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Ethics of medical informed consent
Ethics of medical informed consent
Tuskegee Study of Untreated Blacks with Syphilis in Macon County, Alabama
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People Should not be Forced to Give Away Their Bodies
Question: Some of you may have read the book “The Immortal Life of Henrietta Lacks”. Lack’s cells were taken without her permission and used of research. Although most acknowledge that her cells should not have been used without her permission, Lack’s cells were unique because they were especially able to grow apart from her body. If our body parts can help with major medical advancements should we be forced to give them? Henrietta Lacks, specifically her cells, have played a major role in a variety of medical breakthroughs. Unfortunately, for a period of time, Lacks did not know her cells were being used for major medical breakthroughs. Lacks’s cells were unique in a way that they
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Autonomy is the idea that “rational individuals should be permitted to be self-determining” (pg. 941). In other words, Henrietta Lacks, a rational individual, was not allowed to make a self-determining decision as to if the cells should be removed or not. People act autonomously when their actions are the result of their own choices and decisions. Patients should be able to make autonomous decisions regarding their actions, options, and outcomes. Another example of autonomy being violated is the Tuskegee Syphilis study. In the study “participants were led to believe they were receiving appropriate medical treatment when in fact such treatment was being actively withheld to study the effects of their disease” (pg. 943). In both Lack’s situation and the Tuskegee Syphilis Study, African-American participants were used and all participants were denied the opportunity to decide what happens to his or her body. However, autonomy is more than the freedom of making a decision, “there must be genuine options to choose among” (pg. 943). Overall, if a person does contain a vital part of major medical advancements such as Henrietta Lacks's cells, he or she should not be coerced into giving away his or her body. Since humans are rational individuals they should also be …show more content…
Some utilitarians might believe that it is beneficial to force people into giving their bodies as long as it benefits a majority of people in the long run. For example, some may believe that it was reasonable to take Lacks’s cells since they were vital to many medical breakthroughs. Furthermore, utilitarianism does not seem to require informed consent. In detail, “If more social food is to be gained by making people research subjects without securing their agreement, then this may be morally legitimate on some utilitarian accounts” (pg. 169). Overall some utilitarians may believe that as long as the outcome is beneficial to a majority of people then informed consent is not necessary.
Reply 2
However, the inhospital hospital shows that a utilitarian-based decision would not be beneficial in the long run. For example, if Joe is perfectly healthy besides a small stomach ache then a utilitarian doctor may find it beneficial to remove Joe’s body parts, killing him, in order to help the other patients who are seen as more valuable than Joe. If it is found that doctors continue to partake in this behavior it could lead to mistrust between the medical professionals and patients. People would fear their outcome may be similar to Joe's; therefore, more people will be hurt in the long run rather than helped.
Argument
All I can say is amazing information of your glorious and late Henrietta Lacks. This incedible women bettered our society in ways no common human could understand at the time because of how complex this matter was and still very much indeed is. I know there is much contraversy with the matter of how scientists achived immortal cells from your late relative, and I do strongly agree with the fact that it was wrong for these researches to take advantage of this incredible women, but I know it is not for me to say nonethless it must be said that even though it was wrong to take Lacks’ cells when she was dying sometimes one must suffer to bring joy to the entire world.
The book The Immortal Life of Henrietta Lacks by Rebecca Skloot is the result of years of research done by Skloot on an African American woman with cervical cancer named Henrietta Lacks. Cells from Lacks’ tumor are taken and experimented on without her knowledge. These cells, known as HeLa cells, are the first immortal human cells ever grown. The topic of HeLa cells is at the center of abundant controversial debates. Despite the fact that her cells are regarded as, “one of the most important advancements in the last hundred years” (4), little is actually known about the woman behind the cells. Skloot sets out on a mission to change this fact and share the story of the woman from whom the cells originate and her family as they deal with the effects these cells have on them.
To have something stolen from you is devastating and can change your life. But what if what was taken from you will save billions of human lives? In the book The Immortal Life of Henrietta Lacks by Rebecca Skloot, we see a woman named Henrietta had a biopsy of a cancerous tumor, and the cells from the tumor were able to live and grow outside of her body; and even better, the cells go on to find the cure for diseases such as polio. The catch is this: she signed a document giving her hospital permission to perform any medical procedure they find necessary to help her treatment, but she never gave specific permission for the cells in that biopsy to be tested and cultured. Now the big debate is over whether or not it was legal for her doctors
Most people live in capitalist societies where money matters a lot. Essentially, ownership is also of significance since it decides to whom the money goes. In present days, human tissues matter in the scientific field. Rebecca Skloot, author of The Immortal Life of Henrietta Lacks, shows how Henrietta Lacks’s cells have been used well, and at the same time, how they have been a hot potato in science because of the problem of the ownership. This engages readers to try to answer the question, “Should legal ownership have to be given to people?” For that answer, yes. People should be given the rights to ownership over their tissues for patients to decide if they are willing to donate their tissues or not. Reasons will be explained as follows.
Henrietta Lacks was born on August 18, 1920 in Roanoke, Virginia. She stayed with her grandfather who also took care of her other cousins, one in particular whose name is David (Day) Lacks. As Henrietta grew up, she lived with both her Grandpa Tommy and Day and worked on his farm. Considering how Henrietta and Day were together from their childhood, it was no surprise that they started having kids and soon enough got married. As the years continued, Henrietta noticed that she kept feeling like there was a lump in her womb/cervix and discovered that there was a lump in her cervix. Soon enough, Henrietta went to Johns Hopkins Medical Center to get this check and learned that she had cervical cancer. But here is where the problem arises, Henrietta gave full consent for her cancer treatment at Hopkins, but she never gave consent for the extraction and use of her cells. During her first treatment TeLinde, the doctor treating Henrietta, removed 2 sample tissues: one from her tumor and one from healthy cervical tissue, and then proceeded to treat Henrietta, all the while no one knowing that Hopkins had obtained tissue samples from Henrietta without her consent. These samples were later handed to ...
At the time the tissue samples were collected from Henrietta Lacks she was an individual capable of deliberation about personal goals and of acting under the direction of such deliberation (Belmont Report, 1979). By collecting the samples without Henrietta’s sufficient consent she was denied of her freedom of choice. She was not given the opportunity for her decisions
Henrietta’s cells were being inaugurated with space travel, infused into rat cells, and even being used to make infertile hens fertile again. However, these are only a few of the many accomplishments that Henrietta’s immortal cells made possible: “The National Cancer Institute was using various cells, including HeLa, to screen more than thirty thousand chemicals and plant extracts, which would yield several of today’s most widely used and effective chemotherapy drugs, including Vincristine and Taxol,”(pg.139). This example of logos from the text again shows just how important these Henrietta’s cells were to the future developments in
Your life, like many other has probably at some point been touched by Henrietta lacks and most likely you didn’t even know it.
What is privacy? Well, it’s the state or condition of being free from being observed or disturbed by other people. In terms of information, it is the right to have some control over how one’s own personal information is collected and used. This is a right that has been inherently protected by the U.S Constitution, agreed upon by the Supreme Court, and yet, issues around this very topic arise every day. In The Immortal Life of Henrietta Lacks, the author Rebecca Skloot, addresses this issue in her story of the women behind the infamous HeLa cells. Her story shows that although privacy is a right that is inherently protected by the law, situations of injustice can still occur. Examples of this in the book include when Henrietta’s cells were given to Dr. Gey without any consent from Day, the situation in which Mr. Golde’s spleen was sold without his permission, as well as when the Lacks family were recontacted and mislead about the reasons they were tested years after Henrietta’s death.
In the book, The Immortal Life of Henrietta Lacks, by Rebecca Skloot, the author highlights the scientific advances of HeLa cells, as well as the personal setbacks of Henrietta Lacks’ family. HeLa is a commonly used cell line in laboratories worldwide and is so often referred to as “the cell line that changed modern science”. This line of immortal cells has helped advance science in ways beyond compare. HeLa has allowed cell testing, cell cloning, and the discovery of various vaccines, including the HPV vaccine. While HeLa has done wonders in the medical field, it has caused unrepairable damage among the Lacks family.
In the novel The Immoral Life of Henrietta Lacks by Rebecca Skloot, the author tells the miraculous story of one woman’s amazing contribution to science. Henrietta Lacks unknowingly provides scientists with a biopsy capable of reproducing cells at a tremendusly fast pace. The story of Henrietta Lacks demonstrates how an individual’s rights can be effortlessly breached when it involves medical science and research. Although her cells have contributed to science in many miraculous ways, there is little known about the woman whose body they derived from. Skloot is a very gifted author whose essential writing technique divides the story into three parts so that she, Henrietta
Nowadays, when patients are given consent forms, every step is explicitly stated so that there is no confusion or harm. All in all, Henrietta Lacks has contributed and made significant changes to the scientific, ethical, and political aspects of society.
In 1951, the sickness of a poor African American woman named Henrietta Lacks -also know as HeLa- would go on to change the face of scientific research; without her consent. Henrietta Lacks went into John Hopkins Hospital in hopes of medical treatment, but instead her cells were unlawfully stolen from her and used for scientific advances in the world of medicine for the creations of the polio vaccine, cell cloning, vitro fertilization, and gene mapping. Long after Henrietta's death, Henrietta's family was forced to live a life of poverty without medical insurance simply because they could not afford it although their mothers cells had yielded billions of dollars due to its advances in the medical world. The scientific community and the media
Autonomy is a concept found in moral, political, and bioethical reasoning. Inside these connections, it is the limit of a sound individual to make an educated, unpressured decision. Patient autonomy can conflict with clinician autonomy and, in such a clash of values, it is not obvious which should prevail. (Lantos, Matlock & Wendler, 2011). In order to gain informed consent, a patient
A utilitarian would argue that organ donations save lives because when citizens continue to donate their organs, more lives are spared. Gregory Pence mentioned in his book titled “Classic Works in Medical Ethics” that three thousand Americans lose their lives while waiting for an organ transplant. Nevertheless, if organ donations become prevalent it would save or prolong some of the lives in America (Pense, 2007, 75). For example the risk of a kidney transplant ending in death or disabilities is three to ten thousand and in comparison to liposuction the risks are relatively the same (Pense, 2007, 62). A utilitarian would argue that people would rather help theirselves through liposuction instead of helping others. Other theorists such as Kant fail to realize the experience of donating an organ outweighs the potential harm to the donor (Pense, 2007, 62). Adult organ donations can be taken from people that have been recently deceased. This means that there is no physical harm or risk to the person donating the organ. Nonetheless, doctors using donated organs from the recently deceased to save many lives, would create good consequences for the organ recipient population. The chance of organ donations succeeding is greater than the negative outcome (Pense 2007, p ...