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Questions in biomedical ethics
Ethics in biomedical research
Ethics in biomedical research
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Further, the issue of confidentiality is compounded by the fact that Henrietta was deceased at the time of the breach in confidentiality. “The dead have no right to privacy even if part of them is still alive” (Skloot, 2010, p. 211). Skloot clearly portrays the issues around the release of Henrietta’s medical records, breach of confidentiality, and the emotional impact this had on the Lacks family. Additionally, she addresses the impact that failure to inform Henrietta and her husband about the medical experimentation and questionable research that was being conducted on their eldest daughter Elsie had on the family. Furthermore, Skloot addresses examples of violations that occurred with other patients of bio-medical research, demonstrating
that this was not a singular issue. Skloot weights in on the side of advocating for patient confidentiality and informed consent. However, she does address the perspective of the biomedical researchers and their concern that further restrictions would limit research and discovery.
While doctors and scientists were making millions of dollars through HeLa research, Henrietta’s family was living in poverty. Lawrence Lacks, Henrietta’s firstborn child, says, “Hopkins say they gave them cells away, but they made millions! It’s not fair! She’s the most important person in the world and her family living in poverty. If our mother so important to science, why can’t we get health insurance?” (pg.168). Someone who disagrees with this standpoint may argue that scientists had been trying for years to develop the perfect culture medium and had a much more hands on experience with the cells (pg.35), therefore, they should be receiving the earnings from any outcomes the HeLa cells may produce. While the scientists were in fact the brains behind the scientific advances, the family should be acknowledged on behalf of Henrietta Lacks. These successes in science would not have been possible without the origin of the cells: Henrietta Lacks. For some of the family, the primary focus was not even the profit. “Since they gone ahead and taken her cells and they been so important for science, Deborah thought, least they can do is give her credit for it.” (pg. 197). Here, Deborah Lacks, Henrietta’s fourth born child, makes it clear that her primary concern is getting her mother the recognition that she deserves for her
An abstraction can be defined as something that only exists as an idea. People are considered abstractions when they are dehumanized, forgotten about, or segregated and discriminated against. The scientific community and the media treated Henrietta Lacks and her family as abstractions in several ways including; forgetting the person behind HeLa cells, giving sub-par health care compared to Caucasians, and not giving reparations to the Lacks family. On the other hand, Rebecca Skloot offers a different perspective that is shown throughout the book. Rebecca Skloot’s book The Immortal Life of Henrietta Lacks describes the trials and tribulations the Lacks family has gone through because of HeLa cells and shows how seeing a person as an abstraction is a dangerous thing.
The Immortal Life of Henrietta Lacks by: Rebecca Skloot has a lot of themes, but one that is most relevant in my opinion is the racial politics of medicine. Throughout the chapters, there were examples of how Henrietta, being African American, prevented her from receiving the same treatment as the white woman sitting right next to her in the waiting room. The story begins with Henrietta going to Johns Hopkins Hospital and asking a physician to check a “knot on her womb.” Skloot describes that Henrietta had been having pain around that area for about a year, and talked about it with her family, but did not do anything until the pains got intolerable. The doctor near her house had checked if she had syphilis, but it came back negative, and he recommended her to go to John Hopkins, a known university hospital that was the only hospital in the area that would treat African American patients during the era of Jim Crow. It was a long commute, but they had no choice. Patient records detail some of her prior history and provide readers with background knowledge: Henrietta was one of ten siblings, having six or seven years of schooling, five children of her own, and a past of declining medical treatments. The odd thing was that she did not follow up on upcoming clinic visits. The tests discovered a purple lump on the cervix about the size of a nickel. Dr. Howard Jones took a sample around the tissue and sent it to the laboratory.
Without them, we would be decades behind because the average person would not find signing away a piece of their body acceptable. Skloot brings up a case where a man sues a scientist for doing research on his removed spleen without his consent. The author states that those in favor of research said it “…would ‘create chaos for reseachers’ and ‘[sound] the death kneel to the university physician-scientist’. They called it ‘a threat to the sharing of tissue for research purposes,’ and worried that patients would block the progress of science by holding out for excessive profits, even with cells that weren’t worth millions…” (203). The concern shown from the quote was that with extensive limitations on research and tight ethical codes, the information found would be inadequate at best. On one hand, you do need to be honest with the patient, but for the cost of so many lives, there needs to be a balance of creating breakthroughs and appeasing those who matter in the situation. In regards to Henrietta, she did sign a document to have any medical procedure done that was deemed necessary by her doctors. With that being said, she did unknowingly give away some of her rights as a
Henrietta Lacks is not a common household name, yet in the scientific and medical world it has become one of the most important and talked names of the century. Up until the time that this book was written, very few people knew of Henrietta Lacks and how her cells contributed to modern science, but Rebecca Skloot aimed to change this. Eventually Skloot was able to reach Henrietta’s remaining family and through them she was able to tell the story of not only the importance of the HeLa cells but also Henrietta’s life.
Skloot mentions several cases where doctors hurt people with their actions. One of which occurs during one conversation between Henrietta and Sadie; “Hennie” shows Sadie her stomach which is “burnt… black as tar.” Henrietta says the cancer feels like the blackness “be spreadin all inside” of her (48). To build factual evidence of the corruption, Skloot directly quotes Sadie in order to ensure the event really took place. She uses logic to connect the factual side effects of cancer treatment to the imagery of tar. She effectively communicates the terrible job the doctors do to treat Henrietta. The blackness of Henrietta’s skin represents the blackness in the medical system. Skloot knows that people want to get better, and if the medical system continues to stay flawed no one ever will. Another case in which doctors treated patients inhumanly involves Henrietta’s eldest daughter. Skloot writes, “Elsie Lacks [died from] respiratory failure, epilepsy, [and] cerebral palsy” (270). All of these ailments occurred in a supposed hospital, meant for the mentally disabled. Skloot uses facts to help the reader logically follow the horror story of the Lacks family. She spells out exactly what doctors put Elsie through and helps to illuminate the terrible state of the medical world at that time. She uses fact as undisputed tributes of knowledge to back her claims, and to make them appear undeniable. Skloot emphasizes the terrible failure of the
Rebecca Skloot’s novel, The Immortal Life of Henrietta Lacks, depicts the violation of medical ethics from the patient and researcher perspectives specifically when race, poverty, and lack of medical education are factors. The novel takes place in the southern United States in 1951. Henrietta Lacks is born in a poor rural town, Clover, but eventually moves to urban Turner Station. She was diagnosed and treated for cervical cancer at Johns Hopkins hospital where cells was unknowingly taken from her and used for scientific research. Rebecca Skloot describes this when she writes, “But first—though no one had told Henrietta that TeLinde was collecting sample or asked she wanted to be a donor—Wharton picked up a sharp knife and shaved two dime-sized pieces of tissue from Henrietta's cervix: one from her tumor, and one from the healthy cervical tissue nearby. Then he placed the samples in a glass dish” (33). The simple act of taking cells, which the physicians did not even think twice about, caused decades
Reading through the very beginning of Susan Griffin’s “Our Secret” felt like reading Shakespeare for the first time as a sticky fingered, toothless, second grader. It just did not make sense...my mind couldn’t quite comprehend it yet. Nothing in the essay seemed to be going in any clear direction, and the different themes in each of the paragraphs did not make sense to me. There was no flow – as soon as you began to comprehend and get used to one subject, she would switch it up on you and start talking about something else that seemed unrelated. As I pushed forward, it seriously was beginning to feel like she was drawing topics out of a hat as she went. That was until I hit around halfway through the second page. This is where Griffin introduces her third paragraph about cell biology: “Through the pores of the nuclear membrane a steady stream of ribonucleic acid, RNA, the basic material from which the cell is made, flows out (234).” She was talking about the basic unit of
The book The Immortal Life of Henrietta Lacks by Rebecca Skloot, was a nonfiction story about the life of Henrietta Lacks, who died of cervical cancer in 1951. Henrietta did not know that her doctor took a sample of her cancer cells a few months before she died. “Henrietta cells that called HeLa were the first immortal human cells ever grown in a laboratory” (Skloot 22). In fact, the cells from her cervix are the most important advances in medical research. Rebecca was interested to write this story because she was anxious with the story of HeLa cells. When she was in biology class, her professor named Donald Defler gave a lecture about cells. Defler tells the story about Henrietta Lacks and HeLa cells. However, the professor ended his lecture when he said that Henrietta Lacks was a black woman. In this book, Rebecca wants to tell the truth about the story of Henrietta Lacks during her medical process and the rights for Henrietta’s family after she died.
Henrietta Lacks was born on August 18, 1920 in Roanoke, Virginia. She stayed with her grandfather who also took care of her other cousins, one in particular whose name is David (Day) Lacks. As Henrietta grew up, she lived with both her Grandpa Tommy and Day and worked on his farm. Considering how Henrietta and Day were together from their childhood, it was no surprise that they started having kids and soon enough got married. As the years continued, Henrietta noticed that she kept feeling like there was a lump in her womb/cervix and discovered that there was a lump in her cervix. Soon enough, Henrietta went to Johns Hopkins Medical Center to get this check and learned that she had cervical cancer. But here is where the problem arises, Henrietta gave full consent for her cancer treatment at Hopkins, but she never gave consent for the extraction and use of her cells. During her first treatment TeLinde, the doctor treating Henrietta, removed 2 sample tissues: one from her tumor and one from healthy cervical tissue, and then proceeded to treat Henrietta, all the while no one knowing that Hopkins had obtained tissue samples from Henrietta without her consent. These samples were later handed to ...
Do you believe that once your tissue has left your body, you no longer have rights to its commercial value? What about if it was taken without consent? Consent has been a major concern due to the medical advances made in the last century. After leaving the doctor’s office, anything you leave behind is no longer yours and hospitals can keep it for research sometimes forever (Skloot 315). In her work, The Immortal Life of Henrietta Lacks, Rebecca Skloot uses Henrietta Lacks as an example to show how consent can be a complicated topic due to laws and research. Legal and medical scholars agree with Skloot saying the bio-technology industry is getting out of control. Thus, in her work, Rebecca Skloot examines consent, research, and the messy way
The topic of whether it is in the nature of living beings to be naturally good has been examined by several authors throughout previous centuries, for example, Susan Griffin. Using a humanistic perspective, Griffin’s chapter, “Our Secret”, from her book, A Chorus of Stones, approaches this topic and can reflect on her own life and feelings using other people’s stories about fears and their secrets. Combining her personal life stories, Himmler’s life narrative, as well as two sub stories, Griffin’s chapter allows characters to represent human emotions and emphasize the hidden feelings of living beings. Similarly, Plato’s dialogue, Phaedrus, and Franz de Waal’s, The Ape and the Sushi Master, talk about the topic of living beings being naturally
As Rebecca Scoot transport her readers in her narrative of accounts of the Immortal life of Henrietta Lacks, she delicately uncovers injustice not within one family but within a system. As she focuses in giving a voice to the Lacks, she also highlights the strength and leadership of the family matriarch of Henrietta Lacks and her cell know as HELA. Envisioning Mrs. Lacks and her family trajectory it exposes discrimination and bias on a much large scale than poorly uneducated oppress Negro or African American during 1950’s. The life of Henrietta and her family’s situation had moderate similarities of another book, The Isis Paper. The Isis Papers the keys to the Colors, by Dr. Frances Cress Welsing’s, (March 18, 1935- January 2, 2016.) In
Often in the darkest time it is good to seek relief in the good of every situation. With the death of a Mother, Daughter, and contributing member in society, it may be hard to try and find any positivity to draw from. With the unfortunate and untimely death of Henrietta, came the opportunity of life to millions of others in society then, now, and for many years to come. The goal of medical research is to put society as a whole in a better place than it was at the day before. The use of HeLa cells in every developed country on the globe has made this objective much more achievable. The Lacks family led the way for the consent form being required for patients undergoing a medical procedure Although, there was no direct benefit to the family, raising many ethical considerations that must be
The story of Henrietta Lacks and her family is one that raises many questions about ethics, consent, medical treatment, and family rights. The decisions made by the scientists and doctors surrounding HeLa research have had lasting impacts in the Lacks family. The question I have chosen to address is what change would have helped the Lacks children the most. I feel the most influential piece to the Lacks children’s suffering was being raised by Ethel. This portion of their life was filled with physical and emotional abuse that led to destructive behavior. This behavior would also play a role in the anger toward HeLa researchers and anyone else who did harm to the family or left them in the dark. Although questions about their mother, financial