g a conversation about hospice care is never an easy one. However, how you approach the subject could mean the difference between a fruitful conversation or something a little more difficult. It's not always as easy as putting yourself in the other person's shoes because until you are in that position, you won't know how you are going to feel until you are the one facing an end of life decision.
How to Begin the Conversation
There are a few things you need to know before you begin the hospice care conversation. Each person will deal with grief in their own way because death is an unknown; therefore, most people will feel fear at the very least. That means you have to be prepared for any possible reaction.
It's best to practice how you will
In this scenario, it's best to have this conversation early on and present it as an option for now or in the near future. You can start by telling your loved one you want them to be comfortable and live as long a life as possible and that hospice is a way to do that because it's possible they could still be with you for years to come. This helps to alleviate the fears and emotions that come with them having to face the end of their life. You can then explain that hospice is the best option when it comes to having caring, compassionate, skilled professionals who know how to deliver the best possible care for achieving a longer
Or they might just not want anyone around during such an emotional time when they would rather be alone. Whatever the reason, you will have to paint a picture of what this will mean for them. Explain that after a few hours, just like at any other time in their life, these people will feel like friends who just want to help. You might also explain that you can't be with them at all times to help them get out of bed, keep up with their medications, or to make sure they have all their needs met at any given moment. Then let them know how important it is to you that they are properly cared for and comfortable at all times because you want them to be around as long as
In What Dying People Want, Kuhl comments, "Dying involves choice"(xviii). People choose what they wear, what they do, and what they will eat on a day to day basis. Choosing how, when, or why sick people die is just like an everyday decision for them. This however, has not been accomplished by some individuals in this Country. Americans have the right of choice. When a patient communicates the desire to die, the inspection of acceptability for palliative care begins instantly. Inspections include evaluation of pain management, depression, anxiety, family burnout, spirituality and other observed issues (Baird and Rosenbaum 100). When working or living with an elder, never ignore the words "I want to die". If this is ignored, that person will not receive their wishes they deserve. Countries are starting to understand that people should be able to die if they choose, "In the United States there are assisted dying laws restricted to terminally ill and mentally competent adults" (Firth). The assisted dying law is only in Oregon, Montana, Washington, Vermont, and California. That is five states out of fifty states. This must be expanded to all fifty states because all individuals have the right of this law. In 2013, Vermont passed an "End of Life Choices" bill. This bill allows terminally ill people to get
Final Gifts, written by hospice care workers, Maggie Callanan and Patricia Kelly, includes various stories detailing each of their life changing experiences that they encountered with their patients. Hospice care allows the patient to feel comfortable in their final days or months before they move on to their next life. This book contains the information considered necessary to understand and deal with the awareness, needs, and interactions of those who are dying. Not only are there stories told throughout the book, there are also tips for one to help cope with knowing someone is dying and how to make their death a peaceful experience for everyone involved. It is important that everyone involved is at as much peace as the person dying in the
God tells his children, “He will wipe every tear from their eyes. There will be no more death or mourning or crying or pain, for the old order of things has passed away” (Revelation). Death is one of the most frightening and confusing times a person can go through. Watching a loved one pass away is also one of the hardest trials a person can experience. Many people assume that death is a time of pain and the only thing that they can do is mourn and watch their loved one fade away from the earth. This is wrong. There are ways that people can turn a bad situation to good. Dying doesn’t have to be painful and full of suffering. The County Hospice staff makes sure of this. The Hospice staff not only takes care of passing patients physically, but they also take care of the patients emotionally and spiritually. Hospice staff also plays a key role in helping families during the grieving process.
Charalambous, A. (2010). Good communication in end of life care. Journal of Community Nursing, 24(6), 12-14. Retrieved from EBSCOhost.
The decision to end a life is a difficult one no matter the situation presented. It stirs a great deal of emotions when thinking about a loved one choosing to die in situations where they are terminally ill. Death is a scary thought for most people, but we need to remember that it is just a fact of life, no matter how morbid it sounds. There is some dignity in ending a life for a patient is who terminally ill and suffering, although it may be a tough decision, it can sometimes be the right one.
Thanks in part to the scientific and technological advances of todays’ society, enhanced medicinal treatment options are helping people battle illnesses and diseases and live longer than ever before. Despite these advances, however, many people with life threatening illnesses have needs and concerns that are unidentified and therefore unmet at the end of life, notes Arnold, Artin, Griffith, Person and Graham (2006, p. 62). They further noted that when these needs and concerns remain unmet, due in part to the failure of providers to correctly evaluate these needs, as well as the patients’ reluctance to discuss them (p. 63, as originally noted by Heaven & Maguire, 1997), a patient’s quality of life may be adversely affected. According to Bosma et al. (2010, p. 84), “Many generalist social work skills regarding counseling, family systems, community resources, and psychosocial assessments are relevant to working with patients and families with terminal illness”, thereby placing social workers in the distinctive position of being able to support and assist clients with end of life decisions and care planning needs. In fact, they further noted that at some point, “most social work practitioners will encounter adults, children, and families who are facing progressive life limiting illness, dying, death, or bereavement” (p. 79).
Medical professionals are trusted by patients. Therefore, they must understand these distinctions and be prepared to speak clearly and honestly about the subject of death and illness. I think that they should communicate without giving false hope. I feel that this could be better accomplished by better equipping doctors to deal with the realities of terminal illness. This would require more training in the field of palliative medicine and geriatrics. Physicians should be trained how and when
On February 14th I spent a day doing something I never thought I would do in a million years, I went to hospice. I always thought I would hate hospice, but I actually didn’t mind it too much, it isn’t a job I see myself doing in the future but it is a job that I understand why people do it and why they enjoy it. During this observation I was touched by how much these nurses really seem to care for each of the patients that they have.
Hospice focuses on end of life care. When patients are facing terminal illness and have an expected life sentence of days to six months or less of life. Care can take place in different milieu including at home, hospice care center, hospital, and skilled nursing facility. Hospice provides patients and family the tool and resources of how to come to the acceptance of death. The goal of care is to help people who are dying have peace, comfort, and dignity. A team of health care providers and volunteers are responsible for providing care. A primary care doctor and a hospice doctor or medical director will patients care. The patient is allowed to decide who their primary doctor will be while receiving hospice care. It may be a primary care physician or a hospice physician. Nurses provide care at home by vising patient at home or in a hospital setting facility. Nurses are responsible for coordination of the hospice care team. Home health aides provide support for daily and routine care ( dressing, bathing, eating and etc). Spiritual counselors, Chaplains, priests, lay ministers or other spiritual counselors can provide spiritual care and guidance for the entire family. Social workers provide counseling and support. They can also provide referrals to other support systems. Pharmacists provide medication oversight and suggestions regarding the most effective
It’s hard for a family to go through this and the terminally ill want to save their families from as much heart break as they can.
It is found that nurses report that their most uncomfortable situations come with prolonging the dying process and some struggle with ethical issues by doing so (Seal, 2007). Studies have shown that implementation of the RPC program and educating nurses have increased the nurses’ confidence in discussing end-of-life plans (Austin, 2006). With confidence, the nurse is able to ask the right questions of the patient and make sure that the patient’s wishes are upheld in the manner that they had wanted, such as to not resuscitate or to make sure their spiritual leader is present when passing (Austin,
The purpose for this research study was to develop a communication strategy for family members of patients dying in the ICU by evaluating a format consisting of a proactive end-of-life conference and brochure to see whether the intervention could minimize the effects of bereavement for the families left behind. This research provided the family members with more opportunities to discuss the patient wishes, to express emotions, to alleviate feelings of guilt, and to understand the goals of care.
The care of patients at the end of their live should be as humane and respectful to help them cope with the accompanying prognosis of the end of their lives. The reality of this situation is that all too often, the care a patient receives at the end of their life is quite different and generally not performed well. The healthcare system of the United States does not perform well within the scope of providing the patient with by all means a distress and pain free palliative or hospice care plan. To often patients do not have a specific plan implemented on how they wish to have their end of life care carried out for them. End of life decisions are frequently left to the decision of family member's or physicians who may not know what the patient needs are beforehand or is not acting in the patient's best wishes. This places the unenviable task of choosing care for the patient instead of the patient having a carefully written out plan on how to carry out their final days. A strategy that can improve the rate of care that patients receive and improve the healthcare system in general would be to have the patient create a end of life care plan with their primary care physician one to two years prior to when the physician feels that the patient is near the end of their life. This would put the decision making power on the patient and it would improve the quality of care the patient receives when they are at the end of their life. By developing a specific care plan, the patient would be in control of their wishes on how they would like their care to be handled when the time of death nears. We can identify strengths and weakness with this strategy and implement changes to the strategy to improve the overall system of care with...
The subject of death and dying can cause many controversies for health care providers. Not only can it cause legal issues for them, but it also brings about many ethical issues as well. Nearly every health care professional has experienced a situation dealing with death or dying. This tends to be a tough topic for many people, so health care professionals should take caution when handling these matters. Healthcare professionals not only deal with patient issues but also those of the family. Some of the controversies of death and dying many include; stages of death and dying, quality of life issues, use of medications and advanced directives.
When I think about death and dying, I have had some experience in this because of my career I am a certified Nursing Assistant and I have been for about three years. I currently work at Camilia Rose Care Center. I have been there almost a year (Camilia Rose for those who don’t know is a nursing home). For example just a few weeks ago I took a resident to the restroom to do his duty and he ended up passing away on the toilet. I was the one who had to let the nurse know what happened then I had to figure out how to get him off and back to the bed then I had to clean him up so that his family can say their finial good bye before the funeral home does what they do.