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An essay on the roles of family members
Role of members of extended family
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Since I was a little girl, I have been giving care to others. It started when I was nine years old. My grandmother, who was a heavy smoker, developed cancer and became very sick.. It got to the point where she received home hospice care because nothing more could be done for her in the hospitals.
“Hospice is a specialized type of medical care for people who have advanced or life-limiting illness. This care is provided by a team of individuals who care for patients and families in their homes” (1).
It basically provides the patient with care in the comfort of their home. A hospital bed was set up in our home where she spent her last days. She was hooked up to an I.V. where she would receive daily doses of morphine, a strong drug ment to ease the pain of the terminally ill. I would check on her frequently, and even learned how to program the machine that released her morphine.
Soon after my grandmother died, my mom started getting sick. When she was born, she was born with a heart condition. Her heart had a “hole” in it and it was positioned wrong in her chest. In fact, it was said by doctors that because of her abnormal heart condition, she wouldn’t live past the age of six. She was also partially blind in her left eye, which restricted her from driving. As she got older and older, her heart grew weaker and weaker. At the age of 35 years old, she had a pacemaker surgically implanted in her chest. A pacemaker is a battery-powered case that assists the heart in beating. An incision is made and a pocket is formed in the area overlying the muscle on the outside of the chest wall.
“Most are placed to prevent the heart from going to slow. This happens because there is no cell in the heart that will beat fast enough to maintain proper function or because the electrical pathway, which allows impulses to spread to the necessary parts of the heart muscle is damaged.”(2).
Eventually, even the pacemaker didn’t help. Her heart couldn’t handle the aging process, and it became more and more difficult for her to do simple, everyday activities. Even walking became a chore. I would do my part by helping out at home with the daily chores and push her around in her wheelchair whenever we went places.
God tells his children, “He will wipe every tear from their eyes. There will be no more death or mourning or crying or pain, for the old order of things has passed away” (Revelation). Death is one of the most frightening and confusing times a person can go through. Watching a loved one pass away is also one of the hardest trials a person can experience. Many people assume that death is a time of pain and the only thing that they can do is mourn and watch their loved one fade away from the earth. This is wrong. There are ways that people can turn a bad situation to good. Dying doesn’t have to be painful and full of suffering. The County Hospice staff makes sure of this. The Hospice staff not only takes care of passing patients physically, but they also take care of the patients emotionally and spiritually. Hospice staff also plays a key role in helping families during the grieving process.
There are four different categories of treatment: lifestyle changes, surgical procedures, non-surgical procedures, and medications. Lifestyle changes include having a healthy diet; increasing physical activity; eliminating cigarettes, alcoholic beverages, and illicit drugs; and getting enough rest and sleep; losing excess weight. These lifestyle changes are to lower the patient’s blood pressure, cholesterol, and reducing any other future medical conditions. There are also surgical options to help cure, prevent, or control cardiomyopathy. Surgical method include a septal myectomy, surgically implanted devices, and a heart transplant. A septal myectomy is used to specifically treat hypertrophy cardiomyopathy which is where the heart muscle cells enlarge and cause the walls of the ventricles to thicken. The thickening of the walls may not affect the size of the ventricles but instead may affect the blood flow out of the ventricle. Usually along with the ventricles swelling, the septum in between the ventricles can become enlarged and block the blood flow causing a heart attack. When medication is not working well to treat hypertrophic cardiomyopathy, a surgeon will open the chest cavity and remove part of the septum that is blocking blood flow. Surgically implanted devices include a pacemaker, a cardiac resynchronization therapy device, a left ventricular assist device, and an implantable
Being in hospice care is a better alternative than being stuck in the hospital to try to avoid the unavoidable. Common misconceptions about Hospice could include that hospice makes life more miserable; however, a physician expressed his findings in Hospice,“You can only fail a patient if you fail to understand and respond to their needs. We may not be able to cure all of our patients, but if we can make them comfortable in the last moments of their lives, we will not have failed them”..Hospice care gradually emerged in the 1970s, when groups like the National Hospice Organization were formed “in response to the unmet needs of dying patients and their families for whom traditional medical care was no longer effective.”Herbert Hendin, an executive director of the American Suicide Foundations illustrates a story of a young man diagnosed with acute myelocytic leukemia and was expected to have only a few months before he died. He persistently asked the doctor to assist him, but he eventually accepted the medical treatment. His doctor told him he can use his time wisely to become close to his family. Two days before he died, Tim talked about what he would have missed without the opportunity for a
The hospice aide’s job duties varies depending on the patient. If the hospice patient is in good condition, the job duties are very similar to that of the nursing home CNA. The hospice aide’s main goal is to maintain the patient’s dignity while providing the most comforting care possible. Many hospice patients are referring to as being on “comfort cares” – meaning if they don’t want to eat, they aren’t forced to. The hospice aide’s job is a hard one, as any CNA’s is, but perhaps more so, as they lose their patients at a higher
A living will is a type of advanced health care directive, which states an individual’s wishes for health care treatment when he/she is terminally ill. Living wills are often applied to end-of-life decision making when patients are no longer deemed competent to direct care for themselves. The form of living wills can vary widely. But, most address whether or not to use life-prolong medical treatment such as CPR, respirators, and artificial nutrition and hydration. These documents can also contain information about the importance of quality of life for patients and can name a healthcare proxy to make medical decisions in their place. Having a living will allows individuals to state their
Hospice focuses on end of life care. When patients are facing terminal illness and have an expected life sentence of days to six months or less of life. Care can take place in different milieu including at home, hospice care center, hospital, and skilled nursing facility. Hospice provides patients and family the tool and resources of how to come to the acceptance of death. The goal of care is to help people who are dying have peace, comfort, and dignity. A team of health care providers and volunteers are responsible for providing care. A primary care doctor and a hospice doctor or medical director will patients care. The patient is allowed to decide who their primary doctor will be while receiving hospice care. It may be a primary care physician or a hospice physician. Nurses provide care at home by vising patient at home or in a hospital setting facility. Nurses are responsible for coordination of the hospice care team. Home health aides provide support for daily and routine care ( dressing, bathing, eating and etc). Spiritual counselors, Chaplains, priests, lay ministers or other spiritual counselors can provide spiritual care and guidance for the entire family. Social workers provide counseling and support. They can also provide referrals to other support systems. Pharmacists provide medication oversight and suggestions regarding the most effective
When I was younger my grandfather would take me to a kitchen where I would help put together bags of food and other necessities for homeless people in the area. My grandmother worked at a nursing home so I would come up and entertain the people who didn’t get many visitors, and assist them to the best of my abilities. Helping those people every other week was so much fun, and I have always just loved helping out people in any way possible. I even helped from home, by helping my mom with bake sales that the profit made would go to various charities. I am not in StuCo, but I usually help them pack food for families in need through “Got Your
During the summer or even on weekends my mom would take me with her to go help out her patients. Which included bathing them, feeding them, and caring for them. Not only did I help my mom with her patients but I would always help rake leaves, pick up trash and make their yard look nice. I can’t even image how they would’ve done all the things I did for them with their fragile bodies. I’m glad I was there for them and made a difference. Aside from helping my mom’s patients. I helped an elderly man who was on fire in his backyard. It was around spring time and I heard someone screaming yelling “help” so I went around to look and there he was on fire. I tried so hard to put out the fire and it felt like mission impossible but I did not give up even though the ambulance were on the way. He was burnt pretty bad, but I was so glad I found him. Who knows it could’ve been worse! He is still alive till this day and sits on his porch waiting for me to pass by his house every morning to say good morning. It’s such a wonderful feeling to know that I not only changed a life but I saved
Palliative care - treatment that helps to comfort patients, while slowing the progress of a disease.
developed a passion to emulate my grandmother’s desire to serve others. I volunteered at Church, visited
Green, P. (1984). The pivotal role of the nurse in hospice care. CA: A Cancer Journal for Clinicians, 34(4), 204-205.
I started volunteering at the food bank and the soup kitchen in grade 9, with a nudge from my friend. During my time as a volunteer, I would ask for donations and collect any non-perishable food items. Later I would go to the Soup Kitchen, to help cook some of these items and serve them to those in need. My volunteering experience allowed me to experience the environment and face situations that I otherwise would not. It opened my eyes to the harsh reality and lifestyle that many individuals in our society face today. My time at the food bank and Soup Kitchen helped me understand the importance of giving, ...
Palliative care involves the holistic care to maintain and improve the quality of life of the patient and family during hospitalisation until the terminal stage. Palliation of care refers to the multidisciplinary approach of providing comfort and support for the terminally ill patient and family, thus has an important role in maintaining and improving the quality of life of the whole family. Chronic illness such as cancer gives a physiologic and emotional burden for the patient and family. Education and counselling of the possible options as well as treatments for pain and other symptoms that could help alleviate anxiety, suffering and discomfort. Palliative care provides assistance for the family as a channel for communication between the
Up until a few years ago I never thought that one of my grandparents would be in a nursing home. I had always been lucky to have them healthy. However, this changed about a year ago when my grandfather had a mini-stroke, which caused him to require extra care my grandmother could not provide. Watching my family deal with my grandfather made me aware of the care and services the elderly need and has made me realize how important it is to volunteer at a local nursing home.
I also had the privilege of helping with the Meals on Wheels non profit organization. My grandfather used to be a Meals on Wheels recipient and he would share with me how he enjoyed looking forward to their company and a hot meal daily. I volunteered because I wanted to give back and help someone else’s loved one in the same way. It was very rewarding delivering hot meals to people who didn’t have the means of getting one as well as being there for them to talk to. Overall, it was a very humbling experience, it made me realize just how blessed I am and how much I take for granted daily.