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Caregiver stress model
Theories of caregiver stress
Essays on supporting dementia carers
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The theory of caregiver stress is a middle range theory that was developed from the Roy Adaptation Model in understanding relationships among caregivers and the stress they may face from caring for a chronically ill family member (Tsai, 2003). Caregiver stress stems from the fact that family members, usually children or spouses, must care for their loved one as they age and lose their independence. Children usually feel obligated to care for their parents and normally they want to provide care for this person who has taken care of them through-out life. However, something that these caregivers do not count on is all the added stress caring for an ailing adult entails, especially if that ailing person has a chronic condition like dementia or heart failure. The emotional upheaval, financial burden, and time commitment are all factors that lead to the caregiver stress. This paper will examine the difficulties experienced by caregivers in relation to the chronic conditions of dementia, and heart failure, examine why there is an increase in patients receiving healthcare from family members at home, and the theories’ application in nursing practice.
According to Brodaty and Donkin (2009) It is estimated that there are over 30 million people living with dementia worldwide and it is believed that this figure will double every 20 years. Without a personal caregiver like a spouse, child, or spouses of their children, these people would have a poor quality of life and would most likely be institutionalized much earlier. They state that people with dementia are cared for more often by females in developing countries, like India, than in the USA. In the USA the percentage of men caring for family members was 40% in 2008, which was a 21% incr...
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...ournal of Community Health Nursing, 16(4), 243-253. doi: 10.1207/S15327655JCHN1604_4
Home- the best place for health care: A positioning statement from The Joint Commission on the state of the home care industry. (2011). 1-17. Retrieved from http://www.jhartfound.org/images/uploads/resources/Home_Care_position_paper_4_5_111.pdf
Hwang, B., Sleischmann, K, E., Howie-Esquivel, J., Stotts, N, A., Dracup, K. (2011). Caregiving for patients with heart failure: Impact on patients’ families. American Journal of Critical Care, 20(6), 431-442. doi: 10.4037
Lim, J., Zebrack, B. (2004). Caring for family members with chronic physical illness: A critical review of caregiver literature. Health and Quality of Life Outcomes, 2(50), 1-9. doi: 10.1186/1477-7525-2-50
Tsai, P.F. (2003). A middle-range theory of caregiver stress. Nursing Science Quarterly, 16(2), 137-145. pmid: 12728832
the role of illness characteristics, caregiving, and attachment. Psychology, Health & Medicine, 15(6), 632-645. doi:10.1080/13548506.2010.498891.
...concerns appropriate interventions were assigned to each one. For the priority concern of the family’s ability to cope and their risk of depression commendation and interventative questioning were the chosen interventions. For the priority concern of Gilberts care giver burnout and risk for compassion fatigue commendation and encouraging respite were chosen. The Grape family is a fitting example of the complex difficulties a family can have when they are faced with the difficulty of dealing with a chronic illness and tragedy. This paper demonstrates the importance of assessing and creating interventions for a family in a way which includes every member of the family not only the ones with complications. Raising the question should patients who are suffering from chronic illnesses better off to be treated as an individual or as a member of a functional family unit?
Jeon, Y., Kraus, S. G., Jowsey, T., & Glasgow, N. J. (2010). The experience of living with chronic heart failure: a narrative review of qualitative studies. BMC Health Services Research. doi:10.1186/1472-6963-10-77
Being diagnosed with a chronic illness is a life-altering event. During this time, life is not only difficult for the patient, but also for their loved ones. Families must learn to cope together and to work out the best options for the patient and the rest of the family. Although it may not be fair at times, things may need to be centered on or around the patient no matter what the circumstance. (Abbott, 2003) Sacrifices may have to be made during difficult times. Many factors are involved when dealing with chronic illnesses. Coping with chronic illnesses alter many different emotions for the patients and the loved ones. Many changes occur that are very different and difficult to get used to. (Abbott, 2003) It is not easy for someone to sympathize with you when they haven’t been in the situation themselves. No matter how many books they read or people they talk to, they cannot come close to understanding.
(Davidson, F. G.) Due to the nature of dementia being a neuropsychological disorder, those affected by the disease tend to look like they will not require much care, which, in reality, they often require more care than the caregiver originally expected, leading to stress and burnout. Another effect caused by this can be the caregiver blaming themselves by feeling like they are failing to give proper care, which, in reality, can often be very far from the truth. If the caregiver does not receive help from anyone else, the task of watching over the victim becomes a daunting twenty for hour task. Sometimes, the caregiver won’t be allowed quality sleep. Over 66 percent of home caregivers suffer from some form of psychological or physical illness. The most common illness that is resulted from giving care to Alzheimer’s disease is depression. The caregiver needs to monitor their emotional well-being as well as the well-being as the person that they are giving care to. Usually, giving care to those with dementia is actually more stressful than giving care to those with cancer. When the caregiver is a family member and not a professional, the emotional toll is often even greater. It is important for caregivers to remember that they need to take care of themselves first and
care to the residents suffering from dementia. Banner et al (2009 as cited in Lee J.et al.2012)
Also, the whole family needs to come to term with the health condition, make change in priorities and schedule, and keep the family. For example, it can be much more stressful for a young or a newly married couple because they may have more experience to overcome life's difficulties. As a result, as with individual maturation, family development can be delayed or even revert to a previous level of functioning (Hockenberry, p 762.) Therefore, health care providers need to apply family development theory while planning care for a child and family with chronic health condition. Indeed, family centered care should be a part of that intervention. Parents and family members have huge and comprehensive caregiving responsibilities for their chronically ill child at home or at hospital. Moreover, the main goal taking care of chronic ill child is to “minimize the progression of the disease and maximize the child’s physical, cognitive, psychological potential” (Hockenberry, p 763). Therefore, it is essential to family being part of the child care to give highest quality of care. On the other hand, we are as a part of the health care provider need to give attention to all
However, this type of care brings a lot of unconditioned difficulties due to the constant care they have to provide the elderly people with dementia. In a recent study it was discovered that caregivers experience stress differently given the circumstance this was shown by analysis of 234 people with dementia (Robertson, Zarit, Duncan, Rovine, & Femia, 2007). The findings were that caregivers in intense and distressed groups experienced higher behaviora...
Furthermore, assessment of the caregiver’s perception of the health and functional status of the patient, the preparedness of the caregiver for the job of caregiving is assessed.
... the context of chronic illness: a family health promoting process. Journal of Nursing and Healthcare of Chronis Illness 3, (3), 283-92.
Piccinato, J. M. & Rosenbaum, J. N. (1997). Caregiver hardiness explored within Watson’s theory of human caring in nursing. Journal of Gerontological Nursing, 23(10), pp. 113-117. 32 – 39. Strickland, D. (1996).
Primary caregivers are given an opportunity to take care of their loved ones; however, this job comes with a lot of stress and its consequences (Tsai, 2003). Primary caregivers take care of those with a chronic illness such as a family member or friend, are given a task that is so immense that it induces a lot of stress. In the previous decades, many research articles have developed studies which focused on stressors that were associated with the task of being the primary caregiver; yet, a theory surrounding this topic has not been developed until the early 2000s. Tsai (2003) developed the Theory of Caregiver Stress based on the Roy Adaptation Model to identify the caregiver’s response, perceptions, and adaptations to the stress and burden that primary caregiver’s experience.
-Sonnenberg, E. 2008.Caregiver Stress: The Impact of Chronic Disease on the Family. Available at: http://www.beliefnet.com/healthandhealing/getcontent.aspx?cid=74397.Access date 21 December 2013.
In health care, there are many different approaches throughout the field of nursing. When considering the field of family nursing, there are four different approaches to caring for patients. This paper will discuss the different approaches along with a scenario that covers that approach. The approaches that will be discussed include family as a context, family as a client, family as a system, and family as a component to society. Each of these scenarios are approach differently within the field of nursing.
The Theory of Caregiver Stress was a significant breakthrough for the reasoning of why caregivers are so deeply affected by this job. “The Theory of Caregiver Stress was derived from the Roy Adaptation Model to use as basis in understanding the relationships among caregivers and the stress faced when caring for a chronically ill relative” (Tsai, 2003). The Theory of Caregiver stress is a middle-range theory used to predict the outcome for stress and other various side effects (Dobratz, 2011). These adverse effects are predicted by: Demographic Characteristics, Burden in Caregiving, Stressful life events, Social Support and Social Roles. Also, because of the multitude of different scenarios and background for both the patient and the caregiver, these categories are necessary to compare and effectively use the results. The theory makes four main assumptions regarding adaption: “environmental change; the caregivers’ perceptions will determine how they will respond to the environmental stimuli; the caregivers’ adaptation is a function of their environmental stimuli and adaptation level, and lastly the caregivers’ effectors are results of chronic caregiving such examples include marital satisfaction and self-...