My first encounter with hospice was on the receiving end and I remember asking the hospice nurse that first day, “How can you do this every day?” I will never forget her answer, “Hospice is not about dying, it’s about affirming life, helping people live their last days to the fullest.” During the next several months, I began to understand how true her words were. Today, as a volunteer, those words echo in my mind each time I’m about to meet a new patient.
I was so excited to get my first assignment; I had taken all the volunteer classes, listened to countless stories from other volunteers. I was trained and eager …until I received my assignment. Anna was a 92 years old lady with colon cancer given only a few days to live. Anna was bedridden and mute. Mute…none of the stories I had heard ever mentioned their patients being mute. A thousand questions came to mind along with a mild panic attack. How would I ever know what she needed? Would I know the right words? How would I give her support and companionship if she couldn’t tell me what she needed? Would I be enough? I was a nervous wreck!
Getting ready to walk into Anna’s hospice room, my anxiety level was escalating. Saying a quick prayer, I asked God to help me find the right words to comfort Anna and her family. Upon knocking on her door, a young lady in her middle 20’s answered the door. Opening the door for me, she informed me Anna was her grandmother and she would like me just to sit with her and that she would return after work. And she left. No get to know you introduction here, very formal, matter of fact, serious kind of girl. No one was going to invade her space. Oh well, I thought, I’m here to help Anna, hopefully Julie will open up later.
Turning my attenti...
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...slightly. The disease seemed to loosen its grip on her body with each stroke. I was rejoicing when Anna’s head finally rested on her pillow, something that hadn’t happened since I had gotten there.
By the time Julie returned her grandmother was ever so lightly snoring. The look of gratification and appreciation of Julie’s previously stern face melted my heart and again my eyes welled with tears. The fence Julie had built around her heart slowly disintegrated as she observed the bond I had developed with her “mom”. With a quivering voice, Julie revealed the stress and emotional turmoil of watching this devastating disease imprison the only mother she had ever known.
Volunteering for hospice has been one of the most gratifying things I have done. Every patient is different and sometimes you’re just there to support the family, but every family is so appreciative.
God tells his children, “He will wipe every tear from their eyes. There will be no more death or mourning or crying or pain, for the old order of things has passed away” (Revelation). Death is one of the most frightening and confusing times a person can go through. Watching a loved one pass away is also one of the hardest trials a person can experience. Many people assume that death is a time of pain and the only thing that they can do is mourn and watch their loved one fade away from the earth. This is wrong. There are ways that people can turn a bad situation to good. Dying doesn’t have to be painful and full of suffering. The County Hospice staff makes sure of this. The Hospice staff not only takes care of passing patients physically, but they also take care of the patients emotionally and spiritually. Hospice staff also plays a key role in helping families during the grieving process.
She had been in New York for quite some time, doing well in school and with a brand new best friend. When she returned to her grandparents, she nurtured her grandpa in his last moments, and when he had taken his last breath a little bit of Jacqueline had slipped away as well. It isn’t that she hadn’t cherished the time with her grandfather, but as if his death was too sudden, and when she had started to really find her way in New York and South Carolina began to fade into a memory, the news was a wake up call.
Illness and pain are by fare two of the worst things we could ever see happen to a loved one. Moreover, know that illness and pain is irreversible and sometimes fatal. Most illness in our older loved ones are caused by the fact that their body is aging. “Older adults experience more chronic illnesses than any other age group (Merck Research Laboratories, 1997).” (Brown 93). “The elderly, especially those over 80 years of age are the fastest growing population in the US, and the elderly report more pain than younger persons.” (Karen Bellenir 57). Michael Wolff discusses his mother’s illnesses and how it is effecting her everyday life. He goes a step further and paints a picture of how it makes him feel, in turn Wolff is able to capture the reader and draw them close to his opinion. “She strains for cognition and shockingly, sometimes bursts forward, reaching it – “Nice suit,” she said to me, out of the blue, a few months ago- before falling back. That is the thing that
Final Gifts, written by hospice care workers, Maggie Callanan and Patricia Kelly, includes various stories detailing each of their life changing experiences that they encountered with their patients. Hospice care allows the patient to feel comfortable in their final days or months before they move on to their next life. This book contains the information considered necessary to understand and deal with the awareness, needs, and interactions of those who are dying. Not only are there stories told throughout the book, there are also tips for one to help cope with knowing someone is dying and how to make their death a peaceful experience for everyone involved. It is important that everyone involved is at as much peace as the person dying in the
Being in hospice care is a better alternative than being stuck in the hospital to try to avoid the unavoidable. Common misconceptions about Hospice could include that hospice makes life more miserable; however, a physician expressed his findings in Hospice,“You can only fail a patient if you fail to understand and respond to their needs. We may not be able to cure all of our patients, but if we can make them comfortable in the last moments of their lives, we will not have failed them”..Hospice care gradually emerged in the 1970s, when groups like the National Hospice Organization were formed “in response to the unmet needs of dying patients and their families for whom traditional medical care was no longer effective.”Herbert Hendin, an executive director of the American Suicide Foundations illustrates a story of a young man diagnosed with acute myelocytic leukemia and was expected to have only a few months before he died. He persistently asked the doctor to assist him, but he eventually accepted the medical treatment. His doctor told him he can use his time wisely to become close to his family. Two days before he died, Tim talked about what he would have missed without the opportunity for a
The hospice aide’s job duties varies depending on the patient. If the hospice patient is in good condition, the job duties are very similar to that of the nursing home CNA. The hospice aide’s main goal is to maintain the patient’s dignity while providing the most comforting care possible. Many hospice patients are referring to as being on “comfort cares” – meaning if they don’t want to eat, they aren’t forced to. The hospice aide’s job is a hard one, as any CNA’s is, but perhaps more so, as they lose their patients at a higher
The nursing discipline embodies a whole range of skills and abilities that are aimed at maximizing one’s wellness by minimizing harm. As one of the most trusted professions, we literally are some’s last hope and last chance to thrive in life; however, in some cases we may be the last person they see on earth. Many individuals dream of slipping away in a peaceful death, but many others leave this world abruptly at unexpected times. I feel that is a crucial part to pay attention to individuals during their most critical and even for some their last moments and that is why I have peaked an interest in the critical care field. It is hard to care for someone who many others have given up on and how critical care nurses go above and beyond the call
The point of view and tone for this story helps relate to the theme. The narrative is in third person point of view with limited omniscient. This means that the reader is able to go inside the mind of the grandmother and know what she is thinking and feeling. The only ot...
I rushed out of the bedroom confused. I began to realize what was going on. I ran to where I last saw her and she was not there. Never before I felt my heart sank. My eyes filled with tears. I dropped to my knees and felt the cold white tile she last swept and mopped for my family. I look up and around seeing picture frames of of her kids, grandchildren, and great grandchildren smiling. I turn my head to the right and see the that little statue of the Virgin Mary, the last gift we gave her. I began to cry and walked to my mother hugging her. My father walked dreadfully inside the house. He had rushed my great grandmother to the hospital but time has not on his side. She had a bad heart and was not taking her medication. Later that morning, many people I have never seen before came by to pray. I wandered why this had to happen to her. So much grief and sadness came upon
Through the traumatic experience of my father’s illness, a positive and optimistic perspective of commitment to nursing career evolved. My journey of becoming a nurse and commitment of shining a bright light on another individual life has been my life long goal. I moved to the United States in early 1980 and with God help and guidance, I followed the nursing career and promised to make a small difference. During my first years as a nursing student, I took a part-time volunteered position as a candy-stripe and a part-time position as a nurse aid in a community hospital to provide relief and support to hospital staffs. I rocked and read poems for babies in the nursery, as a nurse aid I assist nurses with vital signs, blood pressures, fill ice pitchers in patient rooms, runs specimens to labs and sit with patients in the room and feed patients. I still volunteer in my hospital oncology department and the underserved and homeless clinics with several Emory physicians at the Good Samaritan Health Center, Mercy Care and National AIDS Education and Services for Minorities (NAESM) all in Fulton County, Ga, because it gave me fulfillment and appreciative of life
Hospice Care refers to the focus on quality of care and life rather than treatment and curative options for someone and their disease. This type of care includes not only the patient, but also their family and physician. Dame Cicely Saunders states, “You matter because of who you are. You matter to the last moment of your life, and we will do all we can, not only to help you die peacefully, but also to live until you die.” With this quote, Saunders reflects what Hospice believes in and their commitment, or duty, for the patient. Patients who are terminally ill can be considered as patients with cancer, diabetes, and many more diseases. Very few cancer patients have a type of cancer that has a known cure, and unlike those patients many other cancer patients possess a type of cancer that is curable today. Terminally ill patients have to choose between continuing treatment or being provided with Hospice Care. Both hope and Hospice means that the patient can have both the benefit from treatments, which give them hope that the disease could be cured or at least reduce the symptoms, and Hospice Care, which provides the patients with relieve of pain and
... support for people with cancer. The story of the patient and his family is inspiring, encouraging, informative, also comforting, all at once. This book has given me new understandings as a student nurse about how I should look at our patients, their families, and their caregivers. As a family member that played the role of caregivers they took their concerns and fears to God, they had the strength and courage to face their painful journey. I learned how to deal with the most complex of challenges which includes fear, denial, and how to find the way to spiritually prepare the patient and the caregivers. The most important part that cough my attention was the genuine compassion from the nurses changed and helped the family to reach that internal peace by giving the greatest care to the terminally ill and encourage the family to find the spiritual peace and comfort.
My earliest experiences of observing nursing in action occurred during my last two years of high school. My father was diagnosed with cancer during the spring of my junior year and died right before my senior year. During that short time I watched as the nurses cared for him and I could see compassion and empathy in the way they looked at him. It never occurred to me until after I had raised my children that I wanted to be able to help people in the same way those nurses helped my dad. But now when I tell people that I want to be an oncology nurse, people often respond by saying that they would never choose that type of nursing. They say that they could not stand to watch their patients die so frequently. Their reactions, along with this course in death and dying, have made me question how I might be able to bear the challenges of nursing in an area where death of my patients may be common. I believe that oncology will be a positive specialty to work in because of the consistent advances in prevention, early detection, and treatment of cancer. Furthermore, I believe that William Worden’s four tasks of mourning as presented in our text book is a good framework for the oncology nurse to use in order to cope with the repeated losses inherent in this type of nursing (Leming and Dickinson, 2011).
Up until a few years ago I never thought that one of my grandparents would be in a nursing home. I had always been lucky to have them healthy. However, this changed about a year ago when my grandfather had a mini-stroke, which caused him to require extra care my grandmother could not provide. Watching my family deal with my grandfather made me aware of the care and services the elderly need and has made me realize how important it is to volunteer at a local nursing home.
It was June 6, 2011. I remember taking my mother to the County Hospital’s emergency room. She seemed extremely exhausted; her eyes were half-closed and yellow, and she placed her elbow on the armchair, resting her head on her palm. I remember it was crowded and the wait was long, so she wanted to leave. I was the only one there with her, but I did not allow her to convince me to take her home. I told her in Spanish, “Mom, let’s wait so that we can get this over with and know what’s going on with you. You’ll see everything is okay, and we’ll go home later on.” I wish then and now that would have been the case. Unfortunately, she was diagnosed with colon cancer that had spread to many parts of her body including her lungs and kidneys. The doctor said to me not considering that I was a minor and my mother’s daughter, “Her disease is very advanced and we don’t think she will live longer than a year.” With this devastating news, I did not know what to do. I thought to myself that perhaps I should cry, or try to forget and take care of her as best I could and make her laugh to ease her pain.