Paediatric palliative care

2488 Words5 Pages
bulb-icon

Recommended: Pediatric palliative care essay

Paediatric palliative care is a taboo topic in today’s society. Paediatric palliative care is a topic that society avoided and does not want to deal with. The World Health Organization (WHO) defines paediatric palliative care as palliative care is the attempt to improve the quality of life in patients who are facing life-threatening illnesses and family members through the prevention and relief of suffering with early detection and treatment of pain, physical, psychosocial, or spiritual (Liben, Wolfe & Papadatou, 2008, p. 852).

Some of the current issues surrounding paediatric palliative care is that health care providers, mainly nurses are feeling the burnout and frustrations of caring for a dying child. Many nurses have claimed to have moral and ethical distress which in turn, can lead to feelings of helplessness and anger (Morgan, 2009, p. 88). Health care providers may also feel personal pain during the care of a dying child (Morgan, 2009, p. 88). Many health care providers and families feel like there is a lack of communication about the disease and treatments the child is receiving, as well as the patients often feel like they do not have a voice about treatments (Hsiao, Evan & Zeltzer, 2007, p.361). The lack of education and knowledge about paediatric palliative care leads to society treating the subject of paediatric palliative as taboo and forbidden to talk about because no one wants to admit that children unfortunately die (Morgan, 2009, p. 87).

Research has shown that many patients will benefit from paediatric palliative care programs and education, but studies have shown that out of 3,000 hospitals in the United States, less than ten percent have programs for end-of life care based toward children (Morgan, 2009, ...

... middle of paper ...

...are of paediatric palliative child. Online resources would be beneficial for families who are in rural areas or who do not have access to many places because of the limitations on travel due to their child’s illness because everyone wants information about what is happening during this difficult time to ease some of the concerns. Inservices, IPPC, simulations, ACNs and communication are all needed in order for the health care providers to maintain and provide a therapeutic relationship with the patient and their families. With better education about paediatric palliative care, knowledge of the effects of caring for paediatric palliative care on the health care providers, communication between families, patients and health care providers about paediatric palliative care, can provide a therapeutic relationship with families and patients during a very difficult time.

Show More
Related

  • Adolescents and the Choice of End of Life Care

    1458 Words  | 3 Pages

    Wiener, Lori, Elizabeth Ballard, Tara Brennan, Haven Battles, Pedro Martinez, and Maryland Pao. 2008. "How I wish to be remembered: the use of an advance care planning document in adolescent and young adult populations." Journal Of Palliative Medicine 11, no. 10: 1309-1313. MEDLINE with Full Text, EBSCOhost (accessed May 26, 2014).

    Read More

  • Becoming a Physical Therapist Assistant

    539 Words  | 2 Pages

    Palliative care is medical or comfort care that reduces the severity of a disease or slows its progress, but does not provide a cure (Dreeben, 2007). Different people have different needs when life is ending. Working with the incurable may sound depressing but death is a certainty and what we do each day for these patients as physical therapist assistants, matters. Providing care effectively and appropriately has a huge impact on the patient, therefore acquiring the ability to comfort and care for a patient at such a critical stage in life, is an amazin...

    Read More

  • Analysis Of J. William Worden's Four Tasks Of Mourninging

    1110 Words  | 3 Pages

    Nurses are both blessed and cursed to be with patients from the very first moments of life until their final breath. With those last breaths, each patient leaves someone behind. How do nurses handle the loss and grief that comes along with patients dying? How do they help the families and loved ones of deceased patients? Each person, no matter their background, must grieve the death of a loved one, but there is no right way to grieve and no two people will have the same reaction to death. It is the duty of nurses to respect the wishes and grieving process of each and every culture; of each and every individual (Verosky, 2006). This paper will address J. William Worden’s four tasks of mourning as well as the nursing implications involved – both when taking care of patients’ families and when coping with the loss of patients themselves.

    Read More

  • social workers role in end of life care

    539 Words  | 2 Pages

    Thanks in part to the scientific and technological advances of todays’ society, enhanced medicinal treatment options are helping people battle illnesses and diseases and live longer than ever before. Despite these advances, however, many people with life threatening illnesses have needs and concerns that are unidentified and therefore unmet at the end of life, notes Arnold, Artin, Griffith, Person and Graham (2006, p. 62). They further noted that when these needs and concerns remain unmet, due in part to the failure of providers to correctly evaluate these needs, as well as the patients’ reluctance to discuss them (p. 63, as originally noted by Heaven & Maguire, 1997), a patient’s quality of life may be adversely affected. According to Bosma et al. (2010, p. 84), “Many generalist social work skills regarding counseling, family systems, community resources, and psychosocial assessments are relevant to working with patients and families with terminal illness”, thereby placing social workers in the distinctive position of being able to support and assist clients with end of life decisions and care planning needs. In fact, they further noted that at some point, “most social work practitioners will encounter adults, children, and families who are facing progressive life limiting illness, dying, death, or bereavement” (p. 79).

    Read More

  • Advance Care Planning in Palliative Care

    3228 Words  | 7 Pages

    The first journal article is about advance care planning (ACP) in palliative care. This is of interest due to several clinical experiences and the realization that many families either ignore the patient’s request for end of life (EOL) care or who have no idea of how to plan for EOL care. By reading the research and understanding the methods used, this will allow for insight into how to implement palliative care into clinical practice across different sites. The authors of this original research are Jeanine Blackford PhD, RN, senior lecturer at La Trobe University in Australia, and Annette Street PhD, associate dean of research and professor of cancer and palliative care studies. According to Blackford & Street (2011), this research is important as there are many countries that “report a low percentage of people who have completed an advance care plan” (p. 2022), and ACP is needed upon admission to facilities that offer palliative care. In addition, the purpose of the study is to try and obtain guidance to integrate an ACP model into routine clinical practice in the community. The research question chosen for the analysis of this article is: Is it feasible to implement ACP into routine practice and documentation at multi-site locations in...

    Read More

  • Improving End-of-Life Care in The United States

    2060 Words  | 5 Pages

    End-of-life care in the United States is often fraught with difficult decisions and borne with great expense. Americans are often uncomfortable discussing death and

    Read More

  • Palliative Care In Palliative Care

    1140 Words  | 3 Pages

    Palliative care is an essential to the creation of a health and wellbeing continuum for Australians living with a chronic illness. It is an approach of care that seeks to improve the life of patients and family experiencing the effects of chronic illness. Palliative care centres on the relief of the symptoms and effects of disease and incorporate the physical, psychological and social dimensions of a person at the end of life. A recent focus for the delivery of palliative care by nurses to Indigenous communities is the consideration that culture can create barriers to the provision of appropriate and beneficial care for the dying or deceased person. This essay explores the palliative nurse caring for Indigenous communities and the need to consider

    Read More

  • Compassion Fatigue in Pediatric Oncology Nurses

    1276 Words  | 3 Pages

    Compassion fatigue is a complex form of secondary traumatic stress often experienced by nurses and other health care professionals due to their stressful work environment. Compassion fatigue is extreme exhaustion that penetrates all aspects of one’s wellbeing, including the physical, emotional, psychological and spiritual aspects of life (Murphy-Ende, 2012). Dealing with children who are both chronically ill or in palliative care is known to be extremely stressful. Not only are nurses faced with dealing with the physical symptoms of their patients, they also must attend to their fragile emotional state and be of assistance to their anxious family members. Oncologic diagnoses can put a child and their family into turmoil. Since the nurse is the first, and most constant point of contact, they are often the ones who become responsible for ensuring well-being of the entire family throughout the ...

    Read More

  • Mid-Range Theory Of Patient Advocacy

    1174 Words  | 3 Pages

    It is found that nurses report that their most uncomfortable situations come with prolonging the dying process and some struggle with ethical issues by doing so (Seal, 2007). Studies have shown that implementation of the RPC program and educating nurses have increased the nurses’ confidence in discussing end-of-life plans (Austin, 2006). With confidence, the nurse is able to ask the right questions of the patient and make sure that the patient’s wishes are upheld in the manner that they had wanted, such as to not resuscitate or to make sure their spiritual leader is present when passing (Austin,

    Read More

  • Essay On Community Nursing

    1060 Words  | 3 Pages

    This is further corroborated by Ingleton et al (2011), who believed that the need for community-based palliative and end of life care will increase rapidly over the course of the next 20 years because of increasing emphasis on shifting the delivery of care out of the hospital and into primary care which invariably leads to changes in the role of Community Nurses and in the demands on their time. Consequently, the above mentioned changes will place tremendous pressure on community nursing services and family carers (Department of Health, 2006a and Department of Health, 2006b)..

    Read More

  • Essay On End Of Life Care Plan

    1361 Words  | 3 Pages

    The care of patients at the end of their live should be as humane and respectful to help them cope with the accompanying prognosis of the end of their lives. The reality of this situation is that all too often, the care a patient receives at the end of their life is quite different and generally not performed well. The healthcare system of the United States does not perform well within the scope of providing the patient with by all means a distress and pain free palliative or hospice care plan. To often patients do not have a specific plan implemented on how they wish to have their end of life care carried out for them. End of life decisions are frequently left to the decision of family member's or physicians who may not know what the patient needs are beforehand or is not acting in the patient's best wishes. This places the unenviable task of choosing care for the patient instead of the patient having a carefully written out plan on how to carry out their final days. A strategy that can improve the rate of care that patients receive and improve the healthcare system in general would be to have the patient create a end of life care plan with their primary care physician one to two years prior to when the physician feels that the patient is near the end of their life. This would put the decision making power on the patient and it would improve the quality of care the patient receives when they are at the end of their life. By developing a specific care plan, the patient would be in control of their wishes on how they would like their care to be handled when the time of death nears. We can identify strengths and weakness with this strategy and implement changes to the strategy to improve the overall system of care with...

    Read More

  • Grief and Oncology Nursing

    1188 Words  | 3 Pages

    Papadatou, D., & Bellali, T. (2002). Greek nurse and physician grief as a result of caring for children dying of cancer. Pediatric Nursing, 28(4), 345-53, 363-4. doi: 2003016885

    Read More

  • Death And Dying Essay

    1240 Words  | 3 Pages

    The subject of death and dying is a common occurrence in the health care field. There are many factors involved in the care of a dying patient and various phases the patient, loved ones and even the healthcare professional may go through. There are many controversies in health care related to death, however much of it roots from peoples’ attitudes towards it. Everyone handles death differently; each person has a right to their own opinions and coping mechanisms. Health care professionals are very important during death related situations; as they are a great source of support for a patient and their loved ones. It is essential that health care professionals give ethical, legal and honest care to their patients, regardless of the situation.

    Read More

  • Quantitative Research Article Critique

    1647 Words  | 4 Pages

    The purpose for this research study was to develop a communication strategy for family members of patients dying in the ICU by evaluating a format consisting of a proactive end-of-life conference and brochure to see whether the intervention could minimize the effects of bereavement for the families left behind. This research provided the family members with more opportunities to discuss the patient wishes, to express emotions, to alleviate feelings of guilt, and to understand the goals of care.

    Read More

  • Ethical Dilemma Assignment

    2679 Words  | 6 Pages

    ...lling and the dying patient: A Conspiracy of Silence? International Journal of Palliative Nursing 6:8, pp.398-405.

    Read More

More about Paediatric palliative care

Open Document