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Cystic fibrosis doctors report
Positives and negatives of cystic fibrosis
Positives and negatives of cystic fibrosis
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As a Cystic Fibrosis patient, my day consists of multiple different medications and treatments that must be done diligently for me live a healthy life. I set up a schedule for medication and treatments weekly to assure that they are taken as prescribed. However, life can become very chaotic some days for anybody, especially a cystic fibrosis patient causing a skip or delay of medications or treatments. If there is a persistent skipping of medications and treatments, overtime there will be gradual decrease in the patients’ health. This decrease can lead to exacerbations which consist of at best days in the hospital and IV antibiotics or can develop into other related conditions. The more frequent a patient is non-compliant with their medications
In spite of the fact that there is no cure for cystic fibrosis, treatment can ease symptoms and decrease complications. Other forms of treatment include, chest physical therapy (CPT) used to loosen mucus up to four times each day. Pulmonary rehabilitation (PR) is another treatment physician’s recommend. PR is utilized to enhance lung capacity and general prosperity.
Sawicki, GS, Sellers, DE, Robinson, WM. 2009. High treatment burden in adults with cystic fibrosis: challenges to disease self-management. The Journal of Cystic Fibrosis 8(2), pp. 91-96.
To effectively manage COPD it is essential for patients to monitor themselves by writing a list of dates and times when experiencing symptoms and reactions to treatments. (Lung Chicago Managing COPD, 2016). Understanding a patient’s personal disease characteristics will help in determining treatment to prevent exacerbations. To maintain stable condition of the disease, COPD patients need to understand and reduce risk factors. Counseling programs such as smoking cessations need to be available for COPD patients as part of their treatment. Pharmacotherapy for the disease is also used to reduce its symptoms and difficulties on
Along with the problems of chronic illnesses themselves, many other problems may come. Treatments and medications are just the beginning of things when it comes to problems with illnesses. With cystic fibrosis, you start out with a high number of medications and treatments to begin with. The older you get and the worse your condition gets, the more you take. (“Psychological impact,” n.d.) Many struggles come along with taking these medications and treatments. When children are first diagnosed with cystic fibrosis, they are typically very young. From the beginning, there are many medications and treatments that needed to be taken and done. Sometimes, trying to get children to take medications and treatments is like pulling teeth. The medications for cystic fibrosis are extremely important. If cystic fibrosis patients miss medica...
With the diagnosis of disease comes many life altering events. Someone’s world can be turned upside down at the moment it is recognized and these people have no choice but to adjust. Sometimes, the disease has the power to inhibit even the most simple activities, or in some lucky cases, inhibit almost none.
"Cystic Fibrosis Federation Australia Quick Facts." Cystic Fibrosis Federation Australia Quick Facts. N.p., n.d. Web. 23 Jan. 2014. .
A widely accepted Caucasian disease has since changed; as cases of its existence are appearing in the South Asian Population (Orenstein, Rosenstein and Stern, 2000). First discovered in 1989, Cystic Fibrosis (CF) is a genetically predetermined condition, its presences is lifelong and highly complex, which is why many CF sufferers and families develop various mechanisms in order to adapt to the condition (Tippingemail, Scholes, Cox, 2010). Cystic Fibrosis causes the body to develop thick, sticky mucus which clogs the lungs and affects other organs in the body, mainly the pancreas. The layer of mucus if untreated develops in to a chronic infection which can be detrimental. The pancreas of a CF patient is most vulnerable, once the mucus has reached this organ, it halts digestive enzymes from reaching the intestines which aid in absorbing food, therefore affecting nearby organs (Davies, Alton, and Bush, 2007). Currently there are 9,000 people diagnosed with CF in England (CF Trust, 2011). It has been estimated that there is 1 in 10,000 South Asian sufferers in the UK alone (Kabra, Kabra, Lodha, Ghosh, Kapil et al, 2003; McCormick, Green, Mehta, 2002). Prior research-based literature that focuses on people with CF and their families covers some of the experience of living with the disease but displays some major gaps; none has specifically targeted South Asian individuals. Cross culturally this is also the case; the limited availability of CF research has influenced scientists to devote more attention in this area. For instance, information in regards to CF in Egypt is very limited; firstly CF has been believed to occur infrequently as there has not been a sufficient amount of known CF cases. Naguib, Schrijver, Gardner, Pique, Doss, Ze...
Cystic Fibrosis is an inherited disease characterized by the buildup of thick, sticky mucous that can cause severe damage to the body’s organs. Mucous is usually a slippery substance that lubricates and protects the linings of the airway, digestive system, reproductive system and other organs and tissue. Problems with digestion can lead to diarrhea, malnutrition, poor growth, and weight-loss. Due to the abnormally thick mucous it can can clog airways, leading to breathing problems and bacterial infections in the lungs. Bacterial infections can lead to coughing, wheezing and inflammation. Overtime these infections can lead to permanent damage in the lungs including the formation of scar tissue, known as fibrosis and cysts in the lungs (Genetics Home Reference, 2013). The symptoms and signs of this disease vary but mostly include progressive damage to the respiratory system and chronic digestive system problems. An individuals’ lungs who are infected by cystic fibrosis have bacteria from an early stage. This bacteria can spread to the small airways, leading to the formation of bacterial micro-environments known as biofilms. Biofilms are difficult for antibodies to penetrate, therefore the bacteria repeatedly damage the lung and gradually remodel the airways, resulting in difficultly to eradicate the infection (Welsh, 1995). Cystic fibrosis patients may even have their airways chronically colonized be filamentous fungi and/or yeasts. Most men with cystic fibrosis have congenital bilateral absence of the vas deferens (CBAVD), a condition in which the tubes that carry sperm are blocked by mucous and do not develop properly. As well, women may experience complications in pregnancy. Either the c...
Today?s healthcare environment calls for continued cost containment while providing better, quality care. As a result of the advances of healthcare, life expectancies have increased resulting in a growing, aged population with more chronic conditions. Treatment options, outside the hospital, are the norm for most routine management of patient care, but when someone gets sick, and requires hospitalization, the combination of their age, chronicity of illness and increased comorbidity
According to the American College of Preventative Medicine (2011), non-adherence to medications is estimated to cause 125,000 deaths annually and overall, about 20% to 50% of patients are non-adherent to medical therapy. Through my personal experience working in the healthcare field, I have observed an increasing number of patients seemingly detached from the seriousness of their medical diagnoses, as the majority of my patients have taken very little personal responsibility in their own healing and overall health. While these patients have a variety of medical issues, they do share similar characteristics: disengagement from their medical diagnoses and taking the necessary steps towards healing, health and vitality. In my work or in my clinical experiences, I get frustrated when patients are
Chronic illness issues can include managing their illness, the cost of taking care of the illness, etc. Many people who suffer from a chronic illness suffer a lot trying to manage their illness on a daily basis. According to a website called NCOA.org, “About 80% of older adults have one chronic disease. 68.4% of Medicare beneficiaries have two or more chronic diseases and 36.4% have four or more. Chronic diseases can affect a person’s ability to perform important activities, restricting their engagement in life and their enjoyment of family and friends”
There are many ways to categorize illness and disease; one of the most common is chronic illness. Many chronic illnesses have been related to altered health maintenance hypertension and cardiovascular diseases are associated with diet and stress, deficient in exercise, tobacco use, and obesity (Craven 2009). Some researchers define the chronic illness as diseases which have long duration and generally slow development (WHO 2013); it usually takes 6 month or longer than 6 month, and often for the person's life. It has a sluggish onset and eras of reduction for vanishing the symptoms and exacerbation for reappear the symptoms. Some of chronic illness can be directly life-threatening. Others remain over time and need intensive management, such as diabetes, so chronic illness affects physical, emotional, logical, occupational, social, or spiritual functioning. Chronic diseases, such as heart disease, stroke, cancer, chronic respiratory diseases and diabetes, all of these diseases are the cause of mortality in the world, representing 63% of all deaths. So a chronic illness can be stressful and may change the way a person l...
Timeliness in medical care can be of the utmost importance. Letting things progress can result in a slippery circle, where a minor infection, untreated end up being life threatening. With increased damage caused by neglecting health care, or waiting on a health care provider, the physical damage, and costs associated increase, often exponentially.
The uncertain nature of chronic illness takes many forms, but all are long-term and cannot be cured. The nature of chronic illness raises hesitation. It can disturb anyone, irrespective of demographics or traditions. It fluctuates lives and generates various inquiries for the patient. Chronic illness few clear features involve: long-lasting; can be managed but not cured; impacts quality of life; and contribute to stress. Chronic illnesses can be enigmatic. They often take considerable time to identify, they are imperceptible and often carry a stigma because there is little sympathetic or social support. Many patients receive inconsistent diagnoses at first and treatments deviate on an individual level. Nevertheless, some circumstances require
Pulmonary Fibrosis is a condition where the lung tissue becomes thick and scarred. The thickening and scarring of the lungs makes it hard for the oxygen supply to be delivered throughout the body. The scarring can be caused by many different factors, but it is hard for doctors to figure out exactly what caused the onset of this disease. The damage caused by this disease cannot be repaired. Pulmonary Fibrosis usually affects the age group of forty to seventy years old. Men are more likely to develop this disease, but women can also get this disease. Pulmonary Fibrosis is not a transmittable disease. Little is actually known about how the disease develops. There seems to be a genetic connection and environmental factors that cause the disease to develop.