The genetic technology revolution has proved to be both a blessing and a blight. The Human Genome Project is aimed at mapping and sequencing the entire human genome. DNA chips are loaded with information about human genes. The chip reveals specific information about the individuals’ health and genetic makeup (Richmond & Germov 2009).The technology has been described as a milestone by many in that it facilitates research, screening, and treatment of genetic conditions. However, there have been fears that the technology permits a reduction in privacy when the information is disclosed. Many argue that genetic information can also be used unfairly to discriminate against or stigmatize individuals (Willis 2009).
Doctors, hospitals and other care providers dispute that they should have access to the medical records and other health information of any patient citing that they need this information to provide the best possible treatment for proper planning. Insurers on the other hand claim they must have personal health information in order to properly process claims and pay for the care. They also insist that this will provide protection against fraud. Government authorities make the same arguments saying that in providing taxpayer-funded coverage to its citizens, it has the right to know what it is paying for and to protect against fraud and abuse. Researchers both medical and none nonmedical have the same argument saying that they need access to these information so as to improve the quality of care, conduct studies that will make healthcare more effective and produce new products and therapies (Easthope 2005).
All these arguments when analyzed are valid. This has brought about ethics issues that are involved with increased use and r...
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... lives (Richmond et al. 2009).
The state should take the responsibility of coming up with laws and regulations on access and use of gene information. The information should be under the custody of the federal government and it should be coded and encrypted for security reasons. Any one in need of this information should approach the federal agency responsible.
Works Cited
Easthope, G., 2005. Alternative Medicines. In: Germov, ed. An Introduction to Health Sociology. Melbourne :Oxford University Press, pp. 332-348.
Richmond, K. and Germov, J., 2009. Sociology of Health Promotion. In: Germov, ed. An Introduction to Health Sociology. Melbourne: Oxford University Press, pp. 476-499.
Willis, E., 2009. The Human Genome Project: A Sociology of Medical Technology. In: Germov, ed. An Introduction to Health Sociology. Melbourne :Oxford University Press, pp. 328-341.
The PBS documentary “Nova – Cracking Your Genetic Code” tells about the genome sequencing technology: its current possibilities, advantages, disadvantages and future potential. The system became cheaper, faster and more available since the first human genome was fully sequenced in 2000. Modern companies use the technology to provide clients with the information about their genes and impacts they can have on owners’ health. Hospitals can provide more accurate diagnosis and personalized treatments with the aid of the genome sequencing. The video shows several examples of these benefits. But it mentions concerns about the quality of services, risks of exaggerated
In today’s modern age science is moving at a rapid pace; one of those scientific fields that has taken the largest leaps is that of genetics. When genetics first comes to mind, many of us think of it as a type of science fiction, or a mystical dream. Yet genetics is here, it is real, and has numerous ethical implications.
Studies to make the process quicker and cleaner are under development.... ... middle of paper ... ... Insurance providers and other holders of genetic information should be prohibited from releasing genetic information (Hudson, 1998). Guidelines like these need to be formed into a federal law that people can pass in one way or another so that we can be protected from the various forms of discrimination that is possible with this kind of information.
Tannahill, A., Tannahill, C., & Downie, R. S. (1999) Health Promotion. Models and Values. Oxford University Press.
The science fiction movie Gattaca reveals how human nature is replaced by the advance technology through the genome manipulation. Knowing an individual’s complete genome violate the human rights and freedom, which is not acceptable then and now. In the film, the society judges people’s social levels and their full potential by testing their DNA whether is manipulated or not. If everyone’s genomes were exposed to the world, the society would immediately distinguish and criticize people only from their genome, which is not equitable and respectable to human nature. Also, people would classify each other in work fields, schools, health care systems, and even between family members. The film depicts that every individual was monitored since they
The Human Genome Project is the largest scientific endeavor undertaken since the Manhattan Project, and, as with the Manhattan Project, the completion of the Human Genome Project has brought to surface many moral and ethical issues concerning the use of the knowledge gained from the project. Although genetic tests for certain diseases have been available for 15 years (Ridley, 1999), the completion of the Human Genome Project will certainly lead to an exponential increase in the number of genetic tests available. Therefore, before genetic testing becomes a routine part of a visit to a doctor's office, the two main questions at the heart of the controversy surrounding genetic testing must be addressed: When should genetic testing be used? And who should have access to the results of genetic tests? As I intend to show, genetic tests should only be used for treatable diseases, and individuals should have the freedom to decide who has access to their test results.
It is patients’ right to opt for genetic testing on their own DNA, although they are accepting a great risk by doing so. DNA is unique to each individual, present in each individual since conception, and influences who each individual is, so the information contained within it belongs to each patient, despite the risks. Such risks include DNA testing services providing results to potential employers or insurers, who can make decisions at the disadvantage of the patients if high disease probabilities are discovered. The results can also cause patients to react emotionally poorly and make negative changes to their lifestyles. Although risky, patients deserve the rights to take these risks if they choose to do so.
Health promotion is a multifaceted movement with a core value on respect, empowerment, equity, inclusion and social justice (MacDougall 2002). Aims to achieve holistic health, while it is influenced by medical and social determinants. These determinants which aids to deter...
In today’s world, people are learning a great deal in the rapidly growing and developing fields of science and technology. Almost each day, an individual can see or hear about new discoveries and advances in these fields of study. One science that is rapidly progressing is genetic testing; a valuable science that promotes prevention efforts for genetically susceptible people and provides new strategies for disease management. Unnaturally, and morally wrong, genetic testing is a controversial science that manipulates human ethics. Although genetic testing has enormous advantages, the uncertainties of genetic testing will depreciate our quality of life, and thereby result in psychological burden, discrimination, and abortion.
The debate over the importance of a Human Genome Project can be cleared up by looking at what the human genome actually is, and why knowing its DNA sequence can be beneficial to the scientific and the human community. The human genome is made up of about three billion base pairs, which contain about 100,000 genes. The 100,000 genes in the 46 human chromosomes only account for a small total of the DNA in our genome. Approximately 10 percent of our DNA make up these genes in our genome, these genes are what is actually encoded for and used by our body to make vital proteins needed for everyday life. The remaining 90 percent of our three billion base pairs are repeated sequences between genes that do not encode for any particular product. These repeated sequences account for the reason why 99 percent of any humans DNA is identical to another human's (1). With this knowledge many people believe it is not worth the time or money to sequence the entire human genome when only a small percent is used to encode for proteins. However, by sequencing the whole genome researchers will no longer have to do a needle in the haystack type of search for small genes, like the one found on chromosome four that is responsible for Huntington's disease (4). Also, knowing the complete human DNA sequence will allow scientists to determine the role and importance of the repeated DNA, non-protein encoding, sequences in our body.
...rom now we will be able to use and identify how we can properly and ethically produce such beings. Not only producing the ideal perfect human gene is beneficial, but learning how to prevent certain illnesses and experiment with new medications that will make living longer. Collecting broad amounts of data throughout the world of all types of generations and professions, we can create a DNA encrypted code that should be closely regulated based on genetic manipulation, not to hurt the society, but to slowly help people at a realistic rate. The way the future is looking is promising towards a better way of life and if we keep heading down this road to our idea of perfection, supervision is needed to stabilize populations where genetic altering is placed and for every human in society to have an opportunity to be placed in a type of gene category for future evaluations.
To reach a state of complete physical, mental and social wellbeing, an individual or group must be able to identify and to realize aspirations, to satisfy needs, and to change or cope with the environment. Health is, therefore, seen as a resource for everyday life, not the objective of living. Health is a positive concept emphasizing social and personal resources, as well as physical capacities. Therefore, health promotion is not just the responsibility of the health sector, but goes beyond healthy life-styles to wellbeing. Health promotion goes beyond health care. It puts health on the agenda of policy makers in all sectors and at all levels. It directs policy makers to be aware of the health consequences of their decisions and accept their responsibilities for
In the movie Gattaca, a futuristic world is illustrated where people have the opportunity to choose the exact personality traits, physical features, and abilities their baby will have. One scene in the movie shows how DNA can be used to test for one’s inclination towards disease, as well as personality. This brings up several ethical issues about investigating others’ DNA, and brings up the question: “Is this a violation of privacy?”
The Health Insurance Portability and Accountability Act (HIPAA), Patient Safety and Quality Improvement Act (PSQIA), Confidential Information and Statistical Efficiency Act (CIPSEA), and the Freedom of Information Act all provide legal protection under many laws. It also involves ethical protection. The patient must be able to completely trust the healthcare provider by having confidence that their information is kept safe and not disclosed without their consent. Disclosing any information to the public could be humiliating for them. Patient information that is protected includes all medical and personal information related to their medical records, medical treatments, payment records, date of birth, gender, and
Kevin White pp: 5-8k introduction to sociology of health and illness second edition books.goole.co.uk accessed 11-04-2014