Huntington's Disease and Its Ethics

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Huntington's Disease and Its Ethics

In “Genetics and Reproductive Risk: Can having children be immoral,”

L.M Purdy discusses the notion that the recent advances in

reproductive technology impose a moral obligation on individuals to

prevent the birth of “affected” babies that will not have a “minimally

satisfying life.” There are, however, several assumptions that the

author makes in reaching the conclusion that having “affected”

children is immoral.

The author makes the claim that people with Huntington’s disease are

unlikely to live a minimally satisfying life. It is known however,

that Huntington’s disease does not take any affect until 40-50 years

of age. Thus, those 40-50 years can easily be lived the same, without

the affects of the disease, as those individuals who are not affected

with Huntington’s disease. Just as those without the disease have a

satisfying life before the age of 50 so can those with Huntington’s.

Thus, there whole life is not doomed to be unsatisfying. If

questioned, many individuals would chose only 40-50 of a “good,

disease free” life than no life at all. When the author states that is

unacceptable to accept the risk of inheriting this disease with the

consent of the future child, the author fails to recognize that

essentially all actions performed by the surrogate mother are done

without consent. This includes drinking alcohol and smoking. While

these behaviors are harmful in large amounts, they are not monitored

by a third party nor have proven to cause enough damage in small

amounts so the life of the child would be unsatisfying. Thus, the

mother is accepting a risk on behalf of another, yet wh...

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... beliefs of society. If society imposed a law that it was immoral to

have children if you are extremely poor because u can not provide for

them and the child’s life wont be satisfying, one could argue that

with a little time the mother could move out of poverty and thus have

a “good” life, or that the child may find life satisfying without much

beyond basic necessities.

The author claims that mandatory testing will be beneficial because it

can help produce healthy children, yet assumes that all pregnant women

at risk will get tested. If testing becomes mandatory many woman who

avoid testing, either out of the fear of knowing if they have the

disease or that they will pressured into terminating the pregnancy,

many woman may avoid prenatal care all together, thus imposing more

health risks on the fetus and the mother.

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