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Essay on the importance of research ethics
The code of human research ethics
The code of human research ethics
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Code of ethics serves as the moral compass that directs and guides the integrity, values, and beliefs of an organization. A code of ethics clarifies to employees what the company stands for and its expectations for employee conduct (Daft, 2013). A well-written code is a true commitment to responsible business practices in that it outlines specific procedures to handle ethical failures. Within the research enterprise, the code of ethics ensures that research projects involving human subjects are carried out without causing harm to the subjects involved. Research ethics also ensure researchers conduct research in an ethical manner. This paper will focus on the regulations and guidelines that govern ethics in research, a study where research ethics were violated and recommendations to improve ethics within the research enterprise.
The research enterprise is comprised of research organizations (i.e., academic health centers, federal government), researchers, human volunteers, and stakeholders (i.e., health insurers, health care systems and consumers. To understand the nuances of the research enterprise, one must know the meaning of research. Research means a systematic investigation, including research development, testing and evaluation, designed to develop or contribute to generalizable knowledge (45 Code of Federal Regulations 46.102(d)). This is the foundation of the research enterprise, to produce knowledge valuable for understanding human disease, preventing and treating illness, and promoting health. This knowledge can be used to develop new innovative concepts that can lead to scientific breakthroughs, the creation of new knowledge, the formation of new health and research policy, the development of innovative new pr...
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... action (Elliston, 1985). Peter Buxtun worked for the Public Health Service. While working there, he discovered proper medical treatment was being withheld from poor, black syphilis patients so that they could conduct experimental medical treatments on these patients. In 1972, Peter Buxtun went outside of the Public Health Services to expose this violation of human subjects. He made the decision that expose this mistreatment of human subjects, to the Associated Press, who later published the story. Even though whistleblowing considered as “snitching”, Peter Buxtun decided exposing this violation was the only way to right the horrific wrong of mistreating and harming human subjects. “For 40 years, the U.S. Public Health Service has conducted a study in which human guinea pigs, not given proper treatment, have died of syphilis and its side effects” (Perkiss, 2013).
The book, Bad Blood: The Tuskegee Syphilis Experiment, by James H. Jones, was one of the most influential books in today’s society. The Tuskegee Syphilis Experiment study began in 1932 and was terminated in 1972. This book reflects the history of African Americans in the mistrust of the health care system. According to Colin A. Palmer, “James H. Jones disturbing, but enlightening Bad Blood details an appalling instance of scientific deception. This dispassionate book discusses the Tuskegee experiment, when a group of physicians used poor black men as the subjects in a study of the effects of untreated syphilis on the human body”(1982, p. 229). In addition, the author mentioned several indications of discrimination, prejudice,
....S. Public Health Service advanced medical technology, it came at a high cost. A high cost that resulted in many African-Americans dead and a breach of trust for medical professionals. In the notable experiments of Henrietta Lacks, The Tuskegee Syphilis Men, and The Pellagra Incident, medical professions in no way protected the lives of these individuals. In fact, they used the medical advances discovered as a result of the human experimentations as a shield to mask the unethical decisions. Medical professionals targeted the African-American population and used their ignorance as a means to advance medical technologies. This in no way upholds the ethics that medical professionals should display. The Immortal Life of Henrietta Lacks vividly exhibits the how the United States Public Health Service used, abused, and ultimately destroyed the African-American community.
Ethical violations committed on underprivileged populations first surfaced close to 50 years ago with the discovery of the Tuskegee project. The location, a small rural town in Arkansas, and the population, consisting of black males with syphilis, would become a startling example of research gone wrong. The participants of the study were denied the available treatment in order further the goal of the research, a clear violation of the Belmont Report principle of beneficence. This same problem faces researchers today who looking for an intervention in the vertical transmission of HIV in Africa, as there is an effective protocol in industrialized nations, yet they chose to use a placebo-contro...
The experiment lasted more than forty years and did not garner media attention until 1972, when it was finally made public by Jean Heller of the Associated Press to an outraged nation. The fact that a medical practitioner would knowingly violate an individual’s rights makes one question their bioethical practices. What gives doctors the right to make a human being a lab rat? When both of these case studies began in the earlier half of the 20th century, African Americans were still fighting for the most
In Marcia Angell’s article, “The Ethics of Clinical Research in the Third World,” she strongly argues the use of clinical placebo-controlled trials done in developing countries are unethical if an effective treatment already exists. Angell believes studies that compare potential new treatment with a placebo controlled group is ineffective and unnecessary. All research studies should offer the best standard of care and give participants the most beneficial outcome and treatment possible. The main priority of a study is not the goals of the research itself, but the well-being of the participants. Angell uses many sources to defend her argument, such as WHO.
During the process of research, professionals collect data or identifiable private information through intervention or interaction. While this is a vital part of the scientific and medical fields, every precaution must be taken by researchers to protect the participants' rights. Ethics, outlined by the Belmont report; requirements, described by the Department of Health and Human Services (DHHS); and regulations, laid out by the Food and Drug Administration (FDA) are verified by an Institutional Review Board (IRB). This procedure assures that all human rights are safeguarded during the entire research process.
When penicillin was discovered in 1940 and was the only cure for syphilis at that time. The participants form Tuskegee Syphilis Experiment were excluded from many campaigns that were taking place in Macon County, Alabama to eliminate venereal diseases (Person Education, 2007). This experiment lasted forty years and by the end 28 of the men had died directly of syphilis, 100 were dead of related complications, 40 of their wives had been infected, and 19 of their children had been born with congenital syphilis (info please, 2007). The directors of this experiment used ethical, interpersona... ... middle of paper ... ...
Abortion has been a political, social, and personal topic for many years now. The woman’s right to choose has become a law that is still debated, argued and fought over, even though it has been passed. This paper will examine a specific example where abortion is encouraged, identify the Christian world views beliefs and resolution as well as the consequences of such, and compare them with another option.
A multitude of medical ethics were broken during the Tuskegee Syphilis Study, including lack of informed consent, withholding treatment, and deception. According to the Center for Disease Control (CDC), “The study was conducted without the benefit of patients’ informed consent.” Also, Yoon shed insight
There are ethical implications at every stage of the research process, including the choiceof topic to research, the selection of the design and the publication of the findings. There are 6 etical principles (ICN 2003) the health care professionals can use to guard their patients (or) clients from harm.
The U.S. Public Health Service conducted this new experiment study which consisted of 399 men with syphilis and 201 men without syphilis for forty years, from 1932 to 1972. There was a total of six hundred men who participated in this study. In 1932, the Public Health Service collaborated with the Tuskegee Institute, an African American university which was founded by Booker T. Washington. The men that were chosen for this study were illiterate and were sharecroppers from Alabama. The syphilis rate in Macon County was the highest with a 39.8%. The Tuskegee study became morally and ethically wrong when penicillin became available to treat syphilis and was denied to the participants of the study. The study broke many ethical rules. The participants were told that if they participated, they were going to receive free medical care for their “bad blood.” The men were never informed what they were actually being treated for. Unfortunately, these men accepted because they were getting free healthcare and that is what they desired since they were very poor.
Ethics refers to the values and customs of a community at a particular point in time. At present, the term ethics is guided by the moral principles that guide our everyday actions. These moral principles guide the researcher into deciding what is ‘right’ or ‘wrong’. The foundation of medical ethics is governed by two philosophical frameworks that are deontology, and utilitarianism. However ultimately the ethics committees need to balance the risks, and benefits for the participants and the community associated with the particular research proposal. This balance is quite important as the well being of participants is at risk.7
In December 1946, the War Crimes Tribunal at Nuremberg indicted 20 Nazi physicians and 3 administrators for their willing participation in carrying out the harmful research on unwilling human subjects. Thus, Nuremberg code was the first international code for the ethics to be followed during human subject research. It was permissible medical experiments implemented in August 1947. The code also provides few directives for clinical trials (3). Syphilis study at Tuskegee in 1974 was the most influential event that led to the HHS Policy for Protecti...
Ethics, though sometimes overlooked, are an integral part in conducting proper research. Though the primary goal of the researcher may be to find answers that support his hypothesis—particularly, positive results that successfully can apply to the general population—maintaining ethical conditions is also just as important, if not more. Some of the most infamous studies that have occurred in the social sciences field throughout the years were ones that raised ethical concerns. One such study is known as the Landis Facial Expression Study that was conducted in 1924 by Carney Landis, who was a graduate student in psychology at the University of Minnesota at the time.
Ethics is the study of moral values and the principles we use to evaluate actions. Ethical concerns can sometimes stand as a barrier to the development of the arts and the natural sciences. They hinder the process of scientific research and the production of art, preventing us from arriving at knowledge. This raises the knowledge issues of: To what extent do moral values confine the production of knowledge in the arts, and to what extent are the ways of achieving scientific development limited due to ethical concerns? The two main ways of knowing used to produce ethical judgements are reason, the power of the mind to form judgements logically , and emotion, our instinctive feelings . I will explore their applications in various ethical controversies in science and arts as well as the implications of morals in these two areas of knowledge.