is a hereditary disease that only requires one parent to pass it on. Porphyria consists of eight different forms, but all of them have an abnormal accumulations of porphyrins,caused by heme, a part of red blood cells that gives them their color and carries oxygen(Drugs). The irregularities of heme affect the chemical Porphyrin, which gives the disease its name. Porphyria attacks the nervous and muscular symptoms. This can cause abnormal skin reactions to sunlight, as well as seizures, nausea, and other symptoms. People with porphyria usually must avoid staying in the sun without protection, and must keep stress levels low, as this can cause symptoms or an attack of porphyria.
Porphyria is caused when heme is disrupted. The synthesis of heme involves eight different enzymes, which creates eight different forms of porphyria. The disruption of heme causes porphyrin to build up in various spots around the body. It eventually causes problems in the liver, which will turn the urine dark. This is why most cases of porphyria have liver problems (American Porphyria Foundation).
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...utanea tarda like symptoms. As many as 5000 people reported having symptoms of blistering skin. In the original novel by Gaston Leroux, The Phantom of the Opera, it is believed that the phantom’s facial deformity is caused by porphyria (American Porphyria Foundation).
Porphyria is a serious disease that can leave people in severe pain, paralysis, or even death. However, if it is diagnosed and treated properly, it can be a manageable disease. Most of the deaths that occur are in those who don’t know they have it when they are exposed to alcohol, toxins, or changes in diet. However, people with this disease are able to learn and persevere through their condition and adapt to live comfortable normal lives. New research is allowing for new medicine to be developed that can limit the attacks people have. Tests are also being implicated to catch porphyria at earlier ages.

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