Chordoma Case Study

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A chordoma diagnosis feels overwhelming, especially when you realize that this type of cancer affects only one in one million people. It's important to remember that you're not alone. The first step is to understand your disease and treatment options. Here are 15 commonly asked questions to get you started.

1. What is a chordoma?

A chordoma is a cancer found in the base of the skull or anywhere in the spine. These tumors occur in both bone and the soft tissue.

2. Is a chordoma a brain tumor?

Technically, no. Chordomas are sometimes referred to as brain tumors if they have spread into the brainstem, brain or spinal fluid. Unlike true brain tumors, however, chordomas are not formed by mutated brain cells.

3. What type of cells form a chordoma? …show more content…

What are my treatment options?

Surgery to remove the tumor is required in almost all cases of chordoma. Surgical removal of the tumor is usually followed with radiation treatment. Chemotherapy is ineffective for treating chordoma.

11. Is surgery risky?

Surgery to remove chordomas can be risky depending upon their size and location. Your doctor will discuss the specific risks of removing your tumor before requesting surgical consent.

12. Will my chordoma come back?

Chordomas do sometimes recur after removal. A chordoma is less likely to return if the entire tumor is removed. This may be impossible, however, depending on the location of the tumor.

13. Do chordmoas spread?

Though they move slowly, chordomas are malignant and can spread (metastasize). Chordomas metastasize in 30 to 40% of cases.

14. What is the prognosis for chordoma patients?

As is true of all cancers, the best place for answers about your prognosis is your doctor. Only he knows the specifics of your health and tumor. Some people with chordoma have been cured and others have lived rich, fulfilling lives for a decade or more after their

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