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Biological explanation for the symptoms of cystic fibrosis
Positives and negatives of cystic fibrosis
Positives and negatives of cystic fibrosis
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•Commitments • Start by committing yourself • Picture your life if you were to keep up with this commitment and how it will make you feel. • Revisit your commitment daily • When you mess up, apologize to your child, to take a positive step forward • Make a small positive change every day • Commit to taking care of yourself and staying centered • Focus on loving the one you’re with • Focus on staying connected and being a role model • Focus on teaching emotional intelligence and meeting your child’s needs • Focus on guidance rather than punishment. • Focus on self-acceptance and compassion. Cystic Fibrosis • Cystic fibrosis is the most common fatal genetic disease affecting Canadian children and young adults. • Cystic fibrosis effects …show more content…
• It is estimated that one in every 3,600 children born in Canada has cystic fibrosis. CAUSES OF CYSTIC FIBROSIS • Cystic fibrosis is a genetic disease that occurs when a child inherits two abnormal genes, one from each parent. Challenges • The diagnosis that your child or loved one has cystic fibrosis can come as a huge shock. • Experiencing a wide range of emotions, including denial, anger or even guilt are very common • These are all natural responses to such an emotional and frightening. • Raising a child with a chronic medical condition may cause it to be hard for them to live a normal life • Preparing them for entering the adult world can seem like an impossible task. • Parents may encounter feelings of depression and anxiety while processing emotions such as guilt; fear of their child being alone or with a partner, etc. • Because children with cystic fibrosis can need a lot of special care, other siblings in the family can feel left out or neglected. • Some parents try to protect their other children by not discussing certain aspects of cystic fibrosis, which can in turn lead to feelings of alienation or
Cystic Fibrosis (CF) Pathophysiology: Cystic fibrosis is a genetic disease of the secretory glands that affects the respiratory and digestive system. It mainly affects the lungs, pancreas, liver, intestines, sinuses, and reproductive organs. Cystic fibrosis affects the cells that produce sweat, mucus, and digestive fluids. Mucus becomes thick and sticky, causing build-up in the lungs and blocking airways, making it easier for bacteria to develop. This prompts repeated lung infections and can cause severe lung damage after some time.
Visse, M, Abma, T, Oever, HVD, Prins, Y, Gulmans, Y. 2013. Perceptions of hospital admission in patients with cystic fibrosis. Journal of Hospital Administration 2(3), pp. 54-65.
Being diagnosed with a chronic illness is a life-altering event. During this time, life is not only difficult for the patient, but also for their loved ones. Families must learn to cope together and to work out the best options for the patient and the rest of the family. Although it may not be fair at times, things may need to be centered on or around the patient no matter what the circumstance. (Abbott, 2003) Sacrifices may have to be made during difficult times. Many factors are involved when dealing with chronic illnesses. Coping with chronic illnesses alter many different emotions for the patients and the loved ones. Many changes occur that are very different and difficult to get used to. (Abbott, 2003) It is not easy for someone to sympathize with you when they haven’t been in the situation themselves. No matter how many books they read or people they talk to, they cannot come close to understanding.
During this time parents tend to begin to loosen their control on their children (Gillen, 2015), so that these emerging adults can find themselves. That being said some parents have a hard time letting go of their children and this causes a lot of tension. Emerging adults
Cystic fibrosis is one of the most common lethal mutations in humans. The autosomal recessive allele is carried by 1/20 Caucasians, 1/400 couples will have children with the disease, and ¼ children will be afflicted. If untreated, 95% of affected ch ildren will die before age five (Bell, 1996).
4. Other life stressors – the child with ASD is not the only stressor the family is facing in Let Me Hear Your Voice. The article suggests that it is important for a clinician to take these stressors into account when working with a family. Clinicians are potentially able to assist with the other stressors in a family’s life by providing referrals and other appropriate suggestions.
They face many issues such as economic instability, depression, loneliness, fear of being alone and feeling betrayed. Children feel depressed in cases like this because even at a young age they know that things are not okay. They also suffer from fear and being betrayed, they suffer fear because they 're scared of what is going to happen to their family since they 're so used to having their family together. Many times children who face this situations feel like they’ve been betrayed because they don’t know why their mother or father have gone away and not came back. The psychologist mentions that it’s very normal for children to feel this way and conduct a different behaviour than usual because just like everyone else they don’t seem to understand
Cystic Fibrosis is a lifelong disease that has a harsh negative affect on many vital organs, some of which include the lungs, pancreas, and intestines. This disease causes the mucus, tears, and sweat of the patient to be considerably thick. However, the thickness of such mucus is determined by the severity of the patient’s Cystic Fibrosis. This mucus affects the breathing of those diagnosed with cystic fibrosis, and many have reported an additional trouble with digesting food. One is most likely to have Cystic Fibrosis if their families have a history of such a disease. Therefore, Cystic Fibrosis is a genetic disease that is recessively passed down to proceeding generations. Additionally, this disease most commonly affects those who are Caucasian or of European descent.
Cystic Fibrosis is an inherited disease characterized by the buildup of thick, sticky mucous that can cause severe damage to the body’s organs. Mucous is usually a slippery substance that lubricates and protects the linings of the airway, digestive system, reproductive system and other organs and tissue. Problems with digestion can lead to diarrhea, malnutrition, poor growth, and weight-loss. Due to the abnormally thick mucous it can can clog airways, leading to breathing problems and bacterial infections in the lungs. Bacterial infections can lead to coughing, wheezing and inflammation. Overtime these infections can lead to permanent damage in the lungs including the formation of scar tissue, known as fibrosis and cysts in the lungs (Genetics Home Reference, 2013). The symptoms and signs of this disease vary but mostly include progressive damage to the respiratory system and chronic digestive system problems. An individuals’ lungs who are infected by cystic fibrosis have bacteria from an early stage. This bacteria can spread to the small airways, leading to the formation of bacterial micro-environments known as biofilms. Biofilms are difficult for antibodies to penetrate, therefore the bacteria repeatedly damage the lung and gradually remodel the airways, resulting in difficultly to eradicate the infection (Welsh, 1995). Cystic fibrosis patients may even have their airways chronically colonized be filamentous fungi and/or yeasts. Most men with cystic fibrosis have congenital bilateral absence of the vas deferens (CBAVD), a condition in which the tubes that carry sperm are blocked by mucous and do not develop properly. As well, women may experience complications in pregnancy. Either the c...
This couple has discussed their concerns involving the genetic possibility of their children having cystic fibrosis since a family member has this disorder.
Each child will probably have many different kind of health issue during his or her infancy or childhood. In addition, for some children these illnesses are mild, they come and go, and they do not have negative influence on their everyday life and development. On the other hand, for some children, there are some chronic illnesses that have a huge effect on their daily life during childhood. Indeed, a chronic health condition is a health issue that last more than 3 months, and it has a big effect on on a child’s daily life, activity, and development. As a result, it demands more hospitalizations, extensive medical care, emergency care, and/or home health care. According to Weiner, “Each year in the US, 6 million children ranging
Cystic fibrosis is a genetic disease that is passed down through families. Cystic Fibrosis causes sticky mucus to build up in the lungs, digestive tract, and other areas of the body. Mucus clogs can lead to life-threatening mucus infections. Board, A.D.A.M. Editorial. The. Cystic fibrosis.
Watson, S.L. (2008). Something you have to do – Why do parents of children with
Chronic illness issues can include managing their illness, the cost of taking care of the illness, etc. Many people who suffer from a chronic illness suffer a lot trying to manage their illness on a daily basis. According to a website called NCOA.org, “About 80% of older adults have one chronic disease. 68.4% of Medicare beneficiaries have two or more chronic diseases and 36.4% have four or more. Chronic diseases can affect a person’s ability to perform important activities, restricting their engagement in life and their enjoyment of family and friends”
... affects the diagnosed child, but it affects his or her parents, and siblings in many different ways. Different families go through it differently, but they are all affected emotionally, physically, socially, educationally, and financially.