Henrietta Lacks Ethics

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Rebecca Skloot’s The Immortal Life of Henrietta Lacks tells the true story of one woman’s oblivious contribution to the medical world and the ongoing ethical controversy behind it. Henrietta’s cells, commonly called HeLa, have given rise to many scientific advancements; however many scientists still do not know who she was. Her family is also exploited by researchers and the media as they receive no information in return for their cooperation. Although the scientific community and the media view Henrietta and her family as abstractions and often misuse the help that they provide, Skloot provides an honest portrayal of both sides of the story, including the scientific perspective and the Lackses’ perspective. The scientific community …show more content…

Even with the numerous advancements that HeLa brings, “her family can’t afford to see [any] doctors” (8). Scientists believe that the family’s involvement would hinder the distribution of HeLa due to the questionable methods by which the cells are attained. According to the Common Rule, research “subjects must be allowed to withdraw from research at any time” (234). Theoretically, the Lacks family has the right to withdraw HeLa from worldwide medical research because Henrietta herself is no longer living. When Victor Mckusick requests the blood of the Lacks children for research, he does not explain to them “why he was having someone draw blood” from them (131). Mckusick could have informed them of the actual purpose of the blood tests, which would have been the morally-correct option; instead he keeps his motives hidden to prevent …show more content…

She was one of the first people to not only write a biography pertaining to HeLa, but about both the “cells and the woman they came from” (6). She has a passion for the scientific angle as much as the story behind the science. Skloot’s portrayal of Henrietta as “someone’s daughter, wife, and mother” rather than simply “the woman behind the cells” shows how she viewed Henrietta as a person, not an abstraction (6; 73). Since she views the Lacks family as people not tools, she is more motivated to tell the world their story. Deborah and Skloot “form a deep personal bond” over the duration of time that they got to know each other (7). Due to their newfound connection, Skloot is able to develop the depth in her characters’ personalities and reveal their true nature, especially Deborah’s. She also conducted over “a thousand hours of interviews” in addition to extensive studies using “photos and documents, scientific and historical research,” etc. (1). Not only does she explore Henrietta’s personal life and show their perspectives on HeLa, but also she examines countless scientific resources to demonstrate the scientific community’s perspective on

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