The automatic assumption that tissue donors receive financial compensation is a frequent misconception. Robert D. Troug, Aaron Kesselheim, and Steven Joffe discuss these fallacies in, “Paying Patients for Their Tissue: The Legacy of Henrietta Lacks.” The authors focus on and examine the varying perspectives on the role of tissue donors and whether or not monetary reimbursement is warranted. The journal points out, “For many, it seems an injustice that the Lacks family never received any financial benefits from the HeLa line, especially given that they lived in poverty, unable to pay even for their own medical care” (Troug, et al., 37). The authors utilize Henrietta Lacks’s story as a gateway to introduce the topic of tissue donors and what …show more content…
Henrietta’s family, however, remained unaware of HeLa for over two decades. Furthermore, Lacks’ story correlates with the authors’ argument that payment for tissue donations is not always justifiable and unnecessary financial compensation can have consequences. Although Henrietta Lacks did not consent to her cells being taken, the authors stress that, “[...] the use of her residual clinical tissue, involving no additional risk or burden to her, does not demand any form of compensation” (Troug, et al., 38). Troug, Kesselheim, and Joffe use both emotional and logical tactics with the intent to intrigue and inform the audience about tissue donation. The usage of said strategies, as well as the syntax and diction used throughout the article, showcases all three of the authors’ styles. Overall, the style utilized is highly effective in conveying that despite Henrietta Lacks’s story being emotionally swaying, not all tissue donors or their families will be subjected to financial compensation. Equally significant is the further examination of the case-by-case basis of tissue donation and how the circumstances in each case determine whether or not a donor or their family receive monetary
In February 2010, author and journalist Rebecca Skloot published a book, "The Immortal Life of Henrietta Lacks," which included the stories surrounding the HeLa cell line as well as research into Henrietta Lacks' life. In 1951 a poor young black women, Henrietta Lacks was diagnosed with cervical cancer and at the time was treated in the “colored ward” or segregated division of Johns Hopkins Hospital. The procedure required samples of her cervix to be removed. Henrietta Lacks, the person who was the source of these cells was unaware of their removal. Her family was never informed about what had been accomplished with the use of her cells. The Lacks family has not received anything from the cell line to this day, although their mother’s cells have been bought and sold by many. This bestseller tells the stories of HeLa and traces the history of the cell while highlighting the ethical and legal issues of the research.
While doctors and scientists were making millions of dollars through HeLa research, Henrietta’s family was living in poverty. Lawrence Lacks, Henrietta’s firstborn child, says, “Hopkins say they gave them cells away, but they made millions! It’s not fair! She’s the most important person in the world and her family living in poverty. If our mother so important to science, why can’t we get health insurance?” (pg.168). Someone who disagrees with this standpoint may argue that scientists had been trying for years to develop the perfect culture medium and had a much more hands on experience with the cells (pg.35), therefore, they should be receiving the earnings from any outcomes the HeLa cells may produce. While the scientists were in fact the brains behind the scientific advances, the family should be acknowledged on behalf of Henrietta Lacks. These successes in science would not have been possible without the origin of the cells: Henrietta Lacks. For some of the family, the primary focus was not even the profit. “Since they gone ahead and taken her cells and they been so important for science, Deborah thought, least they can do is give her credit for it.” (pg. 197). Here, Deborah Lacks, Henrietta’s fourth born child, makes it clear that her primary concern is getting her mother the recognition that she deserves for her
An abstraction can be defined as something that only exists as an idea. People are considered abstractions when they are dehumanized, forgotten about, or segregated and discriminated against. The scientific community and the media treated Henrietta Lacks and her family as abstractions in several ways including; forgetting the person behind HeLa cells, giving sub-par health care compared to Caucasians, and not giving reparations to the Lacks family. On the other hand, Rebecca Skloot offers a different perspective that is shown throughout the book. Rebecca Skloot’s book The Immortal Life of Henrietta Lacks describes the trials and tribulations the Lacks family has gone through because of HeLa cells and shows how seeing a person as an abstraction is a dangerous thing.
In the novel The Immoral Life of Henrietta Lacks by Rebecca Skloot, the author tells the miraculous story of one woman’s amazing contribution to science. Henrietta Lacks unknowingly provides scientists with a biopsy capable of reproducing cells at a tremendusly fast pace. The story of Henrietta Lacks demonstrates how an individual’s rights can be effortlessly breached when it involves medical science and research. Although her cells have contributed to science in many miraculous ways, there is little known about the woman whose body they derived from. Skloot is a very gifted author whose essential writing technique divides the story into three parts so that she, Henrietta
In 1951, the sickness of a poor African American woman named Henrietta Lacks -also know as HeLa- would go on to change the face of scientific research; without her consent. Henrietta Lacks went into John Hopkins Hospital in hopes of medical treatment, but instead her cells were unlawfully stolen from her and used for scientific advances in the world of medicine for the creations of the polio vaccine, cell cloning, vitro fertilization, and gene mapping. Long after Henrietta's death, Henrietta's family was forced to live a life of poverty without medical insurance simply because they could not afford it although their mothers cells had yielded billions of dollars due to its advances in the medical world. The scientific community and the media
The Belmont Report identifies three core principles that are to be respected when using human subjects for research. The three ethical principles are: respect for persons, beneficence and justice. In the case of Henrietta Lacks each of these fundamental components are violated. The consent that Henrietta provided was not sufficient for the procedures that were conducted.
Most people live in capitalist societies where money matters a lot. Essentially, ownership is also of significance since it decides to whom the money goes. In present days, human tissues matter in the scientific field. Rebecca Skloot, author of The Immortal Life of Henrietta Lacks, shows how Henrietta Lacks’s cells have been used well, and at the same time, how they have been a hot potato in science because of the problem of the ownership. This engages readers to try to answer the question, “Should legal ownership have to be given to people?” For that answer, yes. People should be given the rights to ownership over their tissues for patients to decide if they are willing to donate their tissues or not. Reasons will be explained as follows.
Rebecca Skloot’s novel, The Immortal Life of Henrietta Lacks, depicts the violation of medical ethics from the patient and researcher perspectives specifically when race, poverty, and lack of medical education are factors. The novel takes place in the southern United States in 1951. Henrietta Lacks is born in a poor rural town, Clover, but eventually moves to urban Turner Station. She was diagnosed and treated for cervical cancer at Johns Hopkins hospital where cells was unknowingly taken from her and used for scientific research. Rebecca Skloot describes this when she writes, “But first—though no one had told Henrietta that TeLinde was collecting sample or asked she wanted to be a donor—Wharton picked up a sharp knife and shaved two dime-sized pieces of tissue from Henrietta's cervix: one from her tumor, and one from the healthy cervical tissue nearby. Then he placed the samples in a glass dish” (33). The simple act of taking cells, which the physicians did not even think twice about, caused decades
She died in 1951, and yet she is still alive. Literally, Henrietta Lacks has been unwittingly immortalized through her cells (HeLa) which have multiplied in laboratories throughout the world. The 2010 bestseller The Immortal Life of Henrietta Lacks also breathed life to the controversy surrounding her cells: should the Lacks family receive monetary compensation for HeLa’s immense contribution to science and medicine? That answer is a resolute no.
The Immortal Life of Henrietta Lacks is a non-fictional novel dedicated to describing the life and experiences of a woman by the name of Henrietta Lacks who’s cervical cells became famous for a multitude of reasons. Henrietta was an African American woman born in the 1920’s who developed an aggressive form of cervical cancer and was treated by doctors at Johns Hopkins Hospital. Her infamous story began when doctors began treating Henrietta with radium and took tissue samples from her cervix without her knowing. Cancer researchers began testing Henrietta’s cells (labeled HeLa) and found that they, unlike many other human cells, multiplied at rapid rates and almost seemed to be “immortal” or never-ending. These cells were shared, sold, and researched
The book The Immortal Life of Henrietta Lacks by Rebecca Skloot, was a nonfiction story about the life of Henrietta Lacks, who died of cervical cancer in 1951. Henrietta did not know that her doctor took a sample of her cancer cells a few months before she died. “Henrietta cells that called HeLa were the first immortal human cells ever grown in a laboratory” (Skloot 22). In fact, the cells from her cervix are the most important advances in medical research. Rebecca was interested to write this story because she was anxious with the story of HeLa cells. When she was in biology class, her professor named Donald Defler gave a lecture about cells. Defler tells the story about Henrietta Lacks and HeLa cells. However, the professor ended his lecture when he said that Henrietta Lacks was a black woman. In this book, Rebecca wants to tell the truth about the story of Henrietta Lacks during her medical process and the rights for Henrietta’s family after she died.
Henrietta Lacks is known as immortal because her cells are still being used to conduct research. On February 5th, 1951 Henrietta Lacks was diagnosed with malignant cervical cancer that was treated with harsh radiation. During her treatment and surgery of the cancer, she had a biopsy that collected a small portion of her cervical cells. Henrietta’s cells were special because they were able to self multiply under the right conditions. Her cells continue to be reproduced and sold all around the world for research. The question is should Henrietta and her family be compensated for her time and cells? This question will be analyzed from two different perspectives, which is the functionalist and a conflict theory perspective. In this
His piece, however, honored Lacks and explicitly mentioned that no one asked for her or her family’s permission to take her cells, stating that “without … permission … , doctors at Johns Hopkins had collected and saved samples of tissue from her cancerous tumor”. Though both political figures with no personal ties to Henrietta Lacks or her family, it is clear that Hon. Perriello and Hon. Ehrlich had different understandings of the situation and Lacks’ role in it, as made evident by their explanation of it. Once more, it is proven not only that Lacks’ privacy was taken from her when her cells were passed around without her consent, but diction plays a highly significant role in recreating
Nowadays, when patients are given consent forms, every step is explicitly stated so that there is no confusion or harm. All in all, Henrietta Lacks has contributed and made significant changes to the scientific, ethical, and political aspects of society.
What is privacy? Well, it’s the state or condition of being free from being observed or disturbed by other people. In terms of information, it is the right to have some control over how one’s own personal information is collected and used. This is a right that has been inherently protected by the U.S Constitution, agreed upon by the Supreme Court, and yet, issues around this very topic arise every day. In The Immortal Life of Henrietta Lacks, the author Rebecca Skloot, addresses this issue in her story of the women behind the infamous HeLa cells. Her story shows that although privacy is a right that is inherently protected by the law, situations of injustice can still occur. Examples of this in the book include when Henrietta’s cells were given to Dr. Gey without any consent from Day, the situation in which Mr. Golde’s spleen was sold without his permission, as well as when the Lacks family were recontacted and mislead about the reasons they were tested years after Henrietta’s death.