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Ethical issues with gene therapy
Moral and ethical issues gene therapy
Moral and ethical issues gene therapy
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Due to the fact that the field of biotechnology is very serious and potentially dangerous, rules must be set down in order to keep the research in check. The high risk research of genetic therapy needs guidelines that have to be followed in order to keep the study just. The articles that are discussed in this essay focus on ethical issues and ideas that should be followed in the field in order to keep research safe and valid.
In an article titled “The Ethical Implications of Gene Therapy” the group of advisers on Ethical Implications of Biotechnology of the European commission states issues and rules that should be abided by, along with beliefs on the direction of biotechnology. At its present stage, biotechnology focuses on serious diseases which are incurable at the moment, however through this research treatment for these diseases could be found. The group of advisers feel that there should be levels at which research should focus on, instead of jumping into it all at once. Basic research should be carried out prior to clinical trials, and then move on to biotechnology. This can be done by supporting research actions, organizing training and exchange programs or any other appropriate means. Gene therapy protocols require that ethical evaluation consists of processes assuring quality, transparency and efficiency without delays of treatment to the patients who need it. This is crucial because an inefficient, poor quality treatment could cost someone their life. The group also feels that gene therapy research should be restricted to serious diseases for which there is not a current treatment. Expanding research to other things could be done if a medical evaluation calls for it. Equal access should be assured to all researchers within the European Union, thus sharing information and helping to improve orphan drugs. This could also save time and money. In order to insure the public of what is going on, conclusions of evaluations should regularly be published to encourage public debate. The public is not usually informed much about genetic therapy and many people have the wrong idea about it. Should reports be published more often, there will be less public confusion and ridicule.
The article titled “Contemporary Ethical Analyses: A Shortfall in Scientific Knowledge” describes the ethics through the public’s eye. One of the major ethical issues brought up is informed consent.
When Seuss was in high school, his art teacher told him he would never draw realistically. After one art lesson, he walked out of the class and never returned. Ted went to Dartmouth College, where he was an editor for Jack-O-Lantern, the college humor magazine. After getting in trouble for drinking gin in his room, Ted began to draw and write under different pseudonyms, including Seuss. Seuss himself claims that he used the name for his humorous essays and drawings, saving the name Geisel for his serious novels (MacDonald, 2004, p. 3). When Seuss became a magazine cartoonist, he began signing his work “Dr. Theophrastus Seuss” in 1927. He shortened that to “Dr. Seuss” in 1937 after his writings in Judge magazine (MacDonald, p. 5), and that is how Ted Geisel became Dr. Seuss.
A person's individuality begins at conception and develops throughout life. These natural developments can now be changed through genetically engineering a human embryo. Through this process, gender, eye and hair color, height, medical disorders, and many more qualities can be changed. I believe genetically engineering a human embryo is corrupt because it is morally unacceptable, violates the child's rights, and creates an even more divided society.
Dr. Seuss was born in Springfield, MA on March 2, 1904 as Theodor Seuss Geisel (Dr. Seuss At Work). He attended Dartmouth College in Hanover, New Hampshire. He did his undergraduate work at Dartmouth; postgraduate, Oxford and Sorbonne( SV DO or C; S, DO or C) (Geisel, Theodor Seuss). Seuss became the editor-in-chief for Dartmouth’s Jack-o-lantern, the college’s humor magazine. It was now when he started signing his works with the pseudonym, Dr. Seuss. After his studies became too much to handle, he quit college and toured around Europe. When he returned home he began pursuing a career in cartooning (All About Dr. Seuss). He illustrated a collection of children’s saying called Boners. These sayings were not a huge success. He pushed for his original book, To Think I Saw it on Mulberry Street to be published seventeen times.
During the process of research, professionals collect data or identifiable private information through intervention or interaction. While this is a vital part of the scientific and medical fields, every precaution must be taken by researchers to protect the participants' rights. Ethics, outlined by the Belmont report; requirements, described by the Department of Health and Human Services (DHHS); and regulations, laid out by the Food and Drug Administration (FDA) are verified by an Institutional Review Board (IRB). This procedure assures that all human rights are safeguarded during the entire research process.
This paper will contain research done about foster care, including a brief history and progressing along to the system today. This research interested me because it is a professional career option after graduation. I found both positives and negatives about the foster care system that children and foster parents go through on a daily basis. As the paper progresses I will be explaining these positives and negatives in more detail. Throughout the paper I will be referencing different scholarly sources that explain foster care in different ways. Overall, this paper will show different aspects that the general public may never know about foster care.
“About two-thirds of children admitted to public care have experienced abuse and neglect, and many have potentially been exposed to domestic violence, parental mental illness and substance abuse” (Dregan and Gulliford). These children are being placed into foster care so that they can get away from home abuse, not so they can move closer towards it. The foster children’s varied outcomes of what their adult lives are is because of the different experiences they grew up with in their foster homes. The one-third of those other foster children usually has a better outcome in adult life than the other two-thirds, which is a big problem considering the high percentage of children being abused in their foster homes. Although, the foster care system has most definitely allowed children to experience the positive home atmosphere that they need there is still an existed kind of abusive system in the foster care program that is unofficial but seems to be very popular. Foster care focuses on helping children in need of a temporary stable environment; however, foster care can have negative impacts to the children and the people around them concerning the foster child going through the transition, the parents of the foster child, a new sibling relationship, and problems that arrive later influencing the foster child long-term.
Child welfare services should create a better environment in foster care homes. Children face mental and physical trauma every day in foster care homes like emotional distress, unstable mental health and surroundings, developmental delays etc. High trauma rates in children who currently reside in foster care or did, amounting to “one-half to two-thirds,” raises everyday (Dorsey, Burns, Southerland, Cox, Wagner, and Farmer 871). A nationwide social services policy on how to become a foster care parent or child should focus on the mental, emotional and physical state of the individual to decrease foster care abuse.
To many outsiders, the foster care system may appear to be a safe haven for those children that are abused or abandoned by their birth family. This is correct, but the system with which it is based, has many flaws. A background check is mandatory for all foster parents, but a test to see if a child 's temperament matches that caregiver 's parenting style, is not. Now, this is seen as a minor issue, but there is not enough evidence to support this. Plus, there are many other, much worse reasons, why the system is not perfect. Altogether, the foster care system and a multitude of its rules are flawed and may actually be negatively affecting foster children.
According to the International Foster Care Organization “Foster care is a way of providing a family life for children who cannot live with their own parents.”(2004) Foster care is supposed to provide temporary care while parents get help dealing with problems, or to help children or young people through a difficult period in their lives. Children will return home once their parents are able to provide a safe enviorment for them. However if parent are unable to resolve the issues that cause their child in foster care their children may stay in long-term foster care, some may be adopted, and others will move on to live independently. (IFCO, 2004) Foster care has been a problem for many years and although there have been many attempts to improve it; it there still seems to be negatively impacting
For years there have been an excessive number of children in and out of the foster system. Quite a few children have succeeded; however, other children have not. A few children have looked to drugs, alcohol and violence to cope with what they have gone through and/or what they are currently going through. A number of those children ended up in a juvenile detention center or prison for breaking the law. Foster parents are desperately needed to help these children succeed in life and make it through this terrible time.
The Human Genome Project is the largest scientific endeavor undertaken since the Manhattan Project, and, as with the Manhattan Project, the completion of the Human Genome Project has brought to surface many moral and ethical issues concerning the use of the knowledge gained from the project. Although genetic tests for certain diseases have been available for 15 years (Ridley, 1999), the completion of the Human Genome Project will certainly lead to an exponential increase in the number of genetic tests available. Therefore, before genetic testing becomes a routine part of a visit to a doctor's office, the two main questions at the heart of the controversy surrounding genetic testing must be addressed: When should genetic testing be used? And who should have access to the results of genetic tests? As I intend to show, genetic tests should only be used for treatable diseases, and individuals should have the freedom to decide who has access to their test results.
Foster care is the planned care for children who cannot live with their birth parents for a period of time (Emerson & Lovitt, 2003). Children in foster care may live with unrelated foster parents, a relative, in a group home, or in residential care. Children who are removed from their home and placed in foster care are often removed due to issues concerning abuse, neglect, parent-child conflict, or physical and/or behavioral problems (Trout, Hagaman, Casey, Reid, & Esptein, 2007). According to the Adoption and Foster Care Analysis and Reporting System (AFCARS, 2015), on September 30, 2014, approximately 415,000 children were in foster care in the United States; approximately 64% of these children were school-aged.
Foster care is supervised care for delinquent or neglected children usually in an institution or substitute home. There are many people involved upon placing a neglected child in the foster care system. The children are assigned a social worker who is responsible for a child to have a place to sleep every night. Although the government has this system set up to help children, there are a bountiful amount of flaws in the system, affecting the children in a negative way or circumstance. Due to “ageing out” adolescents are leaving their foster homes and are not able to become fully independent due to their lack of child development , emotional necessities , and lack of stability.
The foster care program has become such a huge thing worldwide. It can help to provide children homes and families which they would not be able to find otherwise. Foster care programs also offer temporary food, domestic care for children from birth to age eighteen. While programs laws and rules are different from state to state, typically foster care is used by children 's welfare services when a child is identified as having been orphaned, abandoned, abused, or neglected. At the same time though it has a negative impact. The foster care system hurts the structure of the family unit which has existed for centuries. Foster Care has become better and better as time goes on. Before, there would be people who scam the system and it was hard to
Informed consent is a very serious decision a patient has to make when it comes to their health and consenting to procedures that are believed to cure or treat their current health status. It is important to address the effectiveness of the role a physician play in the informed consent process assuring that the patient has given truly informed consent and what safeguards can be put in place to assure the patient is exercising informed consent. Informed consent is based on the fact that the person consenting is a rational individual that is aware of the action to which he/she is consenting. Allen and McNamara (2011) notes that "On the standard understanding, the important elements of informed consent are the provision of information, the voluntariness of the choice and the competence of the chooser to make the choice— so the potential research participant should be provided with information relevant to the decision to participate, they should be able to choose freely about their participation and they should be competent to decide.