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Challenges of palliative care
Challenges of palliative care
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In Stephen R Connor’s article “Development of Hospice ad Palliative Care in the United States,” Connor reviews the history and growth of hospice and palliative care in the U.S., the Medicare benefit’s relation to hospice, challenges that these end-of-life care services are facing, and strategies to improve the quality of hospice and palliative care. In 1963, Dr. Cicely Saunders from the United Kingdom introduced hospice and the concept of treating terminally ill patients in a holistic manner to the United States. In both countries, the goal was to provide support and comfort for those near death, but in the U.S. there was a greater emphasis on at-home care while the U.K focused on inpatient settings. Like we discussed in class, Americans …show more content…
tend to deny the idea of death. If it is accepted, it is seen as a frightening or sad experience. Hospice provides an outlet for the patient and their family to discuss death and dying, learn coping mechanisms, and acknowledge that the patient was near the end of their life, which reflected the changing attitude of U.S. society around the 1970s. The Hospice Medicare Benefit (MHB) was established in 1982, “creating a set payment for hospice care so that the government was sharing the risks with a provider” (Connor 91).
The MHB also set certain regulations for hospices: (1) patients are eligible only if they have a prognosis of six months or less to live and choose to stop curative treatment, (2) hospices need a governing body, plan for each patient, quality assurance, and use of volunteers, (3) and must provide fundamental services by hospice employees (Connor 91). The integration of hospice and the U.S. government has improved fiscal details, but the regulations and requirements also create logistic …show more content…
challenges. Over the past 30 years, hospice has substantially expanded in the United States, and with this growth there have been significant changes along the way. In the past, patients in hospice were mainly comprised of cancer patients but over time, admissions have encompassed people with other progressive illnesses like organ failure, neurological disease, or stroke. Length of stay has also changed as the average time in hospice has dropped from 70 to 50 days. In addition, more than 30% of patients receive service for seven days or less. The number of locations where hospice care is offered has increased, due to the MHB and acceptance of this type of care. There has also been dramatic growth in palliative care programs. The American Board of Medical Specialties now recognizes both hospice and palliative care as a sub-specialty. Since hospice and palliative care have been introduced the services have flourished in the U.S. With the development and changes in end-of-life care, various challenges arise.
These challenges are due to the Medicare benefit, workforce issues, and access and quality of the services. Medicare’s regulations state that hospice is only offered to those near death (six months or less to live) and that the admitted patients stop the treatments with the purpose of curing the illness. The purpose of these restrictions is to keep costs low, but there is also the ethical responsibility of hospice to provide the best end-of-life care possible for patients and their families. Another issue with hospice and palliative care is the lack of workforce while this field is growing. Currently, social workers provide the majority of psychological services, but psychologists and psychiatrists are also needed for effective psychosocial care. Since hospice and palliative care is now recognized as a sub-specialty, there is hope that this will increase physicians entering this medical field. Spiritual and religious services are other areas within hospice and palliative care that needs expansion. “If current projections are correct, then more than twice as many hospice professionals and volunteers will be needed in the next 20 years to meet the unmet need for palliative care and the growing numbers of older people in our society” (Connor 98). The last problem with end-of-life care programs is the access and quality. For example, African Americans are 7% less likely to receive hospice
care than whites (Connor 99). Patients with non-cancer diagnosis are also less likely to have access to hospice – but this has been improving over the last several years. Geographic location also influences admittance to hospice and palliative care; very rural areas have the least access. By analyzing the history, growth, and challenges of hospice and palliative care, lessons learned can pave the way improving these end-of-life care services. This source is valuable because it provides details on the history, growth, problems, and relation to Medicare benefits of hospice and palliative care in the United States. By encompassing a variety of topics about end-of-life care in the U.S., we can understand the evolution of these services and how they can be improved.
Final Gifts, written by hospice care workers, Maggie Callanan and Patricia Kelly, includes various stories detailing each of their life changing experiences that they encountered with their patients. Hospice care allows the patient to feel comfortable in their final days or months before they move on to their next life. This book contains the information considered necessary to understand and deal with the awareness, needs, and interactions of those who are dying. Not only are there stories told throughout the book, there are also tips for one to help cope with knowing someone is dying and how to make their death a peaceful experience for everyone involved. It is important that everyone involved is at as much peace as the person dying in the
God tells his children, “He will wipe every tear from their eyes. There will be no more death or mourning or crying or pain, for the old order of things has passed away” (Revelation). Death is one of the most frightening and confusing times a person can go through. Watching a loved one pass away is also one of the hardest trials a person can experience. Many people assume that death is a time of pain and the only thing that they can do is mourn and watch their loved one fade away from the earth. This is wrong. There are ways that people can turn a bad situation to good. Dying doesn’t have to be painful and full of suffering. The County Hospice staff makes sure of this. The Hospice staff not only takes care of passing patients physically, but they also take care of the patients emotionally and spiritually. Hospice staff also plays a key role in helping families during the grieving process.
Puchalski, C. M., Dorff, D. E., Hebbar, B. N., & Hendi, Y. (2012). Religion, spirituality, and end of life care. RELIGION, SPRITUALITY, AND END OF LIFE CARE. Retrieved from http://www.uptodate.com/contents/religion-spirituality-and-end-of-life-care?source=search_result&search=Religion%2C+spirituality%2C+and+end+of+life+care&selectedTitle=1%7E146#
The change which is outlined in this paper relates to how early referral of terminally ill patients into a hospice program results in better patient outcomes, in particular, with regard to pain management. PICO format question will be used , along with a supportive body of evidence regarding the fact that early onset into a hospice program is helpful with providing end of life pain control. Hospice programs available, and options associated with them will be discussed as well as common concerns associated with early admission to hospice. The methods used for payment of hospice, and how one qualifies for entrance into a hospice program will be explored. A literature search will be performed and its results detailed within the body of this paper. Recent publications on the subject matter and associated issues such as moral and ethical questions as well as the change question will be discussed. Planning, implementing and evaluation of the change proposed will be explored within this paper.
Being in hospice care is a better alternative than being stuck in the hospital to try to avoid the unavoidable. Common misconceptions about Hospice could include that hospice makes life more miserable; however, a physician expressed his findings in Hospice,“You can only fail a patient if you fail to understand and respond to their needs. We may not be able to cure all of our patients, but if we can make them comfortable in the last moments of their lives, we will not have failed them”..Hospice care gradually emerged in the 1970s, when groups like the National Hospice Organization were formed “in response to the unmet needs of dying patients and their families for whom traditional medical care was no longer effective.”Herbert Hendin, an executive director of the American Suicide Foundations illustrates a story of a young man diagnosed with acute myelocytic leukemia and was expected to have only a few months before he died. He persistently asked the doctor to assist him, but he eventually accepted the medical treatment. His doctor told him he can use his time wisely to become close to his family. Two days before he died, Tim talked about what he would have missed without the opportunity for a
Welch, L., Teno, J., & Mor, V. (2005). End-of-life care in black and white: Race matters for
Thanks in part to the scientific and technological advances of todays’ society, enhanced medicinal treatment options are helping people battle illnesses and diseases and live longer than ever before. Despite these advances, however, many people with life threatening illnesses have needs and concerns that are unidentified and therefore unmet at the end of life, notes Arnold, Artin, Griffith, Person and Graham (2006, p. 62). They further noted that when these needs and concerns remain unmet, due in part to the failure of providers to correctly evaluate these needs, as well as the patients’ reluctance to discuss them (p. 63, as originally noted by Heaven & Maguire, 1997), a patient’s quality of life may be adversely affected. According to Bosma et al. (2010, p. 84), “Many generalist social work skills regarding counseling, family systems, community resources, and psychosocial assessments are relevant to working with patients and families with terminal illness”, thereby placing social workers in the distinctive position of being able to support and assist clients with end of life decisions and care planning needs. In fact, they further noted that at some point, “most social work practitioners will encounter adults, children, and families who are facing progressive life limiting illness, dying, death, or bereavement” (p. 79).
Hospice focuses on end of life care. When patients are facing terminal illness and have an expected life sentence of days to six months or less of life. Care can take place in different milieu including at home, hospice care center, hospital, and skilled nursing facility. Hospice provides patients and family the tool and resources of how to come to the acceptance of death. The goal of care is to help people who are dying have peace, comfort, and dignity. A team of health care providers and volunteers are responsible for providing care. A primary care doctor and a hospice doctor or medical director will patients care. The patient is allowed to decide who their primary doctor will be while receiving hospice care. It may be a primary care physician or a hospice physician. Nurses provide care at home by vising patient at home or in a hospital setting facility. Nurses are responsible for coordination of the hospice care team. Home health aides provide support for daily and routine care ( dressing, bathing, eating and etc). Spiritual counselors, Chaplains, priests, lay ministers or other spiritual counselors can provide spiritual care and guidance for the entire family. Social workers provide counseling and support. They can also provide referrals to other support systems. Pharmacists provide medication oversight and suggestions regarding the most effective
The first journal article is about advance care planning (ACP) in palliative care. This is of interest due to several clinical experiences and the realization that many families either ignore the patient’s request for end of life (EOL) care or who have no idea of how to plan for EOL care. By reading the research and understanding the methods used, this will allow for insight into how to implement palliative care into clinical practice across different sites. The authors of this original research are Jeanine Blackford PhD, RN, senior lecturer at La Trobe University in Australia, and Annette Street PhD, associate dean of research and professor of cancer and palliative care studies. According to Blackford & Street (2011), this research is important as there are many countries that “report a low percentage of people who have completed an advance care plan” (p. 2022), and ACP is needed upon admission to facilities that offer palliative care. In addition, the purpose of the study is to try and obtain guidance to integrate an ACP model into routine clinical practice in the community. The research question chosen for the analysis of this article is: Is it feasible to implement ACP into routine practice and documentation at multi-site locations in...
End-of-life care in the United States is often fraught with difficult decisions and borne with great expense. Americans are often uncomfortable discussing death and
Palliative care is an essential to the creation of a health and wellbeing continuum for Australians living with a chronic illness. It is an approach of care that seeks to improve the life of patients and family experiencing the effects of chronic illness. Palliative care centres on the relief of the symptoms and effects of disease and incorporate the physical, psychological and social dimensions of a person at the end of life. A recent focus for the delivery of palliative care by nurses to Indigenous communities is the consideration that culture can create barriers to the provision of appropriate and beneficial care for the dying or deceased person. This essay explores the palliative nurse caring for Indigenous communities and the need to consider
The care of patients at the end of their live should be as humane and respectful to help them cope with the accompanying prognosis of the end of their lives. The reality of this situation is that all too often, the care a patient receives at the end of their life is quite different and generally not performed well. The healthcare system of the United States does not perform well within the scope of providing the patient with by all means a distress and pain free palliative or hospice care plan. To often patients do not have a specific plan implemented on how they wish to have their end of life care carried out for them. End of life decisions are frequently left to the decision of family member's or physicians who may not know what the patient needs are beforehand or is not acting in the patient's best wishes. This places the unenviable task of choosing care for the patient instead of the patient having a carefully written out plan on how to carry out their final days. A strategy that can improve the rate of care that patients receive and improve the healthcare system in general would be to have the patient create a end of life care plan with their primary care physician one to two years prior to when the physician feels that the patient is near the end of their life. This would put the decision making power on the patient and it would improve the quality of care the patient receives when they are at the end of their life. By developing a specific care plan, the patient would be in control of their wishes on how they would like their care to be handled when the time of death nears. We can identify strengths and weakness with this strategy and implement changes to the strategy to improve the overall system of care with...
Pain is neither objective nor seen or felt by anybody other than the person that is experiencing it. Pain is subjective, therefore there is no way to distinguish whether or not someone is hurting and the only and best measurement of pain is that what the patient says it is. In settings such as end of life care, patients present with many different disease processes and ultimately are there because they have an average of six months to live. Along with this stage in their lives, palliative care patients can encounter a myriad of symptoms, which can result in these patients experiencing tremendous physical and psychological suffering (Creedon & O’Regan, 2010, p. [ 257]). For patients requiring palliative care, pain is the most incapacitating of symptoms and in return unrelieved pain is the primary symptom that is feared most by these patients. So why has pain management not become the top priority when it comes to end of life care, considering this area is growing at an extraordinary rate as a result of an increasingly ageing population?
The purpose of this essay is to analyse various theories on ageing, death, dying, and end of life issues from different perspectives such as: biophysiological theories, psychosocial theories; and taking in consideration the cultural, historical, and religious implications around the aforementioned life stages. One will also discuss important issues relevant to social work practice such as dignity, autonomy, and their relationship with the concept of a successful ageing and a good death. One considers these areas important since they upheld anti-discriminatory practice and may perhaps promote the development of personalised care pathways, as well as fair and justifiable social policies.
It can also be quite stressful for the dying individual if the family members are attempting to plan their funeral and they are unable to communicate their wishes (Callanan & Kelley, 1992: 42-43). This issue of miscommunication occurs closer to death, so if the planning process starts soon enough the dying individual should be able to effectively communicate their wishes (Callanan & Kelley, 1992: 42-43). It has also impacted the dying individual in positive ways. Because of this, there are now places that individuals can transition into before the actual dying process begins. For example, in past decades, individuals with dementia would have to stay at home and be cared for by their friends and family, who while trying their best, may not have been able to cope with the demands of that individual along with their own personal lives (Dosa, 2010). Now, these individuals, when money and resources allow, are able to access special institutions and sectors in hospitals that are specially equipped to deal with those demands (Dosa, 2010). But this transition has plenty of financial challenges that go along with